Consumer/Participant Direction

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Health Equity and LGBT Elders of Color

Ethnic minorities and LGBT older adults will continue to become more represented among the older adult population. A lifetime of discrimination has often adversely affected LGBT elders of color in a myriad of ways, including greater likelihood of financial instability and heightened health disparities. This report offers policy solutions to support the wellbeing of this growing population. Policy solutions include strengthened outreach and community supports to LBGT elders of color.

Short URL: http://www.advancingstates.org/node/53386

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Long-Term Care: Perceptions, Experiences and Attitudes Among Americans 40 or Older

A representative sample of 1,019 adults ages 40 or older were interviewed regarding their experiences and beliefs about their need for long-term care services, what such care would cost, and how such issues fit into their concerns about growing older. This report outlines survey findings. Findings include, 58% of participants underestimate the cost of nursing homes, 41% have discussed long-term care preferences with family and 51% support a government sponsored long-term care insurance program.

Short URL: http://www.advancingstates.org/node/53384

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Self-Directed Budget Enhances Access to Home Health and Other Needed Services, Resulting in Fewer Unmet Needs, Better Health Outcomes, and High Satisfaction for Medicaid Beneficiaries

What They Did. Did It Work? How They Did It and Adoption Considerations. These are all the questions that the Policy Innovations Profile will answer about Cash & Counseling. As a voluntary alternative to traditional agency-delivered home care, a joint public-private program gives Medicaid enrollees a monthly allowance for home care and related services that they can spend at their own discretion. Review the evidence. tools and resources and otherimplementation tips.

Short URL: http://www.advancingstates.org/node/53376

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Examining the Experiences and Decisions of Parents/Guardians: Participant Directing the Supports and Services of Adults With Significant Intellectual and Developmental Disabilities

In this case study, the authors examined the decisions and experiences of parents/guardians who directed supports and services for an adult with significant intellectual and developmental disabilities (SIDD). Respondents included the parents/guardian of the adult as well as others in the circle of support identified by the parents/guardians.

Short URL: http://www.advancingstates.org/node/53359

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Aging and Disability Network Participant Direction Toolkit

Review this one-stop resource created by a team of agencies to help providers better understand, develop, and sustain participant-directed programs. The information is applicable whether funded by the Older Americans Act, Veterans Health Administration, State funds or other. The toolkit has two parts: one devoted to designing, managing and evaluating programs; the second on Financial Management Services (FMS). Resources include articles, forms, webinar recordings, state examples and charts.

Short URL: http://www.advancingstates.org/node/53358

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Agency With Choice: Key Components for Practical Implementation while Maintaining Participant Choice and Control

Agency with Choice (AwC) is a model of Financial Management Services (FMS) in which an agency and a participant are joint employers of workers who provide service to the participant. This paper presents the benefits, challenges, and risks of AwC FMS and puts forth the National Resource Center for Participant-Directed Services (NRCPDS)’s list of key components for AwC FMS to be considered participant-directed, providing a model for consistency in future implementation of AwC FMS.

Short URL: http://www.advancingstates.org/node/53305

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National Resource Center for Participant-Directed Services

This is the official website of the National Resource Center for Participant-Directed Services (NRCPDS), which is the only national center of its kind to assist states and other agencies or organizations that want to offer, or already offer, participant-directed services to people with disabilities. NRCPDS provides technical assistance, research, education, and training to both Medicaid and non-Medicaid funded programs.

Short URL: http://www.advancingstates.org/node/53261

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Community First Choice Option Section 1915(K)

This fact sheet describes “Community First Choice Option” – one of the rules that the CMS recently released to expand access to home and community based services (HCBS) for people with disabilities. States that elect the Community First Choice option are eligible for a 6 percentage point increase in their federal medical assistance percentage. Individuals who require an institutional level of care are eligible for the services, which will be offered in community-based settings.

Short URL: http://www.advancingstates.org/node/53142

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Participant-Directed Respite Guidebook

This resource for programs includes State Lifespan Respite Programs, that provide respite and are interested in developing & implementing participant-directed respite, especially through voucher programs. Included are: overview materials that provide content information regarding participant direction, examples from two states that currently implement participant-directed respite programs using a voucher system, important tax and financial information, & resources for additional materials.

Short URL: http://www.advancingstates.org/node/53091

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Consumer-Directed Personal Care: Comparing Aged and Non-Aged Adult Recipient Health-Related Outcomes Among Those With Paid Family Versus Non-Relative Providers

Risk factors associated with the incidence of recipient injuries, bedsores and contractures, and health care use among aged and non-aged adult personal care recipients are investigated. Data are from a statewide survey of aged and non-aged adult personal assistance service (PAS) recipients in California's In-Home Supportive Services (IHSS) program. Outcomes among recipients using relatives as paid providers are compared with those of recipients having non-relatives as providers.

Short URL: http://www.advancingstates.org/node/53081

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