Real Choice Systems Change Grants Compendium Sixth Edition Cover with pictures of persons with disabilities and DHHS logo

Logo for Centers for Medicare & Medicaid Services U.S. DEPARTMENT OF HEALTH & HUMAN SERVICES
Centers for Medicare & Medicaid Services
7500 Security Boulevard, Mail Stop S2-14-26
Baltimore, Maryland 21244-1850

Center for Medicaid and State Operations
Disabled and Elderly Health Programs Group (DEHPG)


March 2007

Dear Reader:

Since 2001, CMS has awarded approximately $280 million in Systems Change Grants for Community Living to 50 States, 2 Territories, and the District of Columbia. We have prepared this Sixth Edition of the Compendium of the Real Choice Systems Change Grants to be an ongoing user-friendly reference tool for our Grantees and others interested in these systems change grants.

The Compendium will help you learn more about how these grants will be used to allow more people of all ages with a disability or long-term illness to live and participate in their communities. We hope that Real Choice Systems Change Grantees will also find it useful to identify other Grantees with similar goals and activities. A Web-based edition of the Compendium will be made available on the CMS Web site at http://www.cms.hhs.gov/RealChoice/ as well as on the Clearinghouse for the Community Living Exchange Collaborative Web site at http://www.hcbs.org.

The Compendium contains basic information about each of the Real Choice Systems Change Grants awarded in FY 2003-FY 2004. It also includes information for the Family to Family and Systems Transformation Grantees who received awards in FY 2005 and FY 2006. It is divided into sections corresponding to the different types of grants and year of award. Each section is arranged alphabetically by state. Information for each grant includes the name of the grantee organization, the title of the grant, the type of grant, the amount awarded and fiscal year awarded, the primary contacts for each grant, the target populations to be served under the grant, the primary goals and activities of each grant project, and a brief description of the grant activities. For grants that received a no-cost time extension, we have included the expected completion date. A list of the 2001 and 2002 Grantees who have completed their grant activities is included in the appendix.

With the assistance of our contractors, RTI International and Abt Associates, we will also be preparing additional reports that will provide more comprehensive descriptions of the Grantees' goals and activities and progress.

Sincerely,

Gale P. Arden, Director, Disabled and Elderly Health Programs Group signature

Gale P. Arden
Director, Disabled and Elderly Health Programs Group


This document was developed under a contract from the U.S. Department of Health and Human Services, Centers for Medicare & Medicaid Services, Contract No. 500-00-04. However, these contents do not necessarily represent the policy of the U.S. Department of Health and Human Services, and you should not assume any endorsement by the federal government.


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Table of Contents

Alphabetical List of States, with Grant Type

Feasibility Studies and Development Grants
2003

Respite for Adults (RFA)

CALIFORNIA
NEW YORK
OHIO
RHODE ISLANDimage of dagger which represents goals/activities/abstract modified since last edition

Respite for Children (RFC)

ALABAMAimage of dagger which represents goals/activities/abstract modified since last edition
ARKANSAS
MARYLAND
MICHIGAN
OREGON
RHODE ISLAND

Community Based Treatment Alternatives for Children (CTAC)

ILLINOIS
MARYLAND
MASSACHUSETTS
MISSISSIPPIimage of dagger which represents goals/activities/abstract modified since last edition
MISSOURI
TEXAS

Research and Demonstration Grants
2003

Quality Assurance and Quality Improvement in Home and Community Based Services (QA/QI)

CALIFORNIA
COLORADO
CONNECTICUT
DELAWAREimage of dagger which represents goals/activities/abstract modified since last edition
GEORGIAimage of dagger which represents goals/activities/abstract modified since last edition
INDIANAimage of dagger which represents goals/activities/abstract modified since last edition
MAINE
MINNESOTA
MISSOURIimage of dagger which represents goals/activities/abstract modified since last edition
NEW YORK
NORTH CAROLINA
OHIO
OREGON
PENNSYLVANIA
SOUTH CAROLINA
TENNESSEE
TEXAS
WEST VIRGINIA
WISCONSIN

Independence Plus Initiative (IP)

COLORADOimage of dagger which represents goals/activities/abstract modified since last edition
CONNECTICUTimage of dagger which represents goals/activities/abstract modified since last edition
FLORIDAimage of dagger which represents goals/activities/abstract modified since last edition
GEORGIA
IDAHO
LOUISIANAimage of dagger which represents goals/activities/abstract modified since last edition
MAINE
MASSACHUSETTSimage of dagger which represents goals/activities/abstract modified since last edition
MICHIGANimage of dagger which represents goals/activities/abstract modified since last edition
MISSOURI
MONTANAimage of dagger which represents goals/activities/abstract modified since last edition
OHIOimage of dagger which represents goals/activities/abstract modified since last edition

Money Follows the Person Rebalancing Initiative (MFP)

CALIFORNIA
IDAHO
MAINEimage of dagger which represents goals/activities/abstract modified since last edition
MICHIGANimage of dagger which represents goals/activities/abstract modified since last edition
NEVADA
PENNSYLVANIA
TEXASimage of dagger which represents goals/activities/abstract modified since last edition
WASHINGTON
WISCONSIN

Community-Integrated Personal Assistance Services and Supports (C-PASS)

ARIZONA
CONNECTICUT
LOUISIANA
MASSACHUSETTSimage of dagger which represents goals/activities/abstract modified since last edition
NEBRASKAimage of dagger which represents goals/activities/abstract modified since last edition
OREGONimage of dagger which represents goals/activities/abstract modified since last edition
TEXAS
VIRGINIAimage of dagger which represents goals/activities/abstract modified since last edition

Technical Assistance to States, State Advisory Committees and Families
2003

Family-to-Family Health Care Information and Education Centers (FTF)

ALASKA*
COLORADO*
INDIANA*image of dagger which represents goals/activities/abstract modified since last edition
MARYLAND*
MONTANA*image of dagger which represents goals/activities/abstract modified since last edition
NEVADA*
NEW JERSEY*
SOUTH DAKOTA*
WISCONSIN*

Feasibility and Demonstration
2004

LIFE Accounts Feasibility and Demonstration (LIFE)

NEW HAMPSHIRE
WISCONSINimage of dagger which represents goals/activities/abstract modified since last edition

Research and Demonstration Grants
2004

Mental Health: Systems Transformation (MHST)

DELAWARE
MAINEimage of dagger which represents goals/activities/abstract modified since last edition
MASSACHUSETTS
MICHIGAN
MINNESOTA
NEW HAMPSHIRE
NORTH CAROLINAimage of dagger which represents goals/activities/abstract modified since last edition
OHIO
OKLAHOMA
OREGONimage of dagger which represents goals/activities/abstract modified since last edition
PENNSYLVANIAimage of dagger which represents goals/activities/abstract modified since last edition
VIRGINIAimage of dagger which represents goals/activities/abstract modified since last edition

Quality Assurance and Quality Improvement in Home and Community Based Services (QA/QI)

ALASKAimage of dagger which represents goals/activities/abstract modified since last edition
ARIZONA
ARKANSAS
FLORIDA
MASSACHUSETTS
NEBRASKAimage of dagger which represents goals/activities/abstract modified since last edition
NEW HAMPSHIREimage of dagger which represents goals/activities/abstract modified since last edition
NEW JERSEYimage of dagger which represents goals/activities/abstract modified since last edition
VERMONTimage of dagger which represents goals/activities/abstract modified since last edition

Integrating Long-Term Supports with Affordable Housing (HOUSE)

ARKANSASimage of dagger which represents goals/activities/abstract modified since last edition
DISTRICT OF COLUMBIAimage of dagger which represents goals/activities/abstract modified since last edition
MISSISSIPPI
NEW HAMPSHIRE
NORTH CAROLINAimage of dagger which represents goals/activities/abstract modified since last edition
OREGON
PENNSYLVANIA
VERMONTimage of dagger which represents goals/activities/abstract modified since last edition

Rebalancing Initiative (REBAL)

ILLINOIS
LOUISIANA
MISSISSIPPI
NORTH CAROLINA
NORTH DAKOTAimage of dagger which represents goals/activities/abstract modified since last edition
TENNESSEE
VIRGINIA

Portals from EPSDT to Adult Supports (PORT)

DISTRICT OF COLUMBIAimage of dagger which represents goals/activities/abstract modified since last edition
NEBRASKA

Comprehensive Systems Reform (COMP)

VERMONT
WISCONSIN

Technical Assistance to States, State Advisory Committees and Families
2004

Family-to-Family Health Care Information and Education Centers (FTF)

ARIZONA
KENTUCKY*
LOUISIANA
MASSACHUSETTSimage of dagger which represents goals/activities/abstract modified since last edition
NEW MEXICO
NEW YORK
NORTH CAROLINA
NORTH DAKOTA
UTAH
WEST VIRGINIA

Systems Transformation Grants (ST)
2005

ARKANSAS
IOWAimage of dagger which represents goals/activities/abstract modified since last edition
LOUISIANAimage of dagger which represents goals/activities/abstract modified since last edition
MAINEimage of dagger which represents goals/activities/abstract modified since last edition
MASSACHUSETTSimage of dagger which represents goals/activities/abstract modified since last edition
MISSOURIimage of dagger which represents goals/activities/abstract modified since last edition
NEW HAMPSHIRE
NEW MEXICOimage of dagger which represents goals/activities/abstract modified since last edition
OREGONimage of dagger which represents goals/activities/abstract modified since last edition
SOUTH CAROLINAimage of dagger which represents goals/activities/abstract modified since last edition

2006

CALIFORNIA
KANSAS
MICHIGAN
NEW JERSEY
NEW YORK
NORTH CAROLINA
RHODE ISLAND
VIRGINIA

Family-to-Family Health Care Information and Education Centers (FTF)
2005

CONNECTICUTimage of dagger which represents goals/activities/abstract modified since last edition
IDAHO
MICHIGAN
NEW HAMPSHIREimage of dagger which represents goals/activities/abstract modified since last edition
OREGON
RHODE ISLAND
SOUTH CAROLINA
TEXAS
VIRGINIAimage of dagger which represents goals/activities/abstract modified since last edition
WASHINGTON

Appendix: List of Completes


* Grantee received a supplemental award in FY 2006.

image of dagger which represents goals/activities/abstract modified since last edition Goals/activities/abstract modified since last edition.

Alphabetical List of States, with Grant Type

ALABAMA (RFC)
ALASKA (FTF)
ALASKA (QA/QI)
ARIZONA (C-PASS)
ARIZONA (FTF)
ARIZONA (QA/QI)
ARKANSAS (HOUSE)
ARKANSAS (QA/QI)
ARKANSAS (RFC)
ARKANSAS (ST)
CALIFORNIA (MFP)
CALIFORNIA (QA/QI)
CALIFORNIA (RFA)
CALIFORNIA (ST)
COLORADO (FTF)
COLORADO (IP)
COLORADO (QA/QI)
CONNECTICUT (C-PASS)
CONNECTICUT (FTF)
CONNECTICUT (IP)
CONNECTICUT (QA/QI)
DELAWARE (MHST)
DELAWARE (QA/QI)
DISTRICT OF COLUMBIA (HOUSE)
DISTRICT OF COLUMBIA (PORT)
FLORIDA (IP)
FLORIDA (QA/QI)
GEORGIA (IP)
GEORGIA (QA/QI)
IDAHO (FTF)
IDAHO (IP)
IDAHO (MFP)
ILLINOIS (CTAC)
ILLINOIS (REBAL)
INDIANA (FTF)
INDIANA (QA/QI)
IOWA (ST)
KANSAS (ST)
KENTUCKY (FTF)
LOUISIANA (C-PASS)
LOUISIANA (FTF)
LOUISIANA (IP)
LOUISIANA (REBAL)
LOUISIANA (ST)
MAINE (IP)
MAINE (MFP)
MAINE (MHST)
MAINE (QA/QI)
MAINE (ST)
MARYLAND (CTAC)
MARYLAND (FTF)
MARYLAND (RFC)
MASSACHUSETTS (C-PASS)
MASSACHUSETTS (CTAC)
MASSACHUSETTS (FTF)
MASSACHUSETTS (IP)
MASSACHUSETTS (MHST)
MASSACHUSETTS (QA/QI)
MASSACHUSETTS (ST)
MICHIGAN (FTF)
MICHIGAN (IP)
MICHIGAN (MFP)
MICHIGAN (MHST)
MICHIGAN (RFC)
MICHIGAN (ST)
MINNESOTA (MHST)
MINNESOTA (QA/QI)
MISSISSIPPI (CTAC)
MISSISSIPPI (HOUSE)
MISSISSIPPI (REBAL)
MISSOURI (CTAC)
MISSOURI (IP)
MISSOURI (QA/QI)
MISSOURI (ST)
MONTANA (FTF)
MONTANA (IP)
NEBRASKA (C-PASS)
NEBRASKA (PORT)
NEBRASKA (QA/QI)
NEVADA (FTF)
NEVADA (MFP)
NEW HAMPSHIRE (FTF)
NEW HAMPSHIRE (HOUSE)
NEW HAMPSHIRE (LIFE)
NEW HAMPSHIRE (MHST)
NEW HAMPSHIRE (QA/QI)
NEW HAMPSHIRE (ST)
NEW JERSEY (FTF)
NEW JERSEY (QA/QI)
NEW JERSEY (ST)
NEW MEXICO (FTF)
NEW MEXICO (ST)
NEW YORK (FTF)
NEW YORK (QA/QI)
NEW YORK (RFA)
NEW YORK (ST)
NORTH CAROLINA (FTF)
NORTH CAROLINA (HOUSE)
NORTH CAROLINA (MHST)
NORTH CAROLINA (QA/QI)
NORTH CAROLINA (REBAL)
NORTH CAROLINA (ST)
NORTH DAKOTA (FTF)
NORTH DAKOTA (REBAL)
OHIO (IP)
OHIO (MHST)
OHIO (QA/QI)
OHIO (RFA)
OKLAHOMA (MHST)
OREGON (C-PASS)
OREGON (FTF)
OREGON (HOUSE)
OREGON (MHST)
OREGON (QA/QI)
OREGON (RFC)
OREGON (ST)
PENNSYLVANIA (HOUSE)
PENNSYLVANIA (MHST)
PENNSYLVANIA (QA/QI)
RHODE ISLAND (FTF)
RHODE ISLAND (RFA)
RHODE ISLAND (RFC)
RHODE ISLAND (ST)
SOUTH CAROLINA (FTF)
SOUTH CAROLINA (QA/QI)
SOUTH CAROLINA (ST)
SOUTH DAKOTA (FTF)
TENNESSEE (QA/QI)
TENNESSEE (REBAL)
TEXAS (C-PASS)
TEXAS (CTAC)
TEXAS (FTF)
TEXAS (MFP)
TEXAS (QA/QI)
UTAH (FTF)
VERMONT (COMP)
VERMONT (HOUSE)
VERMONT (QA/QI)
VIRGINIA (C-PASS)
VIRGINIA (FTF)
VIRGINIA (MHST)
VIRGINIA (REBAL)
VIRGINIA (ST)
WASHINGTON (FTF)
WASHINGTON (MFP)
WEST VIRGINIA (FTF)
WEST VIRGINIA (QA/QI)
WISCONSIN (COMP)
WISCONSIN (FTF)
WISCONSIN (LIFE)
WISCONSIN (MFP)
WISCONSIN (QA/QI)

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Respite for Adults

CALIFORNIA

Grant Information


Name of Grantee
California Department of Mental Health
Title of Grant
California Study on New Medi-Cal Respite Benefit for Caregivers of Adults With Cognitive Impairment
Type of Grant
Respite for Adults
Amount of Grant
$100,000
Year Original Funding Received
2003

Contact Information


Dee Lemonds, TBI/CRC Program Administrator
Department of Mental Health
1600 9th Street
Sacramento, CA 95814
916-654-3001
Dee.Lemonds@dmh.ca.gov

Subcontractor(s)

Kathleen A. Kelly, Executive Director
Family Caregiver Alliance
690 Market Street, Suite 600
San Francisco, CA 94104
415-434-3388
kkelly@caregiver.org

Target Population(s)


Caregivers of individuals with adult-onset cognitive impairment.

Goal


The goal of this feasibility study is to develop recommendations for ways that California can implement and evaluate a new respite benefit under Medi-Cal for family and informal caregivers of individuals with adult-onset cognitive impairment.

Activities


Abstract


The project will bring together representatives from state departments, consumer groups, provider associations and academic institutions to develop a plan for expanding respite services to caregivers of persons with adult-onset cognitive impairments under Medicaid funding (Medicaid is called Medi-Cal in California).

The goal of the project is to develop recommendations on ways California can implement and evaluate a new respite benefit under Medicaid for family and informal caregivers of persons with adult-onset cognitive impairment. An Advisory Committee will identify the target population, project service use, analyze the potential impact of expanding respite services with the current infrastructure, identify protocols and procedures in existing state programs and outcome methodology currently in use in California and elsewhere, and establish procedures for data collection and evaluation of respite services to measure satisfaction, outcomes, cost, and utilization.

This study complements current efforts in the State regarding Olmstead planning, consumer direction, and long-term care integration by addressing key concerns, including supports for informal caregivers and the need for systems integration.

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Respite for Adults

NEW YORK

Grant Information


Name of Grantee
New York State Department of Health
Title of Grant
New York's Respite Care Feasibility Project
Type of Grant
Respite for Adults
Amount of Grant
$74,285
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Cynthia Schaffhausen, Acting Director
Division of Consumer & Local District Relations
518-474-5271
cxs05@health.state.ny.us

Charlotte Mason, Project Coordinator
Office of Medicaid Management
One Commerce Plaza, Room 826
Albany, NY 12260
518-474-5271
cmm24@health.state.ny.us

Subcontractor(s)

To be identified.

Target Population(s)


Caregivers of multiple adult populations including, but not limited to, consumers who are medically fragile, cognitively impaired, or physically disabled.

Goal


The goal of this study is to determine the feasibility of developing and implementing a model of respite care that supports both Medicaid eligible and non-Medicaid eligible individuals' ability to remain in the community, by lessening the emotional and physical hardships of their caregivers.

Activities


Abstract


The study will determine which modality(ies) of community-based respite care for adults are feasible in New York. Data will be obtained by examining respite models currently used in other states. The analysis will include, but not be limited to, types of services available, target populations served, success in achieving relief of caregiver stress, and how the use of a community-based respite care system has deterred premature institutionalization.

In addition, the Department will obtain information regarding use of different types of financing mechanisms (e.g., capitated, direct payment, voucher) to allow consumers to exercise choice, control, and responsibility over needed respite services. The study will recommend revisions to statutes, regulations, and policies that must be made or implemented to support a community-based model of respite care.

The Department of Health staff will meet quarterly throughout the study with representatives of primary LTC stakeholders to involve them in the monitoring and evaluation of the activities, reports, and recommendations of the contractor.

The ultimate goal of the Department, based on the results of the feasibility study, is the development and implementation of a community-based respite care model that will enhance the State's community LTC system.

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Respite for Adults

OHIO

Grant Information


Name of Grantee
Ohio Department of Aging
Title of Grant
Ohio's Respite for Adults Project
Type of Grant
Respite for Adults
Amount of Grant
$73,854
Year Original Funding Received
2003

Contact Information


Sharon Evanich, Grant Project Manager
50 West Broad Street, 9th Floor
Columbus, OH 43215-5928
614-644-5192
sevanich@age.state.oh.us

A copy of the study can be found at:
www.cas.muohio.edu/scripps/publications/Real_Choices.html

Subcontractor(s)

The Miami University, SCRIPPS Gerontology

Target Population(s)


Caregivers of in-home care recipients.

Goal


The goal of this study is to examine the feasibility of providing respite services as a part of the PASSPORT (Pre-Admission Screening System Providing Options and Resources Today) program, the 1915(c) Medicaid waiver service for seniors.

Activities


Abstract


In keeping with national trends, Ohio has endeavored to restructure its long-term care delivery system with a renewed emphasis on providing home and community services. As the State moves to expand those services, the need to provide a community support network for families of those in home care is increasingly apparent. Ohio's Respite for Adults project will evaluate the feasibility of implementing an adult respite benefit as part of Ohio's PASSPORT program: the 1915(c) Medicaid waiver service for seniors age 60 and older. The study will also allow Ohio to identify and coordinate respite services currently in place to provide caregivers with the time off that they need and deserve.

The Ohio Department on Aging will contract with an outside entity to (1) conduct focus groups and independent research, (2) perform a thorough analysis of the State's existing caregiver support structure, both public and private, and (3) evaluate the impact of a Medicaid respite benefit. Input from stakeholders and industry experts will be incorporated to develop the framework for this new service and implementation strategies.

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Respite for Adults

RHODE ISLAND

Grant Information


Name of Grantee
Rhode Island Department of Human Services (DHS)
Title of Grant
Respite Care for Adults Feasibility Study
Type of Grant
Respite for Adults
Amount of Grant
$100,000
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Frank Spinelli, Project Director
401-462-1892
FSpinell@dhs.ri.gov

Dianne Kayala, Project Coordinator
Chief, Family Health Systems
600 New London Avenue
Cranston, RI 02920
401-462-6303
dkayala@dhs.ri.gov

Subcontractor(s)

ACS

Target Population(s)


Working age adults and elderly persons with disabilities.

Goal


The goal of this study is to determine whether consumers and caregivers would accept respite care as an alternative to institutional or more costly home and community services.

Activities


Abstract


Only one of Rhode Island's six 1915(c) Home and Community-Based Services (HCBS) waivers for elderly persons and younger adults with disabilities includes respite services. The purpose of this project is to enable the Department of Human Services to determine the nature, scope, and magnitude of the need for respite care in Rhode Island and to expand the respite services currently being provided to consumers by the Diocese of Providence.

This project will determine the need for respite services and assess the parameters and impact of providing respite care for adults with disabilities. Stakeholders will be involved in all phases of project activities, which include determining the needs criteria for respite services; estimating the number and characteristics of people needing respite services; identifying roadblocks and best practices; evaluating current respite initiatives; assessing unmet needs; determining system capacity to provide needed respite services; and designing a benefit that defines type, scope, settings, locations, and providers.

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Respite for Children

ALABAMA

Grant Information


Name of Grantee
Alabama Department of Mental Health and Mental Retardation
Title of Grant
Alabama's Respite for Children Project
Type of Grant
Respite for Children
Amount of Grant
$100,000
Year Original Funding Received
2003

Contact Information


Kim Hammack, Principal Investigator
RSA Union Building
100 N. Union Street
PO Box 301410
Montgomery, AL 36130-1410
334-353-9144
kim.hammack@mh.alabama.gov

Debbie Tomblin, Project Coordinator
400 S. Union Street, Suite 270
Montgomery, AL 36140
334-240-8437 (b)
334-240-0907 (f)
dtomblin@alfamilyties.org

www.alfamilyties.org

Subcontractor(s)

Alabama Family Ties
Censeo Research, Inc.

Target Population(s)


Children and their families with serious emotional disturbance.

Goals


Activities


Abstract


The Alabama Department of Mental Health and Mental Retardation (DMH/MR) is undertaking this study to determine the feasibility of developing and implementing a statewide respite care system for children with serious emotional disturbance and their families. The Department will focus on a capacity- and infrastructure-building process. With an estimated 87 percent of children and their families in need of respite services, the DMH/MR is committed to addressing their needs.

DMH/MR will conduct a full-scale needs assessment to identify the caregivers of children in need and determine the type and scope of currently available respite services. It will also develop preliminary cost projections, estimate the number of persons likely to use services, determine an appropriate cap for respite services that can be received by any one individual, and analyze the impact of that cap. The DMH/MR will also develop an implementation plan that will establish the necessary protocols, tools, procedures, and other elements of the infrastructure needed to implement a respite program, and work for an amendment to the State Medicaid Plan and All Kids Plan to include respite services as a reimbursable service.

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Respite for Children

ARKANSAS

Grant Information


Name of Grantee
Arkansas Department of Human Services
Title of Grant
Arkansas' Respite for Children Project
Type of Grant
Respite for Children
Amount of Grant
$75,000
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Nancy Holder, Project Supervisor
PO Box 1437, Slot S380
Little Rock, AR 72203
501-682-1464
Nancy.Holder@arkansas.gov

David Deere, Primary Contact
2001 Pershing Circle, Suite 300
North Little Rock, AR 72114
501-682-9917
DeereGlenD@uams.edu

Subcontractor(s)

University of Arkansas for Medical Sciences/Partners for Inclusive Communities

Target Population(s)


Caregivers of children with special health care needs.

Goal


The goal of this study is to expand the number of participants in Arkansas's respite program for children with special health care needs from 132 to 275, and to increase self-reported consumer satisfaction with the program.

Activities


Abstract


Children's Medical Services (ChMS), the Arkansas Title V program for children with special health care needs, is located in the Arkansas Department of Human Services. ChMS will conduct a feasibility study to determine how to increase participation in a State Medicaid respite project targeted to caregivers of children with special health care needs.

The goal of this project is to expand participation in the respite care program for children and adolescents with special health care needs. Another goal is to increase self-reported consumer satisfaction with the program and to reduce caregivers' stress.

ChMS operates two 1915(c) waivers that have combined funding to allow caregivers of 275 children not receiving waiver services to receive respite services. Eligible children must be under age 19 and eligible for either SSI or TEFRA. Out of 315 applications for the 275 slots, only 228 met eligibility requirements. Of the 228, only 132 caregivers have met Medicaid billing requirements. The remainder failed to send in required information-particularly a Plan of Care naming a registered nurse who will certify that the caregiver is qualified to take care of the child and can appropriately carry out nurse delegated duties.

Through a subgrant, Partners for Inclusive Communities will undertake the following major activities: (1) assess the existing needs for respite and barriers to program participation, (2) develop one or more proposals for additional funding for respite services, (3) implement a revised plan for the respite program, (4) evaluate the revised plan, and (5) recommend further modifications to the revised plan.

The Steering Committee, comprising consumers and family members and key stakeholders, will be involved in all aspects of the project, including analyzing the problem, planning changes to the current program, overseeing implementation of the revised program, and evaluating the program's activities and impact.

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Respite for Children

MARYLAND

Grant Information


Name of Grantee
Mental Hygiene Administration, Maryland Department of Health and Mental Hygiene
Title of Grant
Maryland Respite for Children
Type of Grant
Respite for Children
Amount of Grant
$100,000
Year Original Funding Received
2003

Contact Information


Joan Smith, Project Director
MHA/ESHC
PO Box 800
Cambridge, MD 21613
410-221-2529
joansmith@dhmh.state.md.us

Subcontractor(s)

Center for Health Program Development and Management, University of Maryland, Baltimore County

Target Population(s)


Children under 18 with developmental disabilities, mental health conditions, and special health care needs, who meet the SSI definition of disability and are eligible for Medicaid, and their family caregivers. In the beginning, the project will target children with serious emotional disturbance and then phase in youth with other disabilities.

Goals


Activities


Abstract


The Mental Hygiene Administration, a unit of the Department of Health and Mental Hygiene, is leading this project on behalf of the Maryland Caregiver Support Coordinating Council. The Council is a legislatively mandated coordinating body comprising public agencies, private providers, family and consumer representatives and their advocates, and other caregiver supports across the State. The Council will study respite care and make recommendations to the Governor concerning service improvement.

A major component of the project includes the development of a new cost model for respite care. To accomplish this goal, the need for regional versus statewide infrastructure will be examined and regulations and changes needed to support the demonstration will be reviewed. In addition, the project will develop social marketing strategies to achieve a number of specific aims. These include (1) recruiting providers, (2) expanding outreach to families to improve family access to services and increase family member involvement in policy making processes, (3) promoting a better understanding of family burden, (4) reducing the stigma of disabilities, and (5) increasing organizational buy-in to the system change.

The project will include the broadest possible targeted population within the established parameters-children under 18 with disabilities who meet the SSI definition of disability and are Medicaid eligible. Site selection will be based on the availability of current respite program infrastructure in a given community and community readiness to undertake a demonstration project. Family members and key stakeholders will be involved in all aspects of the planning, research, and evaluation.

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Respite for Children

MICHIGAN

Grant Information


Name of Grantee
Division of Mental Health Services for Children and Families, Michigan Department of Community Health
Title of Grant
Michigan's Respite for Children Project
Type of Grant
Respite for Children
Amount of Grant
$99,399
Year Original Funding Received
2003

Contact Information


Sheri Falvay, Director
517-241-5762
FALVAY@michigan.gov

Lori Irish, Project Director
517-241-5761
IrishI@michigan.gov

Audrey Craft, Project Coordinator
Department of Community Health
Lewis Cass Building, 5th Floor
320 S. Walnut Street
Lansing, MI 48913
517-241-5763
Craft@michigan.gov

Subcontractor(s)

Michigan Public Health Institute

Target Population(s)


Families of children with developmental disabilities (DD) and/or serious emotional disturbance.

Goal


The goal of this study is to support the increase of Medicaid-funded respite for children as a (b)(3) service when it is medically necessary and identified through a person-centered planning process in an Individual Plan of Service (IPOS).

Activities


Abstract


The Partnership Panel on Respite (PPR) was established by the Division of Mental Health Services for Children and Families (MHSCF), Michigan Department of Community Health (MDCH), to identify barriers to family choice and control over respite services, develop a list of strategies to improve family choice and control, and select the strategies to be included in the feasibility study. The PPR includes family members, respite providers, advocates, and MHSCF staff.

The primary goal of this project is to support the increase of Medicaid-funded respite for children as a (b)(3) service when it is medically necessary and identified through a person-centered planning process in an IPOS. Planned products of this project are (1) a feasibility study of providing respite as a Medicaid-covered mental health service, (2) a detailed implementation plan to phase in respite as a Medicaid-covered mental health service, (3) a detailed implementation plan to phase in a standardized array of respite services at Community Mental Health Service Programs (CMHSPs), and (4) an evaluation plan.

The project has several well-defined outcomes. The Medicaid-managed specialty services 1915b/c Waiver will be amended to include respite as a (b)(3) mental health service. State policy will be amended to require CMHSPs to provide an array of respite services. The state data collection system will be modified so that the impact of these changes can be evaluated.

The PPR will include the State Medicaid Agency, three to four community mental health service programs, the Michigan Developmental Disabilities Council, the Michigan Mental Health Planning Council, Michigan Protection and Advocacy, and ARC-Michigan. The Panel will provide guidance and feedback to MDCH and to the Michigan Public Health Institute, Systems Reform Office, which will carry out the feasibility study under contract with MDCH.

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Respite for Children

OREGON

Grant Information


Name of Grantee
Oregon Department of Human Services, Seniors and People with Disabilities
Title of Grant
Oregon's Respite for Children Feasibility Project
Type of Grant
Respite for Children
Amount of Grant
$99,274
Year Original Funding Received
2003

Contact Information


Toni Larson, Coordinator
Children with Disabilities and Family Support
Office of Developmental Disability Services
Seniors and People with Disabilities
Oregon Department of Human Services
500 Summer Street NE E10
Salem, OR 97301-1098
503-945-6117
toni.larson@state.or.us

Subcontractor(s)

Jaime Johnston Daignault, Project Coordinator
Human Services Research Institute (HSRI)
7420 Bridgeport Road, #210
Portland, OR 97224
503-924-3783 (b)
503-924-3789 (f)
jjohnston@hsri.org

Target Population(s)


Children with developmental disabilities and their primary caregivers.

Goals


The goal of this study is to determine the feasibility of, and develop an implementation plan for, using Medicaid funding to expand and improve existing respite care services for children with developmental disabilities.

Activities


Abstract


The Oregon Department of Human Services, Seniors and People with Disabilities (SPD), will conduct a feasibility study and develop an implementation plan for using Medicaid funds to provide respite care for children with developmental disabilities. The Department will examine current state respite care services and delivery systems to (1) obtain and evaluate data related to needs and capacity requirements, (2) research the risks and potential for service expansion and improvement through Medicaid State Plan or waiver services, and (3) develop a plan to implement recommendations obtained through grant activities.

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Respite for Children

RHODE ISLAND

Grant Information


Name of Grantee
Rhode Island Department of Human Services
Title of Grant
Real Choice Systems Change Grants for Community Living: Respite for Children
Type of Grant
Respite for Children
Amount of Grant
$100,000
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Sharon Kernan, Project Coordinator
401-462-3392
SharonK@dhs.ri.gov

Deborah Florio, Project Director
Center for Child and Family Health
Department of Human Services
600 New London Avenue
Cranston, RI 02920
401-462-0410
dflorio@dhs.ri.gov

Subcontractor(s)

None at this time.

Target Population(s)


Children with special health care needs and their families.

Goal


The goal of this project is to assess the need for and the feasibility of providing cost-effective respite care services for children with special health care needs and their caregivers.

Activities


Abstract


The Rhode Island Department of Human Services (DHS) has led the State in developing a system of care for children with special health care needs (CSHCN) that is responsive to consumer needs. Until recently, DHS and the Department of Mental Health, Retardation and Hospitals (MHRH) jointly administered, but MHRH actively managed, a Home and Community-Based Services (HCBS) waiver to provide respite care and related services to persons with mental retardation and other developmental disabilities, including children. In addition, MHRH has provided respite care for approximately 300 children under a state-funded program. The Rhode Island General Assembly transferred responsibility for both programs to DHS effective July 1, 2003. DHS will now have an active role in ensuring the provisions of respite care for a designated population.

This study will begin with a thorough analysis of the programs DHS has inherited from MHRH to determine who receives respite care, under what circumstances, provided by whom, and at what cost. DHS will also review more than 1,000 cases that have been assessed by the Comprehensive Evaluation, Diagnosis, Assessment, Referral, and Reevaluation (CEDARR) Family Centers to quantify the need for respite care and to update estimates from earlier focus groups. DHS will work with the Leadership Roundtable families and the CEDARR Interdepartmental Team to consider the benefit design options in providing respite care, to whom, at what cost, and with what potential for offsetting other costs. Particular attention will be paid to the possible role(s) of the CEDARR Family Centers in respite care.

This project may also be used to help develop tools necessary for implementing a more expansive respite care benefit, pending state budget approval. Activities may include drafting certification standards for providers, developing a recruitment and training program for providers, designing an outreach program for consumers, developing a monitoring and evaluation plan, outlining state legislation and State Plan amendments and/or waivers, and preparing an implementation and phase-in strategy.

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Community Based Treatment Alternatives for Children

ILLINOIS

Grant Information


Name of Grantee
Illinois Department of Human Service
Title of Grant
Illinois' Feasibility Study and Development Project for Community Based Treatment Alternatives for Children
Type of Grant
Community Based Treatment Alternatives for Children
Amount of Grant
$100,000
Year Original Funding Received
2003

Contact Information


Amy Starin, Principal Investigator
4200 N. Oak Park Avenue, Annex
Chicago, IL 60634
773-794-4850
dhsmha1@dhs.state.il.us

Subcontractor(s)

None at this time.

Target Population(s)


Children and adolescents with serious emotional disturbance who have been awarded Individual Care Grants (ICGs) and their families.

Goals


The State of Illinois, Department of Human Services, Division of Mental Health provides residential treatment services to children and adolescents with serious emotional disturbance (SED) through the ICG program. The goal of this study is to determine the feasibility of developing a Medicaid waiver to provide community services as a viable alternative to residential treatment under the State's ICG program.

Activities


Abstract


The goal of the Illinois Department of Human Services, Division of Mental Health feasibility study is to form a coalition to (1) address barriers to receiving respite services, (2) to develop an appropriate package of services to adequately support SED children and adolescents in their homes, and (3) avert residential treatment care (RTC). The coalition will comprise parent consumers, private, community-based mental health providers, the Illinois Federation of Families, and representatives of the state mental health authority. RTC would remain an option; however, families would have a choice regarding the location of their child's treatment.

The ICG Parent's Group will be a key partner, assisting with the development, implementation, and evaluation of this study. A parent will also serve as the co-principal investigator.

The data gathering and analysis involved in this study will be obtained through a contract with a health care consultant. The consultant will conduct focus groups and telephone interviews with ICG parents, community mental health agency providers, and ICG teen recipients. The consultant will also analyze the information and assess the financial feasibility of providing recommended services. The possibility of using a Medicaid waiver to provide these services will also be assessed.

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Community Based Treatment Alternatives for Children

MARYLAND

Grant Information


Name of Grantee
Mental Hygiene Administration, Maryland Department of Health and Mental Hygiene
Title of Grant
Maryland's Community Based Treatment Alternatives for Children
Type of Grant
Community Based Treatment Alternatives for Children
Amount of Grant
$100,000
Year Original Funding Received
2003

Contact Information


Albert Zachik, M.D.
Director of Child and Adolescent Services
55 Wade Avenue
Mitchell Building
Catonsville, MD 21228
410-402-8487
azachik@dhmh.state.md.us

Subcontractor(s)

University of Maryland School of Medicine, Center for Mental Health Services Research

Target Population(s)


Youth who meet the level-of-care requirements for admission to a psychiatric residential treatment facility (PRTF).

Goals


Activities


Abstract


The Mental Hygiene Administration, a unit of the Department of Health and Mental Hygiene, will conduct the study to fulfill a major recommendation of the Governor's Council on Custody Relinquishment. The Council was created to study alternatives to the forced or voluntary relinquishment of parental custody to gain access to health services. This problem has subsequently been identified in a General Accounting Office (GAO) report and acknowledged as a problem of major scope by the President's New Freedom Commission on Mental Health.

Maryland has played a major role in articulating the need for a program like Community Based Treatment Alternatives for Children (C-TAC) which will allow demonstrations of home and community services that provide a level of care comparable to a PRTF. The principal goals of the project include (1) completing a feasibility study, (2) developing an implementation plan for the demonstration, and (3) developing an evaluation plan.

A major focus of this project is on family involvement in all aspects of the planning, research, and evaluation development. The demonstration model will be based on the experience of "Wraparound Milwaukee" and other similar demonstration projects, and two Center for Mental Health Services Children's Imitative grants that have been implemented in Maryland.

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Community Based Treatment Alternatives for Children

MASSACHUSETTS

Grant Information


Name of Grantee
Executive Office of Health and Human Services
Title of Grant
Building and Financing Sustainable Systems of Care: A Feasibility Study and Development Grant for Community Based Alternatives for Children with SED in Massachusetts
Type of Grant
Community Based Treatment Alternatives for Children
Amount of Grant
$100,000
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Annette Shea
Director of Disability Policy and Home and Community Based Waiver Oversight
Executive Office of Health & Human Services
Office of Medicaid
One Ashburton Place, 11th Floor
Boston, MA 02108
617-573-1751
Annette.Shea@state.ma.us

Subcontractor(s)

University of Massachusetts Medical School, Center for Health Policy & Research

Target Population(s)


Children with serious emotional disturbance (SED) in out-of-home placement or imminently at risk for such placement.

Goals


Activities


Abstract


The project will evaluate the financial feasibility of expanding community treatment alternatives for children with SED. State staff will define the population of children currently served in out-of-home placement by systematically evaluating state agency expenditures for children with SED. In particular, the project will evaluate (1) the inpatient and residential services provided by other state agencies, and (2) state and local special education expenditures for children in residential placements pursuant to a behavior diagnosis on their Individualized Education Plan (IEP). A clinical analysis of children in out-of-home placements to determine the "universe" of children that could be safely served in a community setting will also be conducted.

The project will also evaluate the services currently provided and reimbursable as State Plan services under existing Medicaid guidelines and those community services that are "state only" funded. In addition, the project team will evaluate regulations or other limitations that apply to the population to determine the legal feasibility of applying for a 1915(c) waiver to serve children with SED. Other efforts to redeploy state funding or to use grant resources to expand community treatment alternatives for children with SED will be explored.

Finally, the Commonwealth will convene an interagency public-private group to evaluate community program models to determine the programmatic and financial structures that will provide the most effective and replicable community treatment alternatives for children with SED. This group will involve providers from all settings, families, medical and psychiatric professionals, and individuals from the special education system.

An interagency policy group, composed of senior staff from the relevant state agencies, will also meet regularly to ensure that the project coordinates with other efforts to address the needs of children with SED. Families and providers will be involved through specific work groups and focus groups and frequent reporting to the Mental Health Commission for Children.

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Community Based Treatment Alternatives for Children

MISSISSIPPI

Grant Information


Name of Grantee
Division of Medicaid
Title of Grant
Mississippi's Community Based Treatment Alternatives for Children Project
Type of Grant
Community Based Treatment Alternatives for Children
Amount of Grant
$99,000
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Kristi Plotner, Project Director
601-359-6698
lmkrp@medicaid.state.ms.us

Mike Gallarno, Bureau Director
239 N. Lamar Street, Suite 801
Jackson, MS 39201
601-359-6697
lmrmg@medicaid.state.ms.us

Subcontractor(s)

MS Families as Allies for Children's Mental Health
Vanderbilt University

Target Population(s)


Children with serious emotional disturbance (SED).

Goal


The goal of this project is to examine the feasibility of developing a waiver program that will provide home and community services for children with SED who have a history of placement at psychiatric residential treatment facilities (PRTFs) or who are at immediate risk for being placed in a PRTF.

Activities


Abstract


Over the past 5 years, many factors have occurred in Mississippi that have readied the State for a concerted effort to promote community treatment alternatives in a creative manner. A coordinated system of community-based treatment serves the majority of SED children in Mississippi. However, a small percentage of children, estimated from 1 to 3 percent, still are not served. For these children, the State plans to pursue flexible treatment options that will allow them to have access to a continuum of care to meet their specific needs.

This feasibility study will allow the Division to determine the potential costs and cost savings associated with a waiver program for this population. Families of children with high-intensity needs will be included so that their needs will be taken into account and addressed in the development of services. The Division of Medicaid will also develop an implementation plan for a potential waiver program and an evaluation plan that will determine if the goals of the program are being accomplished.

The ultimate goal of this project is to assess community based alternatives to residential treatment or institutionalization, which will position the State to make a successful application for a 5-year PRTF demonstration grant outlined in the Deficit Reduction Act to operate an HCBS waiver for children with SED.

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Community Based Treatment Alternatives for Children

MISSOURI

Grant Information


Name of Grantee
Department of Mental Health
Title of Grant
A Feasibility Study and Development Grant for Community Based Alternatives for Children with Serious Emotional Disturbance
Type of Grant
Community Based Treatment Alternatives for Children
Amount of Grant
$99,821
Year Original Funding Received
2003

Contact Information


Linda Roebuck, Executive Director
573-751-4970
linda.roebuck@dmh.mo.gov

Pamela Leyhe, Project Coordinator
Department of Mental Health
PO Box 687
Jefferson City, MO 65101
573-751-8118
pamela.leyhe@dmh.mo.gov

Subcontractor(s)

Alicia Smith and Associates

Target Population(s)


Families of children with serious emotional disturbance (SED).

Goal


The goal of the project is to conduct a feasibility study that will assist the State in the design and implementation of a comprehensive system of community services and supports for children with SED who would otherwise require care in a psychiatric residential facility.

Activities


Abstract


The activities under this feasibility study will assist the State's efforts to design and implement a comprehensive system of community services and supports for children with SED who would otherwise require care in a psychiatric residential facility. The State's goal is to expand services that will enable a child to stay in the home and organize those services in a comprehensive system that will provide a single point of entry regardless of how the child first contacts the system, provide a continuum of effective services, and blend disparate funding streams to support the system. The State hopes the revised system will result in

Note: This Compendium form was not reviewed by the Grantee prior to publication.

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Community Based Treatment Alternatives for Children

TEXAS

Grant Information


Name of Grantee
Texas Health and Human Services Commission
Title of Grant
Feasibility Study and Development Grant for Community Based Treatment Alternatives for Children
Type of Grant
Community Based Treatment Alternatives for Children
Amount of Grant
$93,600
Year Original Funding Received
2003

Contact Information


Caryl Chambliss, Project Contact
Braker Center
11209 Metric, Building H
Austin, TX 78758
512-491-1305
caryl.chambliss@hhsc.state.tx.us

Subcontractor(s)

CommunityTIES of America, Inc.

Target Population(s)


Children with serious emotional disturbances (SED).

Goals


The goal of this project is to identify alternatives to out-of-home placement that allow children to live in the most integrated community setting, to give families choices about treatment options, and to expand the quality array of intensive treatments and supports.

Activities


Abstract


Texas is under-serving children with SED, and those being served are not always in the most appropriate setting. The majority of the State's community mental health services are limited in type, amount, scope, and duration. Texas has little capacity for community services such as intensive in-home services and treatment, and foster care, which have been demonstrated to effectively manage and treat children with SED in home and community settings. Consequently, many children are placed away from their families and communities at higher costs than if appropriate treatment in the community had been available. In a time of limited resources, Texas needs to develop a strategy to redirect the use of institutional funds to home and community services. This project will study the feasibility of and the most appropriate plan for providing more effective home and community services to children with SED, whether via a waiver, demonstration project, or through a state-only approach. The study will assess which of the options best enhance existing efforts and will develop a detailed financing, implementation, and evaluation plan for each recommended option.

The ultimate goal of this feasibility study is to identify treatment mechanisms that allow children to live in the most integrated community setting, that give families choices about treatment options, and that expand the array of quality, intensive treatments, and supports. The study will produce feasible solutions for using a waiver or demonstration to integrate funding, coordinate services, and develop a comprehensive provider base to (1) increase the number of Texas children with SED who are provided quality treatment in their homes and communities and (2) decrease the number of Texas children placed in institutional settings.

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Quality Assurance and Quality Improvement in Home and Community Based Services

CALIFORNIA

Grant Information


Name of Grantee
State of California
Title of Grant
Bay Area Quality Enhancement Initiative
Type of Grant
Quality Assurance and Quality Improvement in Home and Community Based Services
Amount of Grant
$499,844
Year Original Funding Received
2003

Contact Information


Margaret Anderson
Department of Developmental Services
1600 Ninth Street, Room 340, MS 3-23
Sacramento, CA 95814
916-654-3681
manders6@dds.ca.gov

Subcontractor(s)

Eric Zigman, Project Director
San Andreas Regional Center
300 Orchard City Drive, Suite 170
Campbell, CA 95008
408-341-3497
ezigman@sarc.org

Consultants to be hired.

Target Population(s)


Individuals with developmental disabilities.

Goals


Activities


Abstract


The California Department of Developmental Disabilities Services (DDS) has various initiatives and efforts underway to address systemic weaknesses identified through a self-assessment that compared the current Quality Assurance and Quality Improvement (QA/QI) system within the context of the HCBS Quality Framework. Through this project, DDS will target specific problem areas in two critical dimensions of home and community-based service delivery: provider capacity and capabilities and participant outcomes and satisfaction. DDS will use the San Francisco Bay Area as a pilot area to test new models, methods, and processes and apply the lessons learned to make statewide reforms to the QA/QI system.

The Bay Area Quality Management System will be a collaborating consortium involving representatives of three regional centers, a developmental center, consumers and family members, service providers, advocacy organizations, and others. The model for the system will be designed using a quality management approach. Specific implementation plans will be developed to provide a blueprint of the necessary steps and resources needed to successfully launch system operations. Focus areas of the implementation plans include (1) a process in which performance expectations are specified and tied to the provider's ability to become certified to offer services and supports; (2) a system for providing training and technical assistance to providers to achieve higher levels of quality in their services and supports and meet their performance expectations; (3) a process for expanding the available network of generic resources and service providers; (4) activities to support consumers' and family members' involvement in decision-making, including a Quality Review Commission comprising stakeholders; and (5) identification of the resources and supports needed to support the operations of the Bay Area Quality Management System.

DDS will also institute new methods for assessing consumers' and family members' satisfaction with their services and supports to provide all levels of decision-makers with needed information to assess overall performance. Through this project, DDS will define an improved assessment process, including the assessment tool and sample selection methods. DDS will then partner with an organization or entity to conduct the actual assessment of consumer satisfaction.

Evaluation activities will be incorporated throughout the project so that midcourse corrections may be made, as well as decisions concerning application to other regions. At strategic points throughout the project, decision-makers will consider the readiness to make system improvements on a statewide basis.

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Quality Assurance and Quality Improvement in Home and Community Based Services

COLORADO

Grant Information


Name of Grantee
Colorado Department of Human Services, Division for Developmental Disabilities
Title of Grant
Quality Assurance and Quality Improvement in Home and Community Based Services for Colorado's Citizens with Developmental Disabilities
Type of Grant
Quality Assurance and Quality Improvement in Home and Community Based Services
Amount of Grant
$499,851
Year Original Funding Received
2003

Contact Information


Matthew Solano, Project Director
Director of Program Quality
Division for Developmental Disabilities
Colorado Department of Human Services
3824 West Princeton Circle
Denver, CO 80236
303-866-7439
matthew.solano@state.co.us

Subcontractor(s)

None.

Target Population(s)


Colorado waiver participants with developmental disabilities.

Goals


Activities


Abstract


Colorado has a complex, decentralized developmental disabilities system that emphasizes small group living arrangements, promotion of individual and family choice of services/supports and providers, and a large number of providers. Colorado's incident management system is multitiered, with both county-based Community Centered Boards (CCBs) and service agencies having line responsibility for preventing, identifying, and following up on critical incidents. Colorado's baseline quality assurance standards and processes are fundamentally sound, but the challenge facing Colorado is to position QA/QI for HCBS to make smart use of IT to support quality management and improvement. The Division for Developmental Disabilities (DDD) does not currently have an efficient or effective system to capture information about critical incidents in real or near-real time, or to support trend and root cause analysis of such incidents. The lack of solid IT capabilities undermines the capacity to conduct performance appraisals, engage in effective quality improvement, and furnish important information to participants and families to aid them in selecting providers.

This project will provide the IT capabilities that DDD needs to efficiently and effectively identify trends and conduct root cause analysis regarding critical incidents. Further, this project will establish a statewide Project Advisory Committee to review critical incident data and will institute a review process to ensure that DDD and the CCBs demonstrate competence and diligence in responding to critical incident data. These efforts will enhance the efficiency and effectiveness of discovery, remediation, and systems improvement. The project will also provide a needed degree of standardization in information collection, without requiring administratively burdensome and costly changes to the systems that are already in place. DDD will seek only a subset of information, most of which is likely being collected already, and will provide an easily-accessible, automated data capture system to receive it.

The project also seeks to enhance the role and effectiveness of self-advocates as key guarantors of quality services. DDD has acknowledged the importance of self-advocacy in ensuring the quality of waiver services in Colorado and through this project will provide subgrants to local self-advocacy and family advocacy groups to support the development of new self-advocacy organizations or to expand the efforts of existing organizations (e.g., Speaking for Ourselves, Association for Persons in Supported Employment, etc.). This project will also reimburse travel expenses for self-advocates to attend and participate in DDD's Self-Advocate Advisory Council, which provides direct input to the DDD Director on statewide policy issues.

This project will position Colorado for sustained improvement in its QA/QI activities. The new systems and improvements to existing systems that the project will introduce are highly efficient and based on inexpensive, proven IT. Finally, the project will build the support of stakeholders for the information collection system through their involvement in the Project Advisory Committee and their continued involvement in an ongoing, statewide Quality Improvement Council.

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Quality Assurance and Quality Improvement in Home and Community Based Services

CONNECTICUT

Grant Information


Name of Grantee
Connecticut Department of Mental Retardation
Title of Grant
Connecticut Quality Review and Improvement
Type of Grant
Quality Assurance and Quality Improvement in Home and Community Based Services
Amount of Grant
$499,000
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Beth McArthur, Project Co-Director
860-418-6132
beth.mcarthur@po.state.ct.us

Laura Nuss, Project Co-Director
460 Capitol Avenue
Hartford, CT 06016
860-418-6130
laura.nuss@po.state.ct.us

Subcontractor(s)

Cynthia Gruman, Ph.D., Assistant Professor of Medicine
University of Connecticut Health Center
Center on Aging
263 Farmington Avenue
Farmington, CT 06030
860-679-7960
gruman@uchc.edu

CGI-AMS
Greater Boston Area
600 Federal Street
Andover, MA 01810
978-946-3647
www.cgi-ams.com

Target Population(s)


All people served by the Connecticut Department of Mental Retardation (DMR).

Goals


Activities


Abstract


The Connecticut DMR is using Real Choice Grant funding to strengthen its quality review system by developing data applications to provide more timely, accurate, integrated, and comprehensive information that will identify trends and provide a foundation for improvement initiatives. The grant project also includes activities to involve consumers and family members in the design, implementation, and evaluation of DMR's new quality review and improvement system. As part of this effort, DMR will establish state-level review teams and regional and statewide quality improvement councils with consumer and family membership. Self-advocates will also be involved in a Leadership Institute, which will train them to assume influential roles in the quality system. The planned outcomes of this grant include

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Quality Assurance and Quality Improvement in Home and Community Based Services

DELAWARE

Grant Information


Name of Grantee
Division of Developmental Disabilities Services (DDDS)
Title of Grant
Consumer Centered Quality Assurance and Quality Improvement in Home and Community Based Services Protocol
Type of Grant
Quality Assurance and Quality Improvement in Home and Community Based Services
Amount of Grant
$351,702
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Scott D. Phillips, Director
Office of Quality Management
Division of Developmental Disabilities Services
26351 Patriots Way
Georgetown, DE 19947
302-933-3405
Scott.Phillips@state.de.us

Subcontractor(s)

June Rowe
Human Services Research Institute
Cambridge, MA
617-876-0426

John Ashbaugh
Danic Technology Inc.
Needham, MA
781-400-1110

Target Population(s)


Consumers with developmental disabilities.

Goals


Activities


Abstract


Founded on DDDS participation in the National Core Indicators project and in the Re-inventing Quality Conferences, a multiyear plan for developing a consumer-centered QA/QI system for home and community services was developed, serving as the basis for the Systems Change grant application. A Consumer/Stakeholder Task Force was formed at the grant's inception to direct the project. The CMS HCBS Quality Framework and waiver assurances will constitute the grounds for instituting changes to the Division's QA/QI system.

The project has three phases: (1) to assess quality management functions in the current QA/QI HCBS residential program, (2) to develop a QA/QI HCBS strategic plan around the HCBS Quality Framework focus areas and desired outcomes, and (3) to implement the new QA/QI HCBS system. The activities of this project will lead to a fundamental alteration in the Division's QA/QI HCBS system, which will be person centered around the seven focus areas and related desired outcomes of the HCBS Quality Framework.

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Quality Assurance and Quality Improvement in Home and Community Based Services

GEORGIA

Grant Information


Name of Grantee
Georgia Department of Human Resources
Title of Grant
Georgia Quality Assurance and Quality Improvement in Home and Community Based Services
Type of Grant
Quality Assurance and Quality Improvement in Home and Community Based Services
Amount of Grant
$475,000
Year Original Funding Received
2003
Expected Completion Date
2007

Contact Information


Stephen Hall, Ph.D., Director of Office of Developmental Disabilities
Department of Human Resources
2 Peachtree Street, NW, 22-108
404-463-8037
srhall1@dhr.state.ga.us

Stacey Ramirez, Project Coordinator
Office of Developmental Disabilities
2 Peachtree Street, NW, 22-415
Atlanta, GA 30303-3142
404-651-6405
saramirez@dhr.state.ga.us

Subcontractor(s)

Connie Lyle O'Brien
770-987-9785
connielyleobrien@mac.com

Human Services Research Institute
617-876-0426 ext. 2319
vbradley@hsri.org

Kathleen Murphy
678-558-4847
kmurphymsw@hotmail.com

Gloria Chamblee
770-775-7263
gchamblee@bellsouth.net

Institute on Human Development and Disabilities
706-542-4827
zo@ihdd.uga.edu

Target Population(s)


Persons with mental retardation and other developmental disabilities (MR/DD) and their circle of support, support coordinators, and providers.

Goals


Activities


Abstract


The Department of Human Resources (DHR) is the primary human service agency of Georgia, and the Division of Mental Health, Developmental Disabilities and Addictive Diseases (DMHDDAD) is a division of DHR. Two separate Home and Community-Based Services (HCBS) waiver programs based in DMHDDAD currently serve persons with MR/DD. DMHDDAD is planning to engage in a redesign process for these waivers to encourage services that are person-directed, person-centered, and afford greater flexibility to individuals served and providers.

Although Georgia is raising awareness of self-determination and self-directed services, a gap between knowledge and practice of these principles exists. Many providers have received person-centered training, but lack the skills to develop and implement a person-centered plan. This project will enable professionals to utilize their skills in implementing these principles.

Georgia currently maintains four databases, which collect, store, and track various issues that impact people with developmental disabilities and their services. These systems, however, function independently and do not share information, making data entry and review cumbersome and repetitious. The project will be instrumental in linking these systems to facilitate access to information.

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Quality Assurance and Quality Improvement in Home and Community Based Services

INDIANA

Grant Information


Name of Grantee
Indiana Family and Social Services Administration/Division of Disability, Aging and Rehabilitative Services
Title of Grant
The Indiana Quality Assurance/Quality Improvement System for Home and Community Based Services
Type of Grant
Quality Assurance and Quality Improvement in Home and Community Based Services
Amount of Grant
$500,000
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Jennifer L. Hatchett, Director of Operations
Bureau of Quality Improvement Services
317-234-1147
Jennifer.Hatchett@fssa.in.gov

Barbara Bates, Project Director
Indiana Family and Social Services Administration
402 W. Washington Street
PO Box 7083
Indianapolis, IN 46207-7083
317-234-0462
bbates@fssa.state.in.us

Subcontractor(s)

None.

Target Population(s)


Individuals receiving services funded by the Aged and Disabled waiver, the Traumatic Brain Injury waiver, and the Assisted Living waiver administered by the Division of Aging.

Goals


Activities


Abstract


The Indiana Division of Disability and Rehabilitative Services, (DDRS) and the Division of Aging (DA) support a statewide in-home services program. A recently passed statute laid the framework for shifting the State's long-term care spending from predominately nursing homes to a greater reliance on home and community services. In January 2000, the Bureau of Quality Improvement Services (BQIS) was established to develop and implement QA/QI systems for all programs within the Divisions.

This grant will (1) develop mechanisms to obtain participant input into the development of QA/QI systems and ongoing feedback about services; (2) create consistent standards by which all providers must abide; (3) institute uniform policies and procedures across the various state agencies and contractors who provide services; and (4) develop information technology systems that will improve data collection and the ability to review trend information, make recommendations, implement processes to be put into place, and reevaluate the effectiveness of the systems. Overall, the project will develop a QA/QI system that facilitates communication and provides effective protection and support for participants.

Consumers are represented on the Consumer/Community Advisory Council and its subcommittees, through the participation of the Indiana Home Care Task Force and the recruitment of individual consumers. Provider industry groups are also involved, as are numerous state agencies.

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Quality Assurance and Quality Improvement in Home and Community Based Services

MAINE

Grant Information


Name of Grantee
Maine Department of Health and Human Services
Title of Grant
Maine's Quality Assurance and Quality Improvement Project
Type of Grant
Quality Assurance and Quality Improvement in Home and Community Based Services
Amount of Grant
$500,000
Year Original Funding Received
2003

Contact Information


Chris Zukas-Lessard, Principle Investigator
State House Station #1
Kennebec County
Augusta, ME 04333-0011
207-287-2093
chris.zukas-lessard@maine.gov

Subcontractor(s)

Julie Fralich, Project Director
Edmund S. Muskie School of Public Service
University of Southern Maine
207-780-4848
julief@usm.maine.edu

Other contracts yet to be awarded.

Target Population(s)


Adults with disabilities, including older adults, adults with physical disabilities, adults with mental retardation (MR), and adults with physical disabilities who direct their own services.

Goals


Activities


Abstract


Under the Maine Department of Health and Human Services, as lead agency and applicant, the state offices will collaborate on this grant to design a cohesive and coordinated quality management system for home and community services for adults with disabilities, including older adults, adults with physical disabilities, adults with mental retardation, and adults with physical disabilities who direct their own services.

This grant provides the opportunity to build on the recommendations of Maine's Plan Development Work Group for Community-Based Living to (1) put in place a quality management system that is "consumer-driven, comprehensive, integrated, and value-based" and (2) create an environment and infrastructure to support sustainable interdepartmental collaboration.1 The Work Group for Community-Based Living is Maine's Olmstead planning group comprising consumers and state officials.

The project will move efforts to improve quality by developing and implementing computer-based monitoring and reporting systems to ensure the health and welfare of individuals who participate in HCBS waiver and related programs.


1 Maine's Plan Development Work Group for Community-Based Living, Communities, Individuals and Choices: A Roadmap for Meeting Individualized Needs in Integrated Settings and Programs, Draft, 10/2/02.

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Quality Assurance and Quality Improvement in Home and Community Based Services

MINNESOTA

Grant Information


Name of Grantee
Minnesota Department of Human Services Continuing Care Administration
Title of Grant
Minnesota's Quality Assurance and Quality Improvement Project
Type of Grant
Quality Assurance and Quality Improvement in Home and Community Based Services
Amount of Grant
$499,880
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Jolene Kohn, Project Director
Strategic Planner
Department of Human Services
540 Cedar Street
St. Paul, MN 55155
651-431-2579
jolene.kohn@state.mn.us

Subcontractor(s)

Four to be awarded.

Target Population(s)


Home and Community-Based Services (HCBS) waiver participants.

Goals


Activities


Abstract


This project will improve the design of participant safeguards and the functions of discovery and remediation related to these safeguards. It will also enhance the capacity of the HCBS waiver system by improving the measurement of satisfaction and achievement of personal outcomes for participants. This measurement data will be integrated with other division and agency data into a comprehensive statewide QA/QI "data mart."

The Quality Design Commission is a consumer group created to establish valued outcomes and recommend systems improvement strategies. By gaining substantial consumer and stakeholder input through the Quality Design Commission, Minnesota will improve its ability to systematically review the efficacy of safeguards and the extent to which waiver services support individual quality of life.

The Minnesota Department of Human Services (DHS) is the lead agency for this grant. The Department's Continuing Care Administration will be responsible for overseeing all aspects of project planning, implementation, and evaluation and will partner with the DHS Disabilities Services and Information Technology Strategies divisions, Quality Design Commission, Minnesota Board on Aging, Minnesota Department of Health Office of Health Facility Complaints, and eight county-based Adult Protection divisions, to achieve the following outcomes: (1) improved response time between discovery and remediation, (2) better identification of "poor" providers, (3) discernment of patterns or trends in complaints and investigations and targeted technical assistance, (4) consistent data to inform program decisions that ensure higher quality, and (5) use of consumer-defined measures of quality in both service delivery and service outcomes.

Formative evaluation methods will be designed and used to ensure the quality of program management, and will track the ongoing effectiveness of project development and implementation. Summative evaluation methods will be designed to document impact on consumers and evaluate the entire project at the end of the grant period. Data for this evaluation will be derived from monthly and quarterly project reports, financial records, participant surveys, anecdotal information, and oral interviews with project partners.

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Quality Assurance and Quality Improvement in Home and Community Based Services

MISSOURI

Grant Information


Name of Grantee
Department of Health and Senior Services
Title of Grant
Missouri's Quality Assurance and Quality Improvement Project
Type of Grant
Quality Assurance and Quality Improvement in Home and Community Based Services
Amount of Grant
$500,000
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Vicki Keller, Project Director
Bureau Chief
Department of Health and Senior Services
Division of Senior and Disability Services
3418 Knipp Drive
PO Box 570
Jefferson, MO 65102
573-526-8601
vicki.keller@dhss.mo.gov

Subcontractor(s)

Rose International, through request for proposal (RFP) process

Health and Behavioral Risk Research Center at the University of Missouri, Columbia, under contract to conduct consumer surveys

Target Population(s)


Participants in the Department of Health and Senior Services Home and Community-Based Services (HCBS) waiver programs.

Goals


Activities


Abstract


The Department of Health and Senior Services will be the lead agency for the development and administration of this grant, in partnership with the Departments of Mental Health, Elementary and Secondary Education, and Social Services.

The overall objective of this project is to ensure the health and safety of persons who receive home and community services and those persons considering long-term care options for remaining in or returning to the community.

Grant funds will be used to support the interagency collaboration needed to develop a comprehensive, statewide system for tracking issues related to the HCBS waiver in community settings. Many state agencies have begun developing such systems or are in the initial stages of implementation of various quality assurance mechanisms. The ultimate goal of this project is to develop a consistent method of gathering quality assurance data for all HCBS waiver programs and to use the data to identify and address problem areas. The system will also provide the basis for improved reporting capabilities to the state Medicaid agency.

The Department will use the Participant Experience Survey for elderly and disabled individuals to assess the needs and concerns of in-home service participants. This tool will be offered to all state agencies and administrative agents for use in obtaining data that can be put into their systems, thus expediting complaints to ensure that client health and welfare are protected. The survey will be conducted in 2006 and 2007. The yearly results will be made public in a variety of stakeholder meetings and will be posted to the Department's Web site.

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Quality Assurance and Quality Improvement in Home and Community Based Services

NEW YORK

Grant Information


Name of Grantee
New York State Department of Health, Office of Medicaid Management
Title of Grant
New York's Quality Assurance and Quality Improvement Project
Type of Grant
Quality Assurance and Quality Improvement in Home and Community Based Services
Amount of Grant
$495,811
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Cynthia Schaffhausen, Acting Director
Division of Consumer & Local District Relations
518-474-5271
cxs05@health.state.ny.us

Charlotte Mason, Project Coordinator
Division of Consumer & Local District Relations
One Commerce Plaza, Room 826
Albany, NY 12260
518-474-5271
cmm24@health.state.ny.us

Subcontractor(s)

To be determined by an RFA process in first year of the grant.

Target Population(s)


Participants in the State's Traumatic Brain Injury (TBI) waiver program and in the Long-Term Home Health Care Program (LTHHCP), which provides services at home to elderly persons and individuals of all ages with disabilities.

Goals


Activities


Abstract


This project will ensure participants' health and safety and will create enduring systems change in the waiver programs' QA/QI processes. The systems developed from this project will include the functions of discovery, remediation, and continuous improvement of the quality of services provided to waiver participants in the target populations.

The project will establish a QA/QI Board to address a number of quality issues related to the TBI waiver, including evaluating the current QA/QI program and making recommendations for changes. Information will be gathered in statewide forums, which will include participants, family members, providers, and other interested parties. Depending on the results of this Board's work, the project will also create a QA/QI Board for the LTHHCP.

This grant will allow the State to contract with an entity to administer the Participant Experience Survey to LTHHCP participants. The results of this survey will be analyzed, providing an independent source of information about participant satisfaction. The information collected will allow the Department to accomplish two goals: (1) to share the results of the survey with local districts, providers, and participants so that they will learn from best practices or jointly take action to correct specific issues that have been identified; and (2) to pursue systemwide changes that affect the total waiver population.

Finally, the project will develop a QA/QI database for use initially with the TBI waiver and, ultimately, with the LTHHCP. This database will capture data on participant demographics, provider information, participant satisfaction, and incidents reported. This information will be used to generate reports showing where quality improvement is needed, and identifying best practices to be used as models.

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Quality Assurance and Quality Improvement in Home and Community Based Services

NORTH CAROLINA

Grant Information


Name of Grantee
North Carolina Department of Health and Human Services
Title of Grant
From Institutions to Communities: Quality Management for North Carolina's Transitioning Populations
Type of Grant
Quality Assurance and Quality Improvement in Home and Community Based Services
Amount of Grant
$475,100
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Steven E. Hairston
919-733-7011
steven.hairston@ncmail.net

Shealy Thompson, Project Director
3003 Mail Service Center
Division of MH/DD/SA Services
Raleigh, NC 27699-3003
919-733-0696
shealy.thompson@ncmail.net

Subcontractor(s)

University of North Carolina at Chapel Hill-Center for Development and Learning

Target Population(s)


Individuals in psychiatric institutions, intermediate care facilities for people with mental retardation (ICF/MR), and child residential treatment facilities who are transitioning to community settings (i.e., "transitioning populations").

Goals


Activities


Abstract


This Quality Assurance/Quality Improvement project will create a model system to monitor and improve the quality of initiatives to help people transition to community settings ("transitioning populations") from psychiatric institutions, ICF/MR, and child residential treatment facilities. The project will also devise a plan to test this system and then expand it to all state users of long-term care.

The project will build on three current initiatives in the NC Division of Mental Health, Developmental Disabilities and Substance Abuse Services (DMHDDSAS):

  1. The State MHDDSAS Plan to reform the service system into one that has consumer-driven, outcomes-oriented services provided in the most integrated community settings possible; consumer and family involvement in design and implementation of the system; measurable standards of safety, quality, and clinical effectiveness; and a total quality management philosophy;
  2. The DHHS Olmstead Plan for transitioning individuals to communities from state psychiatric institutions, state- and community-based ICF/MR, and nursing homes; and
  3. The DMHDDSAS Child Mental Health Plan, which includes transitioning children out of child residential treatment facilities and psychiatric hospitals to home and community settings.

A Quality Management Plan for the state mental health/developmental disability, and substance abuse service system will be developed by a team of DMHDDSAS staff, other state staff, consumers, family members, and local stakeholders. A demonstration project, focused on the transitioning populations, will be developed and implemented. For the demonstration, consumers and family members will be hired and trained to interview transitioning individuals about their satisfaction with the quality of their care, the transitioning process, and progress toward their personal goals. The data derived will be used to rectify problems in individual situations and improve the transition process and delivery of services and supports. Data will also be used to inform development of an ongoing quality management plan.

In preparation for the demonstration project, current outcome and satisfaction measures, tools, and methodologies will be reviewed to determine their fit with the goals of the quality management system. A Web-based data system that is currently being developed for collection and management of data on people transitioning out of psychiatric institutions will be enhanced to accommodate data about additional transitioning populations.

Finally, the project will develop a plan for expanding the model into a full Quality Management System for the North Carolina long-term care system.

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Quality Assurance and Quality Improvement in Home and Community Based Services

OHIO

Grant Information


Name of Grantee
Ohio Department of Mental Retardation and Developmental Disabilities
Title of Grant
Ohio's Quality Assurance and Quality Improvement Project
Type of Grant
Quality Assurance and Quality Improvement in Home and Community Based Services
Amount of Grant
$499,740
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Donald E. Bashaw, Project Director
614-728-2524
don.bashaw@dmr.state.oh.us

Leslie Minnich, Project Manager
Ohio DMRDD
35 E. Chestnut Street, 5th Floor
Columbus, OH 43215-2541
614-728-2518
leslieminnich@dmr.state.oh.us

Subcontractor(s)

None.

Target Population(s)


Individuals with mental retardation and other developmental disabilities.

Goals


Activities


Abstract


The Ohio Department of Mental Retardation and Developmental Disabilities (ODMR/DD) is the repository of a considerable amount of data and information from Ohio's diverse county-based service delivery system. The Department collects extensive demographic information about individuals served as reported by each of 88 local county boards of mental retardation and developmental disabilities (hereafter, county board). More specifically, through "monitoring and compliance" reviews conducted by various offices of the Department, a considerable amount of data and information is amassed specific to local agencies' management and delivery of services and supports to individuals. Each of these review protocols is exhaustive in their evaluation of county boards' and private providers' compliance with federal and state law and regulation.

This project will design and implement a quality information management system in which data generated by the service system is used to develop an integrated knowledge profile. This profile will identify areas of improved effectiveness and efficiency in the management and delivery of services and supports to individuals with disabilities.

The State contends that enhanced use of information already collected by the service delivery system can be used to increase the efficiency and improve the effectiveness of the supports available to individuals with mental retardation and developmental disabilities. Successful execution of this project will yield (1) improved availability of useful information for individuals and families; (2) a comprehensive, statewide quality framework that outlines anticipated outcome measures for the service system; (3) data to determine training initiatives, technical assistance methodologies, public policy, effectiveness and efficiency measures, improved state and local resource deployment, and statistically-based trends and analyses; and (4) a system for reporting information/discoveries to local service providers, families, and individuals who use services and supports.

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Quality Assurance and Quality Improvement in Home and Community Based Services

OREGON

Grant Information


Name of Grantee
Oregon Department of Human Services, Seniors and People with Disabilities (SPD)
Title of Grant
Oregon's Quality Assurance and Quality Improvement Project
Type of Grant
Quality Assurance and Quality Improvement in Home and Community Based Services
Amount of Grant
$455,113
Year Original Funding Received
2003

Contact Information


DeAnna Hartwig, Administrator
Office of Federal Resources and Financial Eligibility
Department of Human Services
Seniors and People with Disabilities
500 Summer Street NE, E-02
Salem, OR 97301-1073
503-947-1180
deanna.j.hartwig@state.or.us

Subcontractor(s)

Human Services Research Institute

Target Population(s)


Persons of all ages with disabilities.

Goals


Activities


Abstract


Over 36 months, the Oregon Department of Human Services, SPD proposes to develop an improved and balanced approach to quality assurance and quality improvement for in-home, long-term care services delivered to persons who are aged, physically disabled, or developmentally disabled. The top priority is to improve the systems that help ensure individual health and safety and address issues related to individual risk management.

This project addresses four quality assurance/quality improvement functions: design, discovery, remediation, and systems improvement. The project will produce more reliable, accurate, consistent, and useful information regarding health and safety matters. This information will be used for quality assurance purposes at the county, regional, and state levels, and also to ensure an effective system is in place to respond to critical incidents/events at the individual plan-level as they occur.

The project will also focus on remediation and systems improvements as better and more consolidated information becomes available. The plan for sustainability will address activities for continuing key grant-initiated activities and also prioritize the continual refinement of the remediation and systems improvement functions.

As a result of grant activities, by 2006 SPD will have developed the written tools and procedures and conducted the training needed to achieve and sustain an improvement in the quality of community-integrated services.

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Quality Assurance and Quality Improvement in Home and Community Based Services

PENNSYLVANIA

Grant Information


Name of Grantee
Department of Public Welfare
Title of Grant
Pennsylvania's Quality Project
Type of Grant
Quality Assurance and Quality Improvement in Home and Community Based Services
Amount of Grant
$498,650
Year Original Funding Received
2003

Contact Information


Heidi Adams, Executive Policy Analyst
Governor's Policy Office
Office of Health Care Reform
Harrisburg, PA 17120
717-346-7082
headams@state.pa.us

Subcontractor(s)

None.

Target Population(s)


Persons with disabilities served under all Medicaid Home and Community-Based Services (HCBS) waivers.

Goals


Activities


Abstract


Pennsylvania is committed to ensuring that older persons and persons of all ages with disabilities have the ability to live independently in the community and be able to direct their services. However, the State's HCBS quality assurance system is unevenly developed across waiver programs, with varying levels of automation and use of data tracking methods to ensure adequate follow-up when things go wrong at the point of service provision.

The Governor's Office of Health Care Reform will address these identified problems through implementation of the Quality Assurance and Quality Improvement Grant project, which will execute specific tasks to improve the QM infrastructure for HCBS. These tasks include

Pennsylvania proposes to have this system operational statewide by the third year of the grant. The Office of Health Care Reform will work directly with consumers, advisory groups, and state agencies to ensure that grant goals are achieved.

Note: This Compendium form was not reviewed by the Grantee prior to publication.

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Quality Assurance and Quality Improvement in Home and Community Based Services

SOUTH CAROLINA

Grant Information


Name of Grantee
South Carolina Department of Disabilities and Special Needs
Title of Grant
Validating and Expanding the Use of Peer Review Organizations in Assessing Quality Assurance and Quality Improvement in State Developmental Disability Systems
Type of Grant
Quality Assurance and Quality Improvement in Home and Community Based Services
Amount of Grant
$500,000
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Holly H. Wilson
803-898-9640
hwilson@ddsn.sc.gov

Darlynn Thomas, Director for Quality Assurance and Quality Improvement
SCDDSN
3440 Harden Street, Ext. 29203
PO Box 4706
Columbia, SC 29240
803-898-9691
dthomas@ddsn.sc.gov

Subcontractor(s)

National Association of State Directors of Developmental Disabilities, Inc.

Target Population(s)


Persons with mental retardation and related disabilities, autism, and head and spinal cord injuries.

Goals


Activities


Abstract


Over the past few years, SCDDSN has developed a sophisticated, multitiered, coordinated QA/QI program that contains state-of-the-art features, including various risk management activities, contract compliance reviews, personal outcome measures, and consumer and family satisfaction measures. A large and important portion of this program is performed by a PRO, First Health Services Corporation, with whom the State contracts.

SCDDSN believes that the current best thinking in QA/QI is incorporated in its programs, but this has not been validated externally. One goal of this grant is to use an external research organization to assess the validity and reliability of the work done by the contracted PRO.

Now that CMS has developed the Quality Framework, SCDDSN sees the need to make sure that each of the four functions and seven domains contained therein are addressed by its QA/QI system. Over the course of this grant, SCDDSN will externally validate that all components of the CMS Quality Framework are adequately addressed during the work done by the PRO.

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Quality Assurance and Quality Improvement in Home and Community Based Services

TENNESSEE

Grant Information


Name of Grantee
Tennessee Department of Finance and Administration
Title of Grant
People Talking to People: Building Quality and Making Change Happen
Type of Grant
Quality Assurance and Quality Improvement in Home and Community Based Services
Amount of Grant
$452,636
Year Original Funding Received
2003

Contact Information


Brenda Clark, Project Coordinator
Division of Mental Retardation Services
500 Deaderick Street, 15th Floor
Andrew Jackson Building
Nashville, TN 37243
615-253-6811
brenda.clark@state.tn.us

Subcontractor(s)

The ARC of Tennessee

Target Population(s)


Persons with mental retardation and other developmental disabilities, and elderly disabled persons.

Goals


Activities


Abstract


The grant's QA/QI home and community services project has been endorsed by TennCare, the Tennessee Medicaid agency. The project will be a crucial and integral component of a new system of QA/QI supporting individuals with disabilities.

The overall goal of the project is to create a consumer-driven QA/QI system that will result in timely remediation and systemwide quality improvement.

Measurable outcomes include

Note: This Compendium form was not reviewed by the Grantee prior to publication.

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Quality Assurance and Quality Improvement in Home and Community Based Services

TEXAS

Grant Information


Name of Grantee
Texas Department of Aging and Disability Services (DADS)
Title of Grant
Texas Quality Assurance and Quality Improvement Project
Type of Grant
Quality Assurance and Quality Improvement in Home and Community Based Services
Amount of Grant
$500,000
Year Original Funding Received
2003

Contact Information


Teresa Richard, Project Director
Center for Policy and Innovation
Quality Assurance and Improvement
701 West 51st Street
Austin, TX 78751
512-438-3518
teresa.richard@dads.state.tx.us

Subcontractor(s)

Kirk Jones, Data Analyst, began June 2005
Blake West, Business Analyst, began April 2006
Jay Parmar, Database Developer, began April 2006

Target Population(s)


Persons with intellectual/physical disabilities and the aged served in the Texas Department of Aging and Disability Services (DADS) programs.

Goals


Activities


Abstract


The project will redesign and improve the State's information-gathering system to integrate DADS's existing QA/QI reporting mechanisms into a comprehensive data collection system. This system will ensure that DADS's methodology to measure the quality of services ensures an accountable use of public resources and a balance between personal outcomes and flexible supports and regulatory requirements to improve the quality of the DADS programs.

The project will establish a Quality Assurance/Quality Improvement Task Force that will include participants and family members, advocacy groups, DADS program providers, local authorities, and other stakeholders. The integrated information-gathering system to be developed will

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Quality Assurance and Quality Improvement in Home and Community Based Services

WEST VIRGINIA

Grant Information


Name of Grantee
West Virginia Department of Health and Human Resources
Title of Grant
Quality Assurance and Quality Improvement Project
Type of Grant
Quality Assurance and Quality Improvement in Home and Community Based Services
Amount of Grant
$499,995
Year Original Funding Received
2003
Expected Completion Date
July 2007

Contact Information


Cynthia Beane, Program Manager
Bureau for Medical Services
350 Capitol Street, Room 251
Charleston, WV 25301-3707
304-558-5962
CynthiaBeane@wvdhhr.org

Subcontractor(s)

Marcus Canaday, Program Manager
Center for Excellence in Disabilities
West Virginia University
304-720-3200 ext. 218

Target Population(s)


Persons with mental retardation and other developmental disabilities (MR/DD), elderly persons, and persons with disabilities.

Goals


Activities


Abstract


The project will strengthen West Virginia's ability to ensure the health, welfare, and dignity of individuals participating in the HCBS waiver, by developing an effective and systematic QA/QI system that enlists people with disabilities, their family members, advocates, and allies as active participants in the process. Current and former waiver participants will play an active role in implementing and monitoring this project. The project strengthens the four basic components of an effective and ongoing quality initiative: design, discovery, remediation, and system improvement.

The project will create a quality assurance process and improvement infrastructure with QA/QI councils and a quality improvement team. The QA/QI councils will provide guidance and feedback for the development of ongoing quality initiatives within their respective waiver programs. Each council will consist of current and former waiver participants (or their legal representatives), family members, direct care workers, providers, and advocates and allies of people with disabilities. A quality improvement team, comprising waiver staff, staff from the Bureau for Medical Services, and participant representatives from each waiver, will oversee and coordinate the efforts of both councils.

The project will strengthen West Virginia's ability to compile and use real time and retroactive data to assess the performance of both HCBS waiver programs. Approximately 300 participants in the A/D waiver will be surveyed to assess their experience in the program. All existing data will be compiled and organized to assess core measurement sets. The results of the project will be distributed to HCBS waiver stakeholders for their feedback. This will allow the project and both HCBS waivers to continually improve the quality assurance and improvement process in West Virginia.

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Quality Assurance and Quality Improvement in Home and Community Based Services

WISCONSIN

Grant Information


Name of Grantee
Department of Health and Family Services
Title of Grant
Quality Close to Home
Type of Grant
Quality Assurance and Quality Improvement in Home and Community Based Services
Amount of Grant
$500,000
Year Original Funding Received
2003

Contact Information


Karen McKim
Quality and Research Manager
One West Wilson Street
PO Box 7851
Madison, WI 53707
608-266-9304
mckimk@dhfs.state.wi.us

Subcontractor(s)

A quality systems consulting firm will design and develop quality measures. A university research center will assess consumer-experience measurement tools.

Target Population(s)


Populations served through the State's Home and Community-Based Services (HCBS) waivers including elderly persons and adults with physical or developmental disabilities.

Goals


Activities


Abstract


The primary objective of this project is to improve local waiver agencies' QM practices, consistent with the CMS HCBS Quality Framework. The project will also improve the State's own HCBS QM program and its ability to enable, support, and empower more effective local QM practices. The Department wants to create sustainable improvements in state and local QM systems, with the ultimate goal of improved outcomes for consumers of HCBS in Wisconsin's waiver programs and consistency in the delivery of quality HCBS.

This project will create and provide to local agencies an improved package of standards, guidelines, and benchmarks for QM systems, and more effective training and technical assistance materials that are consumer-outcome oriented. A consulting firm with expertise in QM will assist in assessing current QA/QI efforts and developing improvements, and will help develop functional, clinical, and consumer-outcome measures for use in discovery and remediation. The project will also re-examine and revise state-level QM processes to identify and correct inefficient or contradictory requirements to develop better ways to administer consumer-experience measurement tools and to put the results of those measurements to use for improving results valued by consumers. The project will also identify and implement processes to improve effective collaboration between state facilities-regulation authorities and waiver program managers at both the state and local level.

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Independence Plus Initiative

COLORADO

Grant Information


Name of Grantee
Colorado Department of Health Care Policy and Financing
Title of Grant
Colorado Independence Plus Initiative
Type of Grant
Independence Plus Initiative
Amount of Grant
$391,137
Year Original Funding Received
2003

Contact Information


Diane M. King, Grant Administrator
303-866-5405
diane.king@state.co.us

Aggie Berens, Supervisor
Systems Change Section
Colorado State Department of Health Care Policy and Financing
1570 Grant Street
Denver, CO 80203
303-866-3358
aggie.berens@state.co.us

Subcontractor(s)

Subcontracts will be developed for a focus group facilitator and conference planner.

Target Population(s)


Individuals of all ages with disabilities who are in current or future state consumer-directed waiver programs.

Goals


Activities


Abstract


The Colorado Health Care Policy and Financing (HCPF) and the Colorado Department of Human Services (DHS) are in various stages of designing, implementing, and supporting four consumer-directed programs within the State's long-term care system. The current systems for protecting consumers of the State's long-term care programs revolve around traditional agencies taking responsibility for critical incident reporting and tracking and for emergency backup measures. They do not allow consumers to take a significant role in defining and overseeing the protections that will support them in the community. The overall goals of the Independence Plus grant are to

The project will achieve these goals by identifying existing capacity, developing a consumer-derived definition of critical incidents and emergencies, implementing consumer-defined emergency backup and critical incident management systems, and modifying existing training curricula to include training around the new participant protection mechanisms and infrastructure.

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Independence Plus Initiative

CONNECTICUT

Grant Information


Name of Grantee
Department of Mental Retardation
Title of Grant
Level of Need and Individual Budgeting Project
Type of Grant
Independence Plus Initiative
Amount of Grant
$175,000
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Laura Nuss, Director of Strategic Leadership
460 Capitol Avenue
Hartford, CT 06016
860-418-6130
laura.nuss@po.state.ct.us

Subcontractor(s)

Cynthia Gruman, Ph.D., Assistant Professor of Medicine
University of Connecticut Health Center
Center on Aging
263 Farmington Avenue
Farmington, CT 06030
860-679-7960
gruman@uchc.edu

Target Population(s)


All individuals who seek substantive funding from the Department of Mental Retardation (DMR).

Goals


Activities


Abstract


The Connecticut DMR is engaged in discussions with the single state Medicaid agency, the Department of Social Services, to develop and submit a new Home and Community-Based Services (HCBS) Mental Retardation waiver using the Independence Plus template. The waiver, called the Individual and Family Support waiver, will introduce additional in-home, flexible services for children and adults. DMR is also preparing a second HCBS Mental Retardation waiver which will replace its Consolidated waiver, adding individual budgeting and flexible supports under a Comprehensive Support waiver.

The State has recognized that the flexibility and type of supports individuals and their families want from the DMR are not always best met under Connecticut's existing 1915(c) HCBS Mental Retardation waiver. Data gained from individuals using an Individual Support Agreement option are being gathered to prepare focus group meetings and to solicit Web-based input from individuals and families about preferred services and supports, current problems or barriers in obtaining the support they need, and barriers to self-directing their own support plans. Likewise, DMR has been rapidly developing new quality review and improvement methods and systems to ensure health, welfare, and positive personal outcomes for individuals supported in their personal or family homes. These efforts are all integral components for the State to prepare a new waiver under the Independence Plus Initiative.

To successfully apply for a second waiver, Connecticut must have a valid method to establish an individual's probable level of need. Completion of the Level of Need and Individual Budgeting Project will enable the DMR to amend both new waivers to clearly identify the support needs of individuals in Connecticut who are seeking services, and to fairly and equitably distribute resources across the State in the HCBS waiver programs. Grant products will include a database, a data entry program, an algorithm model, a training manual, an individual budget methodology, strategic plans and budget forecasts, policies and procedures, and a completed waiver application.

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Independence Plus Initiative

FLORIDA

Grant Information


Name of Grantee
Agency for Persons with Disabilities
Title of Grant
Florida Freedom Initiative
Type of Grant
Independence Plus Initiative
Amount of Grant
$501,801
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Shelly Brantley, Director DD
850-488-1559
shelly_brantley@dcf.state.fl.us

Tammy Smith, Project Administrator
Agency for Persons with Disabilities
4030 Esplanade Way, Suite 380
Tallahassee, FL 32399
850-488-9547
Tammy_Smith@apd.state.fl.us

Project Coordinator to be decided.

Subcontractor(s)

Center for Self-Determination

Target Population(s)


Individuals with developmental disabilities, particularly those who earn income or wish to earn income, who are enrolled in Florida's Consumer-Directed Care Plus (CDC+) Program, as well as their families and circles of support.

Goals


Activities


Abstract


Current income and asset limits for disability benefits and welfare programs often discourage beneficiaries from seeking employment because they fear losing their benefits. This grant will build on Florida's current 1115 Research and Demonstration waiver, Consumer-Directed Care Plus, a cash and counseling demonstration program approved to serve 50 to100 individuals statewide. Considering the principles of self-determination, the grant will be used to explore opportunities to reform the system by working with the Social Security Administration to obtain a waiver to allow an increase in income and asset limits. Such an increase would enable individuals with developmental disabilities to work and to explore typical housing opportunities while maintaining their SSI eligibility despite asset development above current limits.

Intensive training on work incentives, supported employment, and benefits analysis will be provided to grant staff through a combination of general revenue and Medicaid Infrastructure grant funds. These staff members will provide direct support to participants and their circles of support.

This project is a cooperative effort of the Florida Agency for Persons with Disabilities, the Florida Developmental Disabilities Council, the Center for Self-Determination, the Department of Elder Affairs, the Department of Health, the Agency for Health Care Administration, and the Florida self-advocacy movement.

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Independence Plus Initiative

GEORGIA

Grant Information


Name of Grantee
Georgia Department of Human Resources
Title of Grant
The Georgia Independence Plus Initiative
Type of Grant
Independence Plus Initiative
Amount of Grant
$432,108
Year Original Funding Received
2003

Contact Information


Darlene Meador, Project Director
Georgia Department of Human Resources
Division of Mental Health, Developmental Disabilities and Addictive Disease
Office of Developmental Disabilities
2 Peachtree Street, NW, Suite 22.102
Atlanta, GA 30303
404-657-1138
dmeador@dhr.state.ga.us

Subcontractor(s)

APS Healthcare Bethesda, Inc.
8403 Colesville Road, Suite 1600
Silver Spring, MD 20910

Target Population(s)


Individuals with disabilities (including those with physical disabilities, serious mental illness, developmental disabilities, and traumatic brain injury) and older adults.

Goals


Activities


Abstract


Since the 1980's, Georgia has employed waivers to offer HCBS. Current HCBS, such as personal supports, day support, and natural support enhancements, lay a foundation for self-determination. Existing personal supports systems include a variety of services ranging from traditional services to individualized services designed to support people with disabilities in their growth, development, and inclusion in all aspects of community life. Day support services assist people with developmental disabilities through a combination of supports to address the multiple needs of an individual on any given day. Natural support enhancement services maintain and strengthen the natural support provided in individuals' homes. Georgia's system requires significant redesign to move the State toward self-directed services and supports.

To fulfill the State's commitment to self-direction, policies and regulations must change because the current regulatory system is designed to support traditional residential and personal care home services. Under this grant, self-advocates, family members, advocates, providers, and state agency representatives will work together with technical advisors to design a comprehensive, self-directed service delivery system. The system will provide needed supports, including budgeting support, financial management services, support brokerage services, and protections such as incident management and emergency backup systems.

The master plan for self-determination developed through this collaborative process will enable Georgia to address the increasing demand for community services through improved access to and enhanced flexibility of services tailored to individual and family needs. As a part of this project, Georgia will review its current regulatory system and determine actions needed to transform this system to be consistent with self-determination, including modifying existing and developing new state policies.

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Independence Plus Initiative

IDAHO

Grant Information


Name of Grantee
Idaho Department of Health and Welfare, Division of Medicaid
Title of Grant
Idaho Independence Plus
Type of Grant
Independence Plus Initiative
Amount of Grant
$499,643
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Leslie Clement, Administrator
208-334-5747
clementl@idhw.state.id.us

Ike Gayfield, Project Coordinator
3232 Elder Street
PO Box 83720
Boise, ID 83720-4711
208-364-1896
gayfieli@idhw.state.id.us

Subcontractor(s)

Marilyn Sword, Executive Director
Idaho Council on Developmental Disabilities
802 W. Bannock, Suite 308
Boise, ID 83702
208-334-2178
msword@icdd.idaho.org

Target Population(s)


Adult individuals with developmental disabilities.

Goals


Activities


Abstract


Idaho currently serves over 1,300 individuals aged 18 and older with severe or intermediate levels of developmental disability through Home and Community-Based Services (HCBS) waivers that place some individuals in their own homes, while most are placed in the homes of paid caregivers. A total of 14 services are available under the Developmental Disability waivers but habilitation services, provided either by paid in-home caregivers or supported living caregivers, account for approximately 94 percent of Medicaid total waiver expenditures. Private Intermediate Care Facility populations in Idaho are for the most part static, capped at 486 by the Idaho Legislature in 2000.

Services to individuals with developmental disabilities in Idaho are affected by geography, cultural values, and system architecture. With only 15.5 residents per square mile and minimal public transportation services, individuals with disabilities may easily be isolated. The amount, type, and scope of services offered depends on local availability. By developing a self-directed system of supports and services, isolation will be addressed by a team of family, friends, and others to assist and support the person in developing a plan that best addresses their needs and goals.

A key issue that this grant will address is the need to educate consumers and providers about self-directed services. This project will also create change within the current system by developing and building a more flexible infrastructure to enable individuals with developmental disabilities to exercise more choice and control over the services they receive. To accomplish this goal, this project will (1) develop and implement a self-directed Medicaid services and supports waiver, (2) develop an infrastructure to support self-directed care, with more flexible provider options, (3) conduct statewide public education and training for consumers and providers, and (4) develop a system of quality management and improvement employing the CMS Quality Framework.

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Independence Plus Initiative

LOUISIANA

Grant Information


Name of Grantee
Louisiana Department of Hospitals
Title of Grant
Louisiana's Independence Plus Initiative
Type of Grant
Independence Plus Initiative
Amount of Grant
$499,889
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Allison Vuljoin
225-219-0229
avuljoin@dhh.la.gov

Joseph Hicks, Program Manager
628 North 4th Street
Baton Rouge, LA 70802
225-219-0216
jhicks@dhh.la.gov

Subcontractor(s)

First Data Government Solutions
ARC of Iberia

Target Population(s)


All individuals with cognitive and physical disabilities and older adults.

Goals


Activities


Abstract


Louisiana's Department of Health and Hospitals, Office of Aging and Adult Services (formerly Bureau of Community Supports and Services [BCSS]) Independence Plus project will create a Home and Community-Based Services (HCBS) waiver system based on the principles of self-determination. The Office of Aging and Adult Services intends to develop a backup system, to expand opportunities for any interested waiver recipient to earn income by owning a micro-enterprise business (thereby generating personal income), and to create a consumer direction option within the Long Term Personal Care Services State Plan.

The current New Opportunities waiver will also be the catalyst for change in the Children's Choice and Elderly and Disabled Adults waivers. The Office of Aging and Adult Services will use the Independence Plus Advisory Committee to oversee this initiative.

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Independence Plus Initiative

MAINE

Grant Information


Name of Grantee
Department of Health and Human Services, Adult Mental Retardation Services
Title of Grant
Supporting Choice and Control for Maine Adults with Mental Retardation or Autism
Type of Grant
Independence Plus Initiative
Amount of Grant
$500,000
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Jane Gallivan, Principal Investigator
207-287-4212
jane.gallivan@maine.gov

David Goddu, Project Director
11 State House Station
2nd floor, Marquardt Building
Kennebec County
Augusta, ME 04333
207-287-6642
david.goddu@maine.gov

Subcontractor(s)

Vanessa Bell, Project Director
207-632-8997
vbell@usm.maine.edu

Edmund S. Muskie School of Public Service

The Center for Community Inclusion, University of Maine

The National Association of State Directors of Developmental Disabilities Services

STRIVE and Speaking Up For Us

Other consultants to be decided.

Target Population(s)


Adults with mental retardation or autism.

Goals


Activities


Abstract


Maine's Department of Health and Human Services is developing a new Independence Plus Initiative waiver program for adults with mental retardation or autism. The new program is intended to address the changing needs of people with mental retardation or autism in Maine by enhancing choice and control for consumers, and by offering different and more flexible supports within a philosophy of self-determination. The primary goal of the grant is to ensure that consumers and families have sufficient information, training, and support to manage their own services and supports as participants in the new program.

For consumers and family members to exercise greater choice and control, they must understand their options and responsibilities under the new Independence Plus Initiative waiver program, and must be given the tools and supports needed for successful self-direction. Likewise, people who have played traditional roles in the current system (i.e., case managers) must understand how roles change when consumers choose to direct their own supports.

This grant will support development and delivery of training and other supports to ensure that true system change occurs, initially in adult mental retardation services, and ultimately throughout the State's community-integrated services. Major partners include consumers, families, providers, and other state agencies.

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Independence Plus Initiative

MASSACHUSETTS

Grant Information


Name of Grantee
University of Massachusetts Medical School
Title of Grant
Massachusetts Independence Plus Initiative
Type of Grant
Independence Plus Initiative
Amount of Grant
$499,992
Year Original Funding Received
2003

Contact Information


Darlene (Dee) O'Connor, Director of the Long-Term Care Policy Unit
508-856-8148
darlene.oconnor@umassmed.edu

Emma Quach, Project Director
Center for Health Policy and Research
University of Massachusetts Medical School
222 Maple Avenue, Higgins Building
Shrewsbury, MA 01545
508-856-8112
Emma.Quach@umassmed.edu

http://www.massrealchoices.org

Subcontractor(s)

Kenneth Schlosser, LICSW

Target Population(s)


Individuals of all ages with all types of disabilities or long-term illnesses, including complex medical needs, developmental disabilities, cognitive disabilities, brain injury, sensory disabilities, mental illness, serious emotional disturbance, physical disabilities, and long-term disabling illnesses.

Goals


Activities


Abstract


With this grant project, the State will design key components of the infrastructure necessary to allow individuals (and their representatives if appropriate) to have flexibility and control over their community services and supports. The State will build on the existing infrastructure to meet federal expectations for an Independence Plus waiver. With the creation of such a waiver, participants will have flexible use of the allocated funds to meet their needs in the community.

The State will address the following infrastructure areas in this project: (1) person-centered planning, (2) fiscal management, (3) supports brokerage, and (4) participant protections with a participant-driven continuous quality improvement system. Massachusetts will also design the waiver application and ensure meaningful involvement of consumers in all phases of the grant.

The University of Massachusetts Medical School, Center for Health Policy and Research (UMMS/CHPR) will subcontract with community partners to ensure that the tools and the program infrastructure created are applicable across all age, disability, and ethnic groups, and in all regions of the State.

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Independence Plus Initiative

MICHIGAN

Grant Information


Name of Grantee
Michigan Department of Community Health
Title of Grant
Michigan's Independence Plus Initiative
Type of Grant
Independence Plus Initiative
Amount of Grant
$478,600
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Rob Curtner, Project Coordinator
517-335-8710
curtnerr@michigan.gov

Michael Head, Project Director
Michigan Department of Community Health
Office of Long-Term Care Supports and Services
109 Michigan Avenue, Seventh Floor
PO Box 30195
Lansing, MI 48909
517-335-0276
head@michigan.gov

Subcontractor(s)

Mr. Scott Dzurka
Michigan Association of Community
Mental Health Boards
517-374-6848
sdzurka@macmhb.org

Dr. James Conroy
Center for Outcome Analysis
610-668-9001
jconroycoa@aol.com

ARC of Michigan
517-487-5426

Target Population(s)


Current or potential participants in state Community Mental Health Services Programs (CMHSPs), including adults with mental illness and persons with developmental disabilities (DD), and participants in the MI Choice waiver for elders and persons with physical disabilities.

Goals


Activities


Abstract


Michigan has adopted the principles and practices of PCP as the basis for planning and arranging consumer services. However, the adoption of these principles and practices throughout the State has occurred slowly.

This project will expand implementation of arrangements that support self-determination. It will identify and establish systemwide, self-determination options, creating effective and flexible consumer-controlled service arrangements in the Michigan mental health system. It will also incorporate the philosophy, information, methods, and practices of self-determination into the MI Choice Home and Community-Based Services (HCBS) waiver system and build in methods to make flexible, consumer-directed options available to beneficiaries who are elderly or disabled. The project will also develop the framework for the approval of a new waiver arrangement or state plan amendment to demonstrate, with a limited number of beneficiaries from the mental health and/or the long-term care systems, the option of receiving a cash allotment in lieu of formal Medicaid support services.

The project will involve consumers, advocates, and other stakeholders through a work group, which will guide the project. Specific accomplishments will include (1) the development of a standardized model for individual budget development and fiscal intermediary services, (2) the development and testing of models for using independent facilitators and support brokers in PCP and consumer-directed care, (3) the development of options for emergency backup systems, and (4) the establishment of incident management systems.

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Independence Plus Initiative

MISSOURI

Grant Information


Name of Grantee
Missouri Department of Mental Health, Division of Mental Retardation/Developmental Disabilities
Title of Grant
Missouri Partnership for Self-Directed Support
Type of Grant
Independence Plus Initiative
Amount of Grant
$427,461
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Kay Green, Director of Federal Programs
Division of MRDD
1706 East Elm Street
Jefferson, MO 65102
573-751-8213
kay.green@dmh.mo.gov

Subcontractor(s)

Vim Horn, Project Coordinator
University Center for Excellence in Developmental Disabilities (UCE)
816-235-1756
hornW@umkc.edu

Additional consultants or small contracts may be needed.

Target Population(s)


Individuals with mental retardation and other developmental disabilities.

Goals


Activities


Abstract


The Missouri Division of Mental Retardation/Developmental Disabilities is seeking to enhance the choice and control individuals with disabilities and their families have over their lives. This project will allow the Division to make changes in its system so that it is prepared to implement self-directed support options associated with the Independence Plus Initiative model. The grant project will

A pilot incorporating the various aspects associated with self-directed support systems will be conducted with individuals with disabilities and/or their families. The pilot will be evaluated using several measures, including cost effectiveness, quality of life, incidence of abuse/neglect, and retention of personal care assistants. Successful components that are fiscally neutral will be implemented throughout the State under current laws. Documentation will be prepared for those that require legislative change. Pending state approval of funding through the appropriation process, features of the Independence Plus Initiative model, will be incorporated into existing waivers.

Note: This Compendium form was not reviewed by the Grantee prior to publication.

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Independence Plus Initiative

MONTANA

Grant Information


Name of Grantee
Department of Public Health and Human Services
Title of Grant
Big Sky Bonanza-Montana's Independence Plus Initiative
Type of Grant
Independence Plus Initiative
Amount of Grant
$499,963
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Robin Homan, Program Officer
406-444-4131
rhoman@mt.gov

Abby Hulme, Grant Coordinator
PO Box 4210
Helena, MT 59604
406-444-4376
ahulme@mt.gov

Subcontractor(s)

Mountain Pacific Quality Health Foundation
Summit Independent Living Center
Carl Eby

Target Population(s)


Persons with disabilities and persons with long-term care needs.

Goals


Activities


Abstract


The anticipated outcomes of Montana's Independence Plus project are expanded options, increased consumer control, and effective consumer protections. The first two outcomes will be accomplished by establishing an Independence Plus Home and Community-Based Services (HCBS) waiver program for elderly and disabled persons. The third will be achieved through implementation of an emergency backup system, a disaster and emergency plan, caregiver background checks, and an improved incident management plan.

During the general grant activities, focus groups will be used to gather input regarding program design features. These group meetings will take place on Indian Reservations, in major cities, and in rural/frontier towns. Surveys will be mailed to collect data from those who do not attend the group meetings.

Consumers, advocates, family members, providers of services, and state agency partners will participate in the grant. Summit Independent Living Center will produce participant training materials and train participants, and Carl Eby, a Native American consultant, will spearhead outreach to Indian Nations and ensure cultural sensitivity in all phases of program development and implementation.

Montana's Quality Improvement Organization will collaborate in developing and implementing the capacity assessment protocol. Montana's Department of Labor will partner in developing a caregiver registry via the existing Job Service Web page. The Disaster and Emergency Services Division will collaborate on establishing the emergency backup system. The Montana Department of Justice will assist in implementing caregiver background checks.

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Independence Plus Initiative

OHIO

Grant Information


Name of Grantee
Ohio Department of Mental Retardation and Developmental Disabilities (ODMRDD)
Title of Grant
Ohio's Self-Determination Project
Type of Grant
Independence Plus Initiative
Amount of Grant
$500,000
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Dana Charlton, Project Director
614-752-8878
dana.charlton@dmr.state.oh.us

Christina Miller, Project Coordinator
35 East Chestnut Street, 5th Floor
Franklin County
Columbus, OH 43215
614-644-5519
christina.miller@dmr.state.oh.us

Subcontractor(s)

Evaluation consultant to be decided.

Target Population(s)


Individuals with mental retardation and developmental disabilities (MR/DD).

Goals


Activities


Abstract


The overall goal of the grant is to obtain approval of an Independence Plus waiver, and to demonstrate successful implementation in at least five counties in Ohio. Grant funds will be used to obtain training, facilitation, and technical assistance related to achieving the expectations in the template for the Independence Plus waiver. Grant funds will also provide reimbursement/stipends to individuals with MR/DD and families to cover the cost of their involvement at three levels of policy work: (1) the stakeholder work team in each of the demonstration counties; (2) the collaborative group representing all demonstration counties; and (3) the advisory committee, which includes persons with expertise or positions of authority to eliminate barriers and establish the infrastructure needed to support implementation of the waiver.

Each demonstration county will use its experience from previous local and state self-determination efforts to identify barriers that must be reduced or eliminated and the infrastructure that must exist to achieve the major goals of person-centered planning, individual budgets, financial management services, support brokerage, and participant protections.

Several months following implementation of the Independence Plus waiver in the demonstration counties, an independent evaluation will be conducted on: (1) the use of services covered by the waiver; (2) system capacities to successfully implement the waiver; and (3) the outcomes and quality of life of individuals with disabilities, their satisfaction, and the satisfaction of their families and other stakeholders.

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Money Follows the Person Rebalancing Initiative

CALIFORNIA

Grant Information


Name of Grantee
California Department of Health Services (DHS)
Title of Grant
California Pathways
Type of Grant
Money Follows the Person Rebalancing Initiative
Amount of Grant
$750,000
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Paula Acosta, Health Program Manager
Office of Long-Term Care
PO Box 942732
MS 0018, Suite 71, 6031
Sacramento, CA 94234
916-440-7544
pacosta@dhs.ca.gov

Subcontractor(s)

Regents of the University of California-Los Angeles (UCLA), Borun Center for Gerontological Research

Target Population(s)


Adult Medicaid-eligible nursing facility (NF) residents.

Goals


Activities


Abstract


The California Department of Health Services (DHS) proposes to develop a pilot project called California Pathways in one location in California. A pilot project community will be chosen based on its potential for successful transitions to community living; for example, the availability of an array of housing and service options. The pilot project will depend heavily on a lead contractor, with DHS retaining final approval of all deliverables.

The lead contractor will use public/private partnerships to develop and implement the pilot project. The Long-Term Care Council's Olmstead Advisory Committee will serve as a mechanism to obtain statewide stakeholder input, in addition to input from local stakeholders and potential consumers in the pilot project.

The federal grant funding will enable research and analysis on the following core questions:

The pilot project will enable the State to map the assessment and transition process of NF residents by documenting transition cases, developing statewide protocols for future care planners, and costing out each element of the cases for the purpose of developing baseline data for Money Follows the Person models.

California Pathways will coordinate with other long-term care programs statewide that can benefit from the pilot project formative learning and outcomes, and will develop recommendations to build on the successes of the pilot project, including recommendations regarding care planning models and initiatives that enable the money to follow the person.

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Money Follows the Person Rebalancing Initiative

IDAHO

Grant Information


Name of Grantee
Idaho Department of Health and Welfare, Division of Family and Community Services
Title of Grant
Idaho Money Follows the Person Project
Type of Grant
Money Follows the Person Rebalancing Initiative
Amount of Grant
$749,999
Year Original Funding Received
2003

Contact Information


Cameron Gilliland (Contract Monitor)
450 West State Street
PO Box 83720
Boise, ID 83720-0036
208-334-5536
gillilac@state.id.us

Subcontractor(s)

Beth Hudnall Stamm, Ph.D.
208-282-4436
bhstamm@isu.edu

Dan Wolfley, B.Bus., CPA
Project Coordinator
Idaho State University Institute of Rural Health
Campus Box 8174
Pocatello, ID 83209-8174
208-282-4436
dwolfley@isu.edu

Target Population(s)


People of all ages with physical, mental, developmental, or aging-related disabilities and long-term care needs.

Goals


Activities


Abstract


Under this grant, the State will build on work begun under the 2001 Real Choice Grant by completing a research-validated plan for community integration in Idaho. The project will (1) continue the anti-stigma campaign designed to reduce stigma and facilitate community integration, (2) continue the economic analysis of the current Medicaid system to identify ways to reapportion and maximize funding, (3) expand community development project efforts to examine the political and fiscal feasibility of increasing living resources and create a more hospitable community for people who wish to live in it, and (4) expand the ongoing effectiveness study to test what best helps people of all ages with any disabilities reach their community integration goals.

Consumers will also be involved in the project implementation. The Community Integration Committee, which will oversee the project, is made up of people with disabilities, family members, and representatives of private organizations and public agencies. Community-to-Community Coalitions will be established in the research sites to involve a broad base of community members.

This project will produce sustained change by identifying implementation strategies for cost-effective, community-based care. Activities conducted under this grant will demonstrate the feasibility of providing such services in a cost-neutral manner to the maximum number of individuals with disabilities in the most integrated settings based on their wants and needs. Products will include a research-based community integration plan, evidence-based protocols for anti-stigma campaigns, community development projects, and community integration planning.

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Money Follows the Person Rebalancing Initiative

MAINE

Grant Information


Name of Grantee
Maine Department of Health and Human Services
Title of Grant
Shifting the Balance: Individual Choice and Community Options
Type of Grant
Money Follows the Person Rebalancing Initiative
Amount of Grant
$750,000
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


David Goddu
Financial and Resources Manager
40 State House Station
Kennebec County
Augusta, ME 04333-0040
207-287-6642
David.Goddu@maine.gov

Subcontractor(s)

Eileen Griffin, Project Director
Muskie School of Public Service
509 Forest Avenue
PO Box 9300
Portland, ME 04104-9300
207-780-4813
eileeng@usm.maine.edu

Danielle Westcott
Muskie School of Public Service
509 Forest Avenue
PO Box 9300
Portland, ME 04104-9300
207-780-4813
Westcott@usm.maine.edu

Target Population(s)


Adults with mental retardation and autism, adults with brain injury, and persons with any type of disability in all age groups.

Goals


Activities


Abstract


With this grant project, DHHS will continue its current efforts to shift control to the consumer and to shift services to the community. Each of the grant's three goals responds directly to recommendations made by Maine's Work Group for Community-Based Living, a cross-disability, cross-age group consumer task force.

For persons with mental retardation and autism receiving waiver services, individual budgets are currently based on provider-negotiated cost reimbursement, answering the question "What does the provider need to support this individual?" rather than "What supports does the individual need?" To enhance individual choice and control, DHHS will adopt a standardized assessment and budgeting tool that will be used to produce consistent, fair, predictable, and truly portable budgets based on individual need rather than provider need.

For persons with brain injury, many of the services available are inadequate to make living in the community a meaningful option. DHHS will analyze and test the feasibility of offering cost-effective community options that redirect funding for individuals with brain injury to more integrated settings and develop strategies for stimulating new community service options to support such individuals.

DHHS will work with stakeholders to identify performance measures that will be used to evaluate the State's success at shifting the balance to increased consumer choice and greater community options.

Products will include feasibility studies, implementation plans, and sustainability plans. Major partners include consumers, families, providers, and other state agencies.

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Money Follows the Person Rebalancing Initiative

MICHIGAN

Grant Information


Name of Grantee
Michigan Department of Community Health
Title of Grant
Michigan's Money Follows the Person Rebalancing Initiative
Type of Grant
Money Follows the Person Rebalancing Initiative
Amount of Grant
$746,650
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Rob Curtner, Project Coordinator
517-335-8710
curtnerr@michigan.gov

Michael Head, Project Director
Michigan Department of Community Health
Office of Long-Term Care Supports and Services
109 Michigan Avenue, Seventh Floor
PO Box 30195
Lansing, MI 48909
517-335-0276
head@michigan.gov

Subcontractor(s)

Norm Delisle, Jr., Executive Director
Michigan Disability Rights Coalition
780 W. Lake Lansing Road, Suite 200
E. Lansing, MI 48823
517-333-2477 ext. 17
ndelisle@voyager.com

Target Population(s)


Elderly persons and individuals with disabilities and long-term illnesses.

Goals


Activities


Abstract


This project will develop and implement systems changes to ensure that money follows the person, so that individuals' choices drive their services and that the aggregate choices of LTC consumers shape the State's use of resources. This work will be conducted by a partnership between state agencies and an LTC Community Roundtable, which will include consumers, families, advocates, and nursing facility and community providers. Consumer and family involvement will be supported by a Community Consortium for Advocacy and Technical Assistance. This support of and partnership with stakeholders represents a major commitment to inclusive planning for the development of LTC services.

At two local pilot sites, the project will develop an integrated model for LTC services, including nursing facility and home and community services. These pilot sites will establish integrated, capitated models and address barriers to Money Follows the Person in state regulations and financing. The pilot sites will adapt person-centered planning for LTC services and will have the flexibility to test strategies for (1) improving the direct service workforce, (2) developing housing options, and (3) meeting other challenges to providing effective community services.

Under this grant, the State will ensure enduring change through the work of the Community Consortium and the LTC Community Roundtable, through modifications to waiver programs and policy changes at the state level, and by developing and implementing changes to nursing home regulations and funding methods.

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Money Follows the Person Rebalancing Initiative

NEVADA

Grant Information


Name of Grantee
Nevada Department of Human Resources
Title of Grant
Nevada Money Follows the Person Rebalancing Initiative
Type of Grant
Money Follows the Person Rebalancing Initiative
Amount of Grant
$749,999
Year Original Funding Received
2003

Contact Information


Todd Butterworth, Project Director
775-687-4452
tbutterworth@dhhs.nv.gov

Sherry Manning, Project Co-Coordinator
Office of Disability Services
3656 Research Way, Suite 32
Carson City, NV 89706
775-687-4452
smanning@dhhs.nv.gov

Subcontractor(s)

Lisa Erquiaga
Northern Nevada Center for Independent Living
999 Pyramid Way
Sparks, NV 89431
775-353-3599 (voice/TTY)

Target Population(s)


Nonelderly persons with disabilities served in nursing facilities or at risk of institutionalization in the absence of effective community services.

Goals


Activities


Abstract


Rebalancing the State's system to avoid unnecessary institutionalization requires changes in its policies and programs so money can follow institutionalized persons into the community. It is also necessary to ensure that people with disabilities have ready access to effective, high-value services and supports in the community so that they need not seek institutional services. Another critical rebalancing dimension is to offer individuals with disabilities greater opportunities to direct their own services.

The Nevada Money Follows the Person Rebalancing Initiative is a collaboration of individuals with disabilities, advocates, Department of Human Resources agencies (Office of Disability Services, Division for Aging Services, the Division of Health Care Financing and Policy), the Nevada Developmental Disabilities Council, Nevada's two Centers for Independent Living, service providers, and community organizations.

The Initiative will link with other activities already under way to strengthen and improve community services for people with disabilities. The Initiative will

  1. lead to fewer individuals served in institutional settings;
  2. increase the number of people who are supported in the community;
  3. pave the way for a solid, sustainable system of effective, high-quality community services;
  4. improve individual and family access to information about community services; and
  5. afford individuals with disabilities real opportunities to direct and manage their own services and supports.

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Money Follows the Person Rebalancing Initiative

PENNSYLVANIA

Grant Information


Name of Grantee
Governor's Office of Health Care Reform
Title of Grant
Money Follows the Person Rebalancing Initiative
Type of Grant
Money Follows the Person Rebalancing Initiative
Amount of Grant
$698,211
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


David Gingerich
Forum Building
4th Floor, Room 439
Harrisburg, PA 17120
717-346-9992
dgingerich@state.pa.us

Subcontractor(s)

Bill Farley, Executive Director
Bradford, Sullivan, Susquehanna, Tioga
Counties Area Agency on Aging
570-265-6121

Louis Colbert, Executive Director
Delaware County Office of Services for Aging
610-490-1300

Stan Holbrook, Executive Director
Three Rivers Center for Independent Living
412-371-7700 ext. 133

Target Population(s)


Persons with disabilities currently in a nursing home or other institution, paid for by Medicaid or state funds, who wish to transition into their own home in the community, and consumers in the community whose needs are not being met due to current state fiscal constraints.

Goals


Activities


Abstract


The Commonwealth of Pennsylvania is implementing the MFP Rebalancing Initiative project to examine the feasibility of the concept, and to demonstrate pooling of state long-term support service dollars to permit funding to follow consumers to the most appropriate and preferred setting. Grant funds will be used to engage consumers and providers in planning and implementing feasibility studies and three demonstration projects.

A statewide MFP Planning Group, comprising consumers and providers from the long-term care system, state staff, and aging and disability advocates, will (1) examine multiple issues related to reforming state financing and service design; (2) provide guidance to a contract consultant to conduct a feasibility analysis; and (3) finalize design, parameters, and location for three local demonstrations.

Local coordinators will assemble a local MFP Planning Group and coordinate the development and implementation of the three demonstration projects. The demonstrations will be located in one major metropolitan, one rural, and one suburban or small town setting. With the exception of the major metropolitan location, the demonstrations may be multicounty.

Projects will begin at the beginning of the third year. The State will appropriate a percentage of the overall long-term support service budget for the three demonstration projects.

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Money Follows the Person Rebalancing Initiative

TEXAS

Grant Information


Name of Grantee
Texas Department of Aging and Disability Services
Title of Grant
Promoting Independence
Type of Grant
Money Follows the Person Rebalancing Initiative
Amount of Grant
$730,422
Year Original Funding Received
2003

Contact Information


Lori Roberts, Manager
Community Care Provider Services
701 West 51st Street
PO Box 149030, Mailcode W-521
Austin, TX 78714
512-438-5391
lori.roberts@dads.state.tx.us

Subcontractor(s)

Center on Independent Living (COIL)
4905 Center Park Boulevard
San Antonio, TX 78218

Target Population(s)


Individuals of all ages residing in nursing homes who want to live in the community.

Goals


Activities


Abstract


The purpose of this grant is to create a local system in each community that will allow the Texas Department of Aging and Disability Services (DADS) to more efficiently and effectively help clients transition from nursing homes to the community.

The DADS San Antonio Region has established a voluntary transition team of caseworkers, advocates, other agency personnel, local government employees, profit and nonprofit organizations, home health providers, housing authority representatives, and others to look at each individual requesting transition from the nursing facility to the community. The transition team looks at individual needs, establishes transition plans based upon those needs, offers technical assistance to group members and consumers, secures resources, and transitions individuals to the community.

A first step in replicating this model throughout the State is to educate DADS staff, consumers, advocates, and other stakeholders about the range of community care options available through DADS. Greater knowledge of the options available to enable people to live in the community will help transition individuals from nursing homes. The second step is to establish transition teams in the other 10 regions of the State.

Measurable outcomes include increased knowledge of community long-term care options available through DADS, community care coordination transition teams at the local level, and increased local resources to ensure a smooth transition and continued community supports.

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Money Follows the Person Rebalancing Initiative

WASHINGTON

Grant Information


Name of Grantee
Washington State Department of Social and Health Services (DSHS)
Title of Grant
Money Follows the Person Rebalancing Initiative
Type of Grant
Money Follows the Person Rebalancing Initiative
Amount of Grant
$608,008
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Bob Beckman, Project Director
360-725-2490
beckmrc@dshs.wa.gov

Leo Kapust, Project Manager
360-725-2427
kapuslj@dshs.wa.gov

Janet Adams, Stakeholder Coordinator
PO Box 45600
Olympia, WA 98504-5600
360-725-3408
adamsje@dshs.wa.gov

Subcontractor(s)

Starling Consulting
Laxmi Group

Target Population(s)


Adults and children with developmental disabilities.

Goals


Activities


Abstract


Through development of an automated comprehensive assessment and service planning tool, the Washington State Department of Social and Health Services (DSHS) will begin rebalancing its long-term support systems more evenly between institutional and community service options. This system will build on CARE, recently completed by the Department's Aging and Disability Services Administration (ADSA).

For this project, specific assessments will be developed within CARE.

Without an effective assessment tool it is not possible, in a systemic way, to give an individual with developmental disabilities the freedom to choose where he or she wants to live and for the funding to follow that choice. This Money Follows the Person Rebalancing Initiative will set the stage for rebalancing the currently-available funding and be linked with other major initiatives aimed at increasing options for self-directed services. The assessment tool will also be tied to a quality assurance process with automatic feedback, which is currently under development.

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Money Follows the Person Rebalancing Initiative

WISCONSIN

Grant Information


Name of Grantee
Department of Health and Family Services
Title of Grant
Wisconsin's Money Follows the Person Initiative
Type of Grant
Money Follows the Person Rebalancing Initiative
Amount of Grant
$743,813
Year Original Funding Received
2003

Contact Information


Thomas Swant
System Design Manager
Bureau of Long Term Support
One West Wilson Street, Room 418
PO Box 7851
Madison, WI 53707
608-266-3717
swanttj@dhfs.state.wi.us

Subcontractor(s)

County agencies
Consultants for training and consultation

Target Population(s)


Persons with developmental disabilities living in intermediate care facilities for persons with mental retardation (ICFs/MR) and persons with physical disabilities and frail elders living in nursing homes.

Goals


Activities


Abstract


This grant will develop mechanisms and supporting data systems to allow institutional funding to follow persons transitioning from ICFs/MR and nursing facilities to homes in the community. Judges and attorneys serving as guardians ad litem will be educated about community living options and needed resources. Grant staff will work with county officials to identify ICFs/MR for downsizing or closure.

The Department of Health and Family Services (DHFS) will provide professional technical assistance for county boards/administrators and other decision makers as they create community care plans. Wisconsin will transfer 200 individuals to the community from private or county ICFs/MR, and the money will follow them for support in the community. This transfer will enable the closing of at least three ICFs/MR, and another seven will significantly reduce beds as people move to the community.

The State is currently developing a plan to establish a Money Follows the Person mechanism for individuals in nursing homes. As part of this grant, DHFS will conduct a feasibility analysis of proposed mechanisms for transferring nursing home funds, work with the legislature to enact sponsoring legislation, implement the new funding mechanism, and work with counties to develop community resources for persons transitioned from nursing homes.

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Community-Integrated Personal Assistance Services and Supports

ARIZONA

Grant Information


Name of Grantee
Arizona Department of Economic Security, Division of Developmental Disabilities
Title of Grant
Arizona Human Service Cooperative Project
Type of Grant
Community-Integrated Personal Assistance Services and Supports
Amount of Grant
$600,000
Year Original Funding Received
2003

Contact Information


Barbara Brent, Assistant Director, DES/DDD
602-542-0419
BBrent@azdes.gov

Princess Lucas-Wilson, MSW
Project Manager (Grant Liaison)
Division of Developmental Disabilities
4th Floor NW
1789 West Jefferson
Phoenix, AZ 85007
602-542-0419
plucas@azdes.gov

Gale Bohling, Project Director
602-953-9012
bohlinginc@cox.net

Holly Bohling, Operations
Bohling, Inc.
PO Box 22120
Phoenix, AZ 85028
602-953-9012
hbohling@cox.net

Subcontractor(s)

Larry Weishaar, Vice President
Rescare, Inc.
502-394-2135
lweishaar@rescare.com

Dr. David Braddock
University of Colorado Health Sciences Center
303-735-2952
braddock@cu.edu

Richard E. Hemp
University of Colorado Health Sciences Center
303-735-0252
rick.hemp@cu.edu

Diane Coulter
University of Colorado Health Sciences Center
303-735-0457
diane.coulter@cu.edu

Target Population(s)


Medicaid-eligible persons with physical and developmental disabilities.

Goals


Activities


Abstract


For 15 years, Arizona has been operating its Long-term Care Service and Support System, including its HCBS program, under a Medicaid Section 1115 Demonstration waiver. Under this program, eligible elders and persons with physical and developmental disabilities have access to a comprehensive array of HCBS options. This project builds on existing options in determining the feasibility of the HSC as a model for addressing the need for self-determination and empowerment, and for implementing self-directed services for persons with disabilities in Arizona. Under an HSC, member/owners who are service users provide the policy direction and leadership to an incorporated cooperative that is recognized and does business as a state-certified service provider.

Development of this project will involve partnerships of several public and private groups: (1) a group of individuals who use services and their families will partner to form an HSC, (2) the State of Arizona will partner with the HSC to contract for services, and (3) a service provider will contract with the HSC to provide funding for development and professional services. The University of Colorado Health Sciences Center will provide research expertise for the endeavor, and a consultant will provide HSC business development and implementation assistance and partnership coordination. With this HSC as a base, a Federated HSC will be created to assist other groups in developing additional HSCs, in particular one that addresses the needs of the Spanish-speaking population. The project will also provide education, training, and outreach/marketing materials for developing future HSCs.

Along with an implementation and sustainability plan and implementation of the first HSC and the Federated HSC, the primary outcomes/products of this project will be the information and experience obtained to guide public policy staff and private organizations regarding HSC planning and development techniques, education and training materials for HSC leadership, and planning for future contracting systems. The development process will also stimulate new and creative service delivery options such as individual asset development and micro-board support and assistance.

As an independent organization, the HSC will operate after the grant ends, continuing to provide state-funded, long-term care self-directed services. Grant activities will transition to the Federated HSC, which will be incorporated and will provide ongoing assistance to cooperatives and professionals throughout Arizona and potentially in other states.

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Community-Integrated Personal Assistance Services and Supports

CONNECTICUT

Grant Information


Name of Grantee
Department of Social Services
Title of Grant
CHOICE, Connecticut Has Opportunities for Independence, Choice and Empowerment
Type of Grant
Community-Integrated Personal Assistance Services and Supports
Amount of Grant
$595,349
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Amy Porter, Project Director
Connect to Work Center, Bureau of Rehabilitation Services
25 Sigourney Street, 11th Floor
Hartford, CT 06101
860-424-4864
amy.porter@po.state.ct.us

Subcontractor(s)

Mary Beth Bruder, Principal Investigator
University of Connecticut
A.J. Pappanikou Center for Excellence in Developmental Disabilities Education, Research, and Service (UCEDD)
860-679-500
Bruder@nso1.uchc.edu

Media consultant to be hired.

Target Population(s)


People with disabilities and long-term illnesses.

Goals


Activities


Abstract


Although Connecticut has a long history of providing personal assistant services, not enough attention has been given to developing an adequate workforce. Currently, the demand for PAs in the State far exceeds the supply and recruitment efforts are fragmented. It is essential to the growth of self-determination initiatives in Connecticut that individuals and families have easy access to a pool of qualified staff who meet basic requirements. In addition, Connecticut needs an education and support system for employers of personal assistants that can prepare them to confidently direct and manage their services and supports.

The goal of this project is to develop an infrastructure and create products that will promote the effective recruitment and retention of personal assistants, and ensure that people with disabilities in Connecticut have the knowledge and resources to maximize choice and control in the use of personal assistance services.

Outcomes for the 3-year project include (1) a single-point-of-access recruitment tool, (2) a curriculum of training modules for employers on the management of personal assistant services, (3) provision of at least 250 in-home trainings for employers of PAs, and (4) development and implementation of a voluntary professional development program for PAs.

While the Connecticut Department of Social Services (DSS) will serve as the lead agency to administer the grant project, the application was developed collaboratively with various state agencies and the Real Choice Steering Committee, which comprises 15 individuals with disabilities, family members of persons with disabilities, and representatives of state agencies. These same state agencies and the Real Choice Steering Committee will continue to work collaboratively as a steering committee to design, implement, and evaluate grant activities.

DSS will subcontract with the University of Connecticut's A.J. Pappanikou Center for Excellence in Developmental Disabilities Education, Research, and Service (UCE) to implement grant activities. The UCE will supply the fiscal and administrative infrastructure for all project activities.

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Community-Integrated Personal Assistance Services and Supports

LOUISIANA

Grant Information


Name of Grantee
Department of Health and Hospitals
Title of Grant
Community-Integrated Personal Assistance Services and Supports Project
Type of Grant
Community-Integrated Personal Assistance Services and Supports
Amount of Grant
$464,184
Year Original Funding Received
2003

Contact Information


Dr. Anthony Speier, Director
225-342-2543
aspeier@dhh.la.gov

Ann Darling, C-PASS Project Director/Grant Coordinator
Division of Program Development and Implementation
Louisiana Office of Mental Health
1201 Capitol Access Road
Baton Rouge, LA 70802
225-342-2563
adarling@dhh.la.gov

Subcontractor(s)

Boston University

Target Population(s)


Persons with serious and persistent mental illness (SPMI).

Goals


Activities


Abstract


In Louisiana, persons with SPMI have received PAS (called service integration) as a part of their service package under the Medicaid Psychiatric Rehabilitation Option. On a more limited basis, the Office of Mental Health provides funding for PAS (known as Act 378 funds) as required on an individual basis. Medicaid has recently finalized rules for a new Personal Assistance Services Employment Support Option in association with Louisiana's Ticket to Work Initiative. While the State of Louisiana maintains a strong commitment to providing a comprehensive system of flexible supports for persons with mental illness to achieve and maintain community living status, the usefulness of PAS with this population has not been fully explored and developed within the existing treatment programs.

The Community-Integrated Personal Assistance Services and Supports Project will finance (1) the development of an appropriate service delivery mechanism to provide support services, (2) the development of infrastructure enhancements, and (3) the employment of trained consultants and experts to educate the service provider network regarding the use of PAS for persons with mental illness to help maintain a high standard of community living. Consumers who choose to self-direct their care will have access to information and education materials about consumer service control.

Consumers' needs will be assessed and their feedback sought in each component of the grant project, but particularly regarding training.

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Community-Integrated Personal Assistance Services and Supports

MASSACHUSETTS

Grant Information


Name of Grantee
Massachusetts Department of Mental Retardation
Title of Grant
MASS C-PASS
Type of Grant
Community-Integrated Personal Assistance Services and Supports
Amount of Grant
$579,178
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Margaret Chow-Menzer, J.D.
Assistant Commissioner for Systems Integration
617-624-7703
margaret.chow-menzer@state.ma.us

Nilka I. Alvarez-Rodriguez, D.A., M.A., Project Coordinator
500 Harrison Avenue
Boston, MA 02118
617-624-7506
nilka.alvarez-rodriguez@state.ma.us

Subcontractor(s)

The Arc of Massachusetts
Multicultural Services Center of the Pioneer Valley
Emily Laurer, Project Evaluation Consultant
Jeffrey Keilson, Policy Development Consultant

Target Population(s)


Individuals of all ages with disabilities or long-term illnesses who are seeking personal assistance services and supports (PASS).

Goals


Activities


Abstract


Massachusetts C-PASS is a comprehensive cross-disability, cross-age model designed to overcome the barriers to flexible, consumer-directed supports faced by persons who are elders and/or persons with disabilities. The overarching goal is to develop sustainable mechanisms that ensure consumer choice and consumer direction of PASS. The grant manager is the Department of Mental Retardation.

MASS C-PASS builds on the work begun in two successful federally-funded CMS New Freedom projects designed to promote systems change in community-based long-term care.2 These two grants established an effective state-level interagency work group that identifies obstacles, develops strategies to overcome obstacles, and generates recommendations for long lasting systems change. This CPASS grant funds two pilot projects that will produce new models of quality assurance, flexible supports, and consumer direction. All of the work in this project is underscored by a multicultural, grassroots approach to deliberately include traditionally underserved and unserved racial/ethnic, cultural, and linguistic minorities, as well as to build the receptivity of local communities to consumer-directed, community living.

Benefits to consumers include an expanded menu of PASS options, increased flexibility of services, improved control and quality of life, increased self-direction, increased choice, and increased safeguards. Anticipated program outcomes include increased community capacity in long-term care, stable sources for personal assistance and supports, increased competency of assistants, a well-trained workforce, and technical assistance to providers. Benefits to society include new support networks and collaborations and a system for sharing information on available services and supports.

Through their membership in the grant's Coordinating Council-a collaborative partnership of consumers, Independent Living Centers (ILCs), advocates, agencies, and social service providers-consumers will participate in all aspects of project implementation, management, evaluation, and reporting. The grant partners will incorporate successful strategies into existing programs and will disseminate information to encourage replication. The project's Coordinating Council will draft changes in regulatory, budgetary, and policy language to sustain the project's successes. The Project Collaboration Model will establish ongoing communication among the current initiatives in the State, including Olmstead and New Freedom.


2 Real Choices Systems Change (10/01-9/30/04) & Bridges to Community Nursing Facility Transition Project (10/01-9/30/04).

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Community-Integrated Personal Assistance Services and Supports

NEBRASKA

Grant Information


Name of Grantee
Nebraska Department of Health and Human Services
Title of Grant
Quality Assurance and Improvement Application
Type of Grant
Community-Integrated Personal Assistance Services and Supports
Amount of Grant
$600,000
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Mary Jo Iwan
Deputy Administrator
402-471-9345
maryjo.iwan@hhss.ne.gov

Sharon J. Johnson, Systems Change Grants Coordinator
Aging and Disability Services
The Nebraska Department of Health and Human Services
301 Centennial Mall South, 5th Floor
PO Box 95044
Lincoln, NE 68509-5026
402-471-1764
sharon.j.johnson@hhss.ne.gov

Subcontractor(s)

University of Nebraska Medical Center
Munroe-Meyer Institute
4242 Farnam
Omaha, NE 68131
402-559-5765

Target Population(s)


Consumers from the aging population and adults and children with developmental disabilities, behavioral health needs, physical disabilities, and complex medical needs.

Goals


Activities


Abstract


The original intent for our CPASS grant was to modify our current PAS delivery system by developing an Agency with Choice model. Nebraska top administration is in a time of transition, which has impacted the focus of service provision. With the approval of CMS, we have regrouped our efforts to improve the existing PAS delivery system even though we are unable to complete the original design. From activities thus far, we believe the PAS service system will be more significantly enhanced by training consumers, providers, and related staff on the philosophy of self-directed, in-home services.

It is Nebraska's intent to

Medicaid eligibility workers, PAS clients, providers, and Medicaid Home and Community-Based Services (HCBS) waiver staff will be trained to accomplish these goals. Because APS workers are often called in to investigate cases of individuals with disabilities living independently, we have included them in this awareness and philosophical training to enhance their understanding of freedom of choice in self-direction for consumers.

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Community-Integrated Personal Assistance Services and Supports

OREGON

Grant Information


Name of Grantee
Portland State University
Title of Grant
Oregon CPASS Project
Type of Grant
Community-Integrated Personal Assistance Services and Supports
Amount of Grant
$585,007
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Laurie Powers, Principal Investigator
503-725-9605
powersl@pdx.edu

Rollin Shelton, Project Director
Regional Research Institute
Portland State University
PO Box 751
Portland OR 97207
503-725-8097
sheltonr@pdx.edu

Subcontractor(s)

None.

Target Population(s)


Persons with psychiatric disabilities.

Goals


Activities


Abstract


In Oregon, a small percentage of eligible persons use the consumer-directed PCS Program, which funds up to 20 hours per month of personal assistance for eligible individuals in the mental health system. For many individuals with psychiatric disabilities, achieving increasing levels of community inclusion, independence, and self-sufficiency requires having access to quality, consumer-directed personal assistance services.

The Oregon CPASS Project is improving community-integrated services by promoting mental health consumer access to and successful utilization of the PCS Program. The project is implemented collaboratively by the Office of Consumer/Survivor Technical Assistance (OCTA) and Portland State University in partnership with the State Office of Addictions and Mental Health Services, consumer/survivor and family leaders and organizations, Centers for Independent Living, and regional and county mental health programs.

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Community-Integrated Personal Assistance Services and Supports

TEXAS

Grant Information


Name of Grantee
Texas Department of Aging and Disability Services (DADS)
Title of Grant
Community-Integrated Personal Assistance Services and Supports Service Responsibility Project
Type of Grant
Community-Integrated Personal Assistance Services and Supports
Amount of Grant
$599,763
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Elizabeth Jones, Project Director
DADS, Provider Services
701 West 51st Street
PO Box 149030, Mail Code W-521
Austin, TX 78714
512-438-4855
elizabeth.jones@dads.state.tx.us

Subcontractor(s)

Rebecca Wright and Associates
207 Summerhill Court
Clermont, FL 34711

Target Population(s)


Adults and children who are eligible for Medicaid State Plan personal assistance services. To be eligible, individuals must have health problems that cause functional limitations in their ability to perform activities of daily living.

Goal


To provide increased opportunities for consumers to exercise more choice and control in service management by implementing a service responsibility option (SRO), sometimes referred to as "agency with choice," in Primary Home Care services.

Activities


Abstract


While a consumer-directed services option has been available to individuals receiving Primary Home Care services since 2002, very few have exercised this option. The introduction of a SRO may increase the number of individuals exercising choice and control in the management of their personal assistance services. The SRO is a hybrid service management option that allows the consumer to select, train, and supervise his personal assistant but leaves the fiscal, personnel, and backup responsibilities with the provider agency. The option will be piloted in a rural and an urban region of the State prior to offering the option to Primary Home Care services consumers statewide.

The training for provider and DADS staff focuses on how to describe the differences among the service management options as well as how to discuss the benefits and risks of each. Pre- and post-training surveys are being used to assess the effectiveness of the training. Consumer training, which ensures that participants understand their roles and responsibilities as well as their part in quality services management, is a requirement of SRO participation. Consumer surveys will be conducted to develop an understanding of why consumers choose particular options of service management and their satisfaction with those options.

Outreach materials, including a brochure, self-assessment tool, and video, have been developed to assist providers and case managers to inform consumers about their choices. Key stakeholders, including consumers, providers, and advocates, provide invaluable input and guidance related to all grant activities. The effectiveness of the SRO will be assessed and used along with lessons learned about implementation in order to improve the option as needed prior to statewide expansion. The project is expected to increase the number of Primary Home Care services consumers who are offered the expanded service management choices, increase the number of those using consumer-directed options, increase the understanding of service management options among providers and DADS staff, and provide a blueprint for offering SRO in other DADS community-based programs.

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Community-Integrated Personal Assistance Services and Supports

VIRGINIA

Grant Information


Name of Grantee
Partnership for People with Disabilities, Virginia Commonwealth University
Title of Grant
Increasing Understanding, Use, and Control of Consumer-Directed Personal Assistance Services in Virginia's Waivers
Type of Grant
Community-Integrated Personal Assistance Services and Supports
Amount of Grant
$513,557
Year Original Funding Received
2003
Expected Completion Date
September 2007

Contact Information


Tera Yoder, Co-PI/Project Director
Partnership for People with Disabilities
Virginia Commonwealth University
PO Box 843020
Richmond, VA 23284-3020
804-828-3879
tyoder@vcu.edu

Subcontractor(s)

None at this time.

Target Population(s)


Recipients of services under three waiver programs: the Elderly or Disabled with Consumer-Direction, the Mental Retardation waiver, and the Individual and Family Developmental Disability Support waiver.

Goals


Activities


Abstract


Although Virginia has taken steps to make consumer-directed personal assistance services available, individuals often need additional information about consumer-directed personal assistance services in order to make informed choices. Additionally, users of consumer-directed services do not have an opportunity to provide input on their experiences with obtaining and using consumer-directed services.

Through this grant, the Partnership for People with Disabilities will interview 150 waiver recipients who use personal assistance services, using a survey developed through the project, and seek active involvement from recipients, family members, case managers, and service facilitators to determine ways to increase knowledge about personal assistance services and options. This grant builds on the 2001 Real Choice System Change program, in which the Partnership designed and developed materials and resources about self-direction and consumer-directed services, and designed and implemented a technical assistance network to reach consumers on a statewide basis.

The project will (1) interview consumers of personal assistance services about their satisfaction with services; (2) develop educational and technical assistance materials and resources that promote awareness of the possibilities and options for personal assistance services, and that strengthen the ability of individuals to maximize the use of services and support; and (3) expand the existing technical assistance network by increasing the number of personal assistance services recipients and services facilitators in the network, providing additional information for members to share with consumers, and providing opportunities for members to increase their knowledge of consumer-directed services.

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Family-to-Family Health Care Information and Education Centers

ALASKA

Grant Information


Name of Grantee
Stone Soup Group
Title of Grant
Alaska's Family-to-Family Health Information Center Project
Type of Grant
Family-to-Family Health Care Information and Education Centers
Amount of Grant
$149,991
Year Original Funding Received
2003
Supplemental Award
$50,000
Expected Completion Date
September 2007

Contact Information


Jayson Smart
Executive/Project Director
907-561-3701
jaysons@stonesoupgroup.org

Katy Parish
Project Manager
3350 Commercial Drive, Suite 100
Anchorage, AK 99501
907-561-3701
katyp@stonesoupgroup.org

Subcontractor(s)

The Center for Human Development, University of Alaska Anchorage
Governor's Council on Disabilities and Special Education

Target Population(s)


Children with special health care needs (CSHCN) and their families.

Goals


Activities


Abstract


Within the last 10 years, Stone Soup Group, an Anchorage-based, nonprofit organization, has been a catalyst for much of the development that has occurred in Alaska's services for CSHCN. Despite the efforts of Stone Soup Group, Alaska still has a long way to go to ensure that families of CSHCN have access to information and training on the resources and supports available to them. Alaska's Family-to-Family Health Care and Information Resource Center will fill this critical gap in Alaska's service system for families of CSHCN.

The project will focus on three primary goals. First, it will identify and compile existing information resources that are relevant to the needs of families of CSHCN. Throughout this identification and compilation process, the staff will identify outdated resources and update or produce new educational resources in order to provide the most comprehensive and up-to-date information warehouse for families of CSHCN in Alaska.

The project will also implement a peer-to-peer interactive network for families of CSHCN. This interactive network will provide an opportunity for families across the State to share their stories and find support among a group of their peers. The network will also provide a forum whereby professionals and other experts may respond to questions and provide information or feedback to families of CSHCN. Efforts to locate additional funding to support the Family-to-Family Information and Resource Center will also be initiated.

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Family-to-Family Health Care Information and Education Centers

COLORADO

Grant Information


Name of Grantee
Family Voices of Colorado
Title of Grant
Project CFTF
Type of Grant
Family-to-Family Health Care Information and Education Centers
Amount of Grant
$150,000
Year Original Funding Received
2003
Supplemental Award
$50,000
Expected Completion Date
September 2007

Contact Information


Christy Blakely, Project Director
303-973-5780
christy957@comcast.net

Lorri Park, Project Coordinator
Cerebral Palsy of Colorado
2200 South Jasmine Street
Denver, CO 80222
303-973-5780
lparkpris@aol.com

Subcontractor(s)

Colorado's Health Care Program (HCP) for Children with Special Needs

Target Population(s)


Families of children with special health care needs (CSHCN), service providers who work with them, policymakers, and other support/advocacy groups.

Goals


Activities


Abstract


Project CFTF will organize its activities based on six core Healthy People 2010 outcome indicators: Family Participation and Satisfaction, Access to a Medical Home, Access to Insurance, Early and Continuous Screening, Easy-to-Access Community-Based Service Systems, and Services Necessary to Transition to Adulthood.

These indicators will guide the project to help Colorado CSHCN families (1) have access to a "medical home"; (2) secure health insurance coverage; (3) obtain early and continuous screening and intervention services for their CSHCN; (4) access public services and entitlements specific to Colorado and regions in Colorado; (5) participate, partner, and advocate at all levels of decision making; and (6) obtain guidance that promotes a seamless transition from youth to adult services in Colorado.

The project will coordinate information sharing with existing projects such as the Medical Home Initiative and statewide transition planning groups. By the end of the first year, Project CFTF will compile a compendium of resources that incorporates information relevant to the six core indicators. HCP Family Consultants will receive in-depth annual trainings (using a train-the-trainer model) on health care and related services systems and navigation of the systems. Other families, community members, and agencies will be invited to attend. Information distribution and outreach will be conducted through local communication mediums such as newsletters, listservs, Web sites, and other community networks. HCP Family Consultants will be prepared to disseminate information and provide trainings in their local communities on core issues impacting CSHCN.

HCP Family Consultants will help families access health care resources and information, including negotiating benefits in health payer systems, understanding changes to the State's delivery of services, participating in the Medical Home Model, and using effective communication mechanisms to bring about systems change. Many HCP Family Consultants serving large Spanish-speaking populations are bilingual and culturally competent; all consultants participate on multidisciplinary teams and receive access to key health care, nutrition, and social work professionals.

Project CFTF will also conduct a second and third year evaluation to determine its success.

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Family-to-Family Health Care Information and Education Centers

INDIANA

Grant Information


Name of Grantee
About Special Kids, Inc. (ASK)
Title of Grant
The Indiana Family-to-Family Health Care Information and Education Center
Type of Grant
Family-to-Family Health Care Information and Education Centers
Amount of Grant
$150,000
Year Original Funding Received
2003
Supplemental Award
$50,000
Expected Completion Date
September 2007

Contact Information


Rebecca Kirby
Executive Director
4755 Kingsway Drive, Suite 105
Indianapolis, IN 46205
317-257-8683
rebecca@aboutspecialkids.org

Subcontractor(s)

None.

Target Population(s)


Children with special health care needs (CSHCN) and their caregivers.

Goals


Activities


Abstract


Over the past 10 years, Indiana has expanded its use of Medicaid to pay for services for children with disabilities and long-term health care needs. This has been accomplished through the State Children's Health Insurance Program (SCHIP) and development of new Home and Community-Based Services (HCBS) waiver programs. To address the information needs of families of CSHCN, About Special Kids, Inc. (ASK) established The Indiana Family-to-Family Health Information and Education Center to (1) make information and materials available online; (2) establish two Parent Liaisons in two state regions; and (3) plan and conduct training statewide on health care financing issues.

Working with a Web design consultant, ASK will expand and improve its current Web site by updating its online resource directory, responding to individual inquiries via the Internet, and providing downloadable materials. To place staff in regional sites, an advisory committee will help ASK identify (1) target regions; (2) regional staff who are respected by families and professionals in their communities; (3) options for co-location with other community agencies or organizations; (4) critical issues facing families; and (5) possible clinic and/or hospital sites for partnerships to meet families' information, support, and education needs.

The Indiana Family-to-Family Health Information and Education Center will (1) improve access to accurate, timely information on health care financing options; (2) support both families and professionals through medical homes in local communities; and (3) provide additional opportunities for education and training for both parents and professionals. The advisory committee will help the project maintain links with other family-directed organizations, ensure communication with state agencies and others who make or implement policies affecting families of CSHCN, and help identify emerging issues that are affecting these families.

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Family-to-Family Health Care Information and Education Centers

MARYLAND

Grant Information


Name of Grantee
The Parents' Place of Maryland
Title of Grant
Maryland Family-to-Family Health Information and Education Center
Type of Grant
Family-to-Family Health Information and Education Centers
Amount of Grant
$150,000
Year Original Funding Received
2003
Supplemental Award
$50,000
Expected Completion Date
September 2007

Contact Information


Josie Thomas, Executive Director
410-768-9100
josie@ppmd.org

Kim McKay, Project Coordinator
801 Cromwell Park Drive, Suite 103
Glen Burnie, MD 21061
410-768-9100
kim@ppmd.org

Subcontractor(s)

None.

Target Population(s)


Individuals with disabilities and special health care needs and their families.

Goals


The goal of this project is to develop and implement statewide strategies to ensure that families of children with special health care needs (CSHCN) have access to accurate, timely, and culturally appropriate information, to enable them to make wise health care decisions.

Activities


Abstract


The mission of Parents' Place of Maryland is to enhance the ability of persons with disabilities and special health care needs to participate as fully as possible in home, school, and community life by providing education, information and referral, technical assistance, and support activities for them and their families. The overall goal of this project is to ensure access to accurate, timely, and targeted information on health care options within the State of Maryland to enable families of CSHCN, including those from special populations, to make wise health care choices.

One project objective is to ensure that families of CSHCN better understand the home and community services and supports available in their communities. This will be accomplished through the provision of a toll-free number, the hiring of a part-time Family Health Partner, the training of staff and volunteers from the partnering organizations, the dissemination of health information, and other outreach activities.

The project will expand outreach for special populations, especially Spanish-speaking families of CSHCN, through training and translated materials developed by the project. In addition, a series of training workshops for families of CSHCN in three broad topic areas-Maryland's Public Health System, Private Health Insurance in Maryland, and Accessing Health Care for Children with Emotional and Behavioral Disorders-will be piloted, evaluated, and implemented. The resulting workshops will become an ongoing part of the Parents' Place of Maryland's workshop repertoire.

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Family-to-Family Health Care Information and Education Centers

MONTANA

Grant Information


Name of Grantee
Parents, Let's Unite for Kids (PLUK)
Title of Grant
Family-to-Family (F2F) Center Project
Type of Grant
Family-to-Family Health Care Education and Information Centers
Amount of Grant
$150,000
Year Original Funding Received
2003
Supplemental Award
$50,000
Expected Completion Date
September 2007

Contact Information


Dennis Moore, Project Director
Parents, Let's Unite for Kids
516 N. 32nd Street
Billings, MT 59101
406-255-0540
dmoore@pluk.org

Subcontractor(s)

None.

Target Population(s)


Adults and adolescents with special health care needs, and parents of children with special health care needs (CSHCN).

Goals


Activities


Abstract


Parents, Let's Unite for Kids (PLUK) is a nonprofit organization dedicated to helping CSHCN reach their potential by insuring fair and equitable access to the educational system. PLUK uses a statewide team of well-trained parent volunteers who assist families by providing support and skill building for positive interactions with the educational system.

PLUK will use its current infrastructure for providing training, data collection, and information services to a statewide constituency to create a Family-to-Family Health Care Education and Information Center. Grant funds will be used to evaluate the information needs of families with CSHCN, conduct peer training to facilitate family-to-family support to meet information needs, and conduct a statewide conference for families by families.

An advisory committee will be established to bring together public and private stakeholders to advise, guide, and oversee the project. PLUK will conduct a survey to identify families who are willing to participate in the project and to determine their interest and skill level in various areas. The information gathered will be used to create an inventory of parental expertise. Topic areas with insufficient capacity will be identified and PLUK will create a plan to remedy the deficit. PLUK will also conduct a survey to determine the information needs of families with CSHCN.

PLUK will develop, test, evaluate, and implement family peer training, and will develop an outreach plan for providing training and disseminating information. A self-advocacy training track, which will be provided in other venues, will be developed for a CSHCN conference. The grant will also be used to establish CSHCN volunteer advisors for newborns in Billings, Helena, Great Falls, and Missoula, to increase the presence of family advocates in the health care system.

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Family-to-Family Health Care Information and Education Centers

NEVADA

Grant Information


Name of Grantee
Family TIES (Training, Information and Emotional Support) of Nevada, Inc.
Title of Grant
Nevada's Family-to-Family Health Care Information and Education Center Project
Type of Grant
Family-to-Family Health Care Information and Education Centers
Amount of Grant
$150,000
Year Original Funding Received
2003
Supplemental Award
$50,000
Expected Completion Date
September 2007

Contact Information


Marcia O'Malley, Project Director
PO Box 50815
Sparks, NV 89435-0815
866-326-8437
momalley@familytiesnv.org

Subcontractor(s)

None.

Target Population(s)


Children and youth with special health care needs (CYSHCN) and their families.

Goals


Activities


Abstract


The overall goals of the project are to increase understanding of and utilization of appropriate health care resources for CYSHCN, and to promote family-centered and consumer-directed health care services and support. Family TIES' consumer-run organization, culturally diverse staff, and peer mentoring supports will educate, inform, and serve CYSHCN families and help create a network of informed consumers. By encouraging and developing family-friendly materials and approaches, and using peer counselors and parent leaders as mentors, culturally competent policies, practices, and values will become part of the health care system.

Health education and information sharing among families will help families understand the health care system and obtain referrals for early screening and information on how to find appropriate services. The development of self-advocacy skills will help families serve as a resource to other families and provide the center with a pool of consumer leaders who will continue to make significant improvements to the service system in the future.

A Web-based clearinghouse of health care information, being developed under the project, will make information, services, and supports more accessible to families who need them. Information will be translated into Spanish so that Spanish-speaking families will have a place to find quality health care information in their native language. Products developed for consumers will inform and assist CYSHCN families in their decision-making and advocacy roles and help them understand the need for future planning for adult life. Family TIES will also develop a data collection and reporting system that will directly link key constituencies to information regarding the project goals and family satisfaction with services received.

Note: This Compendium form was not reviewed by the Grantee prior to publication.

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Family-to-Family Health Care Information and Education Centers

NEW JERSEY

Grant Information


Name of Grantee
Statewide Parent Advocacy Network of New Jersey, Inc. (SPAN)
Title of Grant
Family-to-Family Health Center Project
Type of Grant
Family-to-Family Health Care Information and Education Centers
Amount of Grant
$150,000
Year Original Funding Received
2003
Supplemental Award
$50,000
Expected Completion Date
September 2007

Contact Information


Diana Autin, Project Director
973-642-8100 ext. 105
diana.autin@spannj.org

Lauren Agoratus, Southern Region Coordinator
609-584-5779
familyvoicesnj@spannj.org

Shirley Johnson
Northern Region Coordinator
35 Halsey Street
Newark, NJ 07120
973-642-8100
shirley.Johnson@spannj.org

Subcontractor(s)

None.

Target Population(s)


Parents of children with special health care needs (CSHCN).

Goal


The goal of this project is to improve access to quality care and supports for children with chronic and acute health conditions in their communities by empowering their families with information and advocacy skills.

Activities


Abstract


The overall goal of the project is to improve access to quality care and supports for children with special health care needs in their communities by empowering families with information and advocacy skills. The Family-to-Family Health Center will assist families to

  1. ensure that their children with special health care needs live at home or in the most integrated community setting appropriate to their needs;
  2. exercise informed choices about their children's living environment, service providers, types of supports, and manners in which supports are provided; and
  3. obtain quality services for their children with special health care needs.

The center will provide education, training, and information to families and providers; collaborate with national, New Jersey, and community agencies that benefit CSHCN and their families; and promote the philosophy of individual and family-directed supports.

Project activities and collaboration will increase the percentage of children with special health care needs whose families partner in decision making at all levels and are satisfied with the services; have access to adequate private and/or public insurance and community-based service systems; and can secure coordinated, ongoing, comprehensive care within a "medical home." The project will also increase informed participation of parents in local, county, and state health systems change activities.

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Family-to-Family Health Care Information and Education Centers

SOUTH DAKOTA

Grant Information


Name of Grantee
South Dakota Parent Connection, Inc.
Title of Grant
South Dakota's Family-to-Family Health Care Information and Education Center
Type of Grant
Family-to-Family Health Care Information and Education Centers
Amount of Grant
$150,000
Year Original Funding Received
2003
Supplemental Award
$50,000
Expected Completion Date
September 2007

Contact Information


Dr. Lynn Fjellanger, Executive Director
605-361-3171
lynnbf@sdparent.org

Dina Castro, Project Coordinator
3701 W. 49th Street
Suite 102
Sioux Falls, SD 57106
605-361-3171
dcastro@sdparent.org

Subcontractor(s)

None.

Target Population(s)


Families of children with special health care needs (CSHCN).

Goals


Activities


Abstract


The South Dakota Family-to-Family Health Care Information and Education Center will operate within the South Dakota Parent Connection, Inc. organization. South Dakota Parent Connection serves as the State's only Parent Training and Information (PTI) Center. The overall goal of the project is to build on the current infrastructure to increase access and choice for families with CSHCN and to establish new capacity without duplicating existing services. Information developed under the project will be easily accessible to underserved populations living in a frontier state and will help children remain in their home communities.

Project activities are designed to reach families through comprehensive programs including peer-training, parent-to-parent linking, training available through a variety of distance-education mediums, and individualized technical assistance, all with a strong emphasis on cultural competence and sensitivity toward the State's underserved populations. Collaboration with state, private, and local stakeholders will be the key to the success of building this parent-professional partnership.

Project activities will assist the State in its efforts to improve access to community services for families with CSHCN. The South Dakota Family-to-Family Health Care Information and Education Center will rely on a combination of staff, parent trainers, board members, advisory council members, collaborative partners, and Reservation/Regional Coordinators to complete its activities and meet its goals.

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Family-to-Family Health Care Information and Education Centers

WISCONSIN

Grant Information


Name of Grantee
Family Voices of Wisconsin
Title of Grant
Family Voices of Wisconsin Health Information Project
Type of Grant
Family-to-Family Health Care Information and Education Centers
Amount of Grant
$142,959
Year Original Funding Received
2003
Supplemental Award
$50,000
Expected Completion Date
September 2007

Contact Information


Elizabeth Hecht, Project Director
PO Box 55029
Madison, WI 53705
608-239-1364
liz@fvofwi.org

Subcontractor(s)

Parent consultants

Target Population(s)


Children with disabilities and/or special health care needs (CDSHCN).

Goals


Activities


Abstract


Families in Wisconsin have consistently identified the need for access to timely, high-quality services and supports in the health and community system of care. The complexities of the current systems, multiple funding streams, and lack of coordination make it difficult for families to obtain the services their child needs. Families who have the information they need to support their child with a disability or special health care need are in the best position to ensure access to quality health and community supports for their child.

Key aspects of this project include involving families in leadership positions in all aspects of project design, implementation, and evaluation. Extensive linkages will be fostered with existing parent groups concerned with CDSHCN. Strategies for supporting and training a network of health benefits specialists will be defined and implemented. All materials and training will be offered to the existing information and assistance network. Project outcomes will be monitored and evaluated throughout the project period.

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LIFE Accounts Feasibility and Demonstration

NEW HAMPSHIRE

Grant Information


Name of Grantee
University of New Hampshire-Institute on Disability/University Center of Excellence in Disability
Title of Grant
Living with Independence, Equality, and Freedom Account Feasibility Study and Implementation Plan for Self-Directing Individuals and Families in New Hampshire
Type of Grant
LIFE Accounts Feasibility and Demonstration
Amount of Grant
$100,000
Year Original Funding Received
2004

Contact Information


For general information about grant activities, please call:

Mary Schuh, Principal Investigator
University of New Hampshire
10 West Edge Drive
Durham, NH 03824
603-862-4320
mary.schuh@unh.edu

Andrew Shepard
UNH-Office of Sponsored Research
51 College Road, Service Building
Durham, NH 03824
603-862-2436
andy.shepard@unh.edu

Subcontractor(s)

For detailed information about grant activities, please call:

Tobey Partch-Davies, Project Director
Southern New Hampshire University
School of Community Economic Development
2500 N. River Road
Manchester, NH 03106
603-644-3159
t.partch-davies@snhu.edu

Target Population(s)


Children and adults with disabilities responsible for self-directing their own services under the Home and Community-Based Care waiver services through In-Home Supports, Consolidated Services, Elderly-Chronically Ill services, and Personal Assistance Services programs.

Goal


Develop an easy-to-use LIFE Accounts savings program that will address the needs of persons with all types of disabilities and their families.

Activities


Abstract


Many people with disabilities are deterred from accumulating personal savings because doing so may disqualify them from essential public benefits, such as Medicaid and Supplemental Security Income (SSI). Recent changes in the Social Security Improvement Act of 2003, and the establishment of a Medicaid Buy-In program for adult workers with disabilities demonstrates policy innovation to allow for savings accumulation. However, there remain significant program and policy barriers to saving for children, people who are temporarily unable to work, and for caregivers of the same household to purchase items that could substantially improve independence and community participation among citizens with disabilities.

The purpose of this project is to conduct a feasibility study and develop an implementation plan for the establishment of a savings program for children (i.e., parents) and adults with disabilities who self-direct their own Medicaid-funded, community-based, long-term care services without disqualifying beneficiaries from necessary medical or public benefit programs.

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LIFE Accounts Feasibility and Demonstration

WISCONSIN

Grant Information


Name of Grantee
Wisconsin Department of Health and Family Services
Title of Grant
LIFE Accounts
Type of Grant
LIFE Accounts Feasibility and Demonstration
Amount of Grant
$100,000
Year Original Funding Received
2004

Contact Information


John Reiser, Pathways Program Manager
608-266-3063
Reisejr@dhfs.state.wi.us

Donna McDowell, Director
608-266-3840
mcdowdb@dhfs.state.wi.us

Michael Meulemans, Co-Director
608-264-9869
meulemj@dhfs.state.wi.us

Terri Lannan, Co-Director
One West Wilson Street, Room 1150
PO Box 7850
Madison, WI 53707
608-264-9964
lannatm@dhfs.state.wi.us

Subcontractor(s)

APS Healthcare, Inc.
Attn: Heather Goldberg
10 E. Doty Street, Suite 210
Madison, WI 53703
608-258-3350

Target Population(s)


Individuals with disabilities.

Goal


Develop a feasibility study and implementation plan for a Wisconsin Living with Independence, Freedom, and Equality (LIFE) Accounts savings program.

Activities


Abstract


The LIFE Accounts savings program for Medicaid recipients allows individuals to keep savings they have accumulated by self-directing their care. The savings accounts can be used to purchase equipment or home modifications that promote independence. Savings can be enhanced by an individual's earnings or by matched contributions from others.

The purpose of this feasibility study is to determine the number of individuals who are (1) currently eligible and likely to enroll in the LIFE Accounts program through their participation in a self-directed option in the three Home and Community-Based Services (HCBS) waiver programs-Community Integration, Community Options, or Family Care-or (2) receiving personal care under the Medicaid State Plan through the Independent Living Center Model.

The grant will also be used to study systems and policy issues that may impact the implementation of a LIFE Accounts program and to develop guidelines regarding allowable purchases and required documentation.

Anticipated project outcomes include (1) greater consumer participation in self-directed care, (2) the creation of incentives for cost-effective use of consumer resources, and (3) the availability of more equipment and supports to assist consumers in maintaining their independence.

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Mental Health: Systems Transformation

DELAWARE

Grant Information


Name of Grantee
Department of Services for Children, Youth and Their Families, Division of Child Mental Health Services (DCMHS)
Title of Grant
Family Psycho-Education for Children and Their Families
Type of Grant
Mental Health: Systems Transformation
Amount of Grant
$300,000
Year Original Funding Received
2004

Contact Information


Ms. Nancy Widdoes
Managed Care Administrator
Delaware Youth and Family Center
1825 Faulkland Road
Wilmington, DE 19805
302-633-2603
nancy.widdoes@state.de.us

Subcontractor(s)

Malisa Knox, Project Director
302-831-0223
mknox@udel.edu

Michael Partie, Supervisor of P.D.
University of Delaware
Center for Disabilities Studies (CDS)
302-831-8374
partie@chepe.chep.udel.edu

Target Population(s)


Families and children served by the State's 1115 Medicaid waiver's public-private partnership for managed children's behavioral health care.

Goal


Develop, pilot, and disseminate for state and systemwide use a manualized, consumer-driven family psycho-education program relating to children's mental illnesses and severe emotional and behavioral disturbances.

Activities


Abstract


Under Delaware's 1115 Medicaid waiver, there is a public-private partnership for children's behavioral health; however, there is no structured or systematic approach to family psycho-education, and families/consumers report that this is a critical service gap.

DCMHS (the lead agency) is the single statewide payor for Medicaid children's behavioral health extended services with a statewide provider network and a commitment to effective treatment in the least restrictive environment and the use of evidence-based practices. Family psycho-education is already a Medicaid-coverable service in Delaware. DCMHS will partner with Delaware Federation for Families for Children's Mental Health, a statewide family organization and the family voice driving development of this project. In addition, the University of Delaware Center for Disabilities Studies is a strong academic partner with relevant expertise and evaluation capability and has already partnered effectively with DCMHS to produce curriculum for functional behavior analysis. These three partners will collaborate with Delaware Medicaid and behavioral health treatment providers to create Family Psycho-Education to directly benefit Medicaid children and their families. Outcomes to be achieved include

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Mental Health: Systems Transformation

MAINE

Grant Information


Name of Grantee
Maine Department of Health and Human Services, Adult Mental Health Services
Title of Grant
Maine Recovery Specialist Program for Consumer-Driven Mental Health Systems Change
Type of Grant
Mental Health: Systems Transformation
Amount of Grant
$262,318
Year Original Funding Received
2004

Contact Information


Ms. Leticia Huttman, Project Officer
Department of Health and Human Services
#11 State House Station
Marquadt Building, 2nd Floor
Augusta, ME 04333
207-287-4253
leticia.huttman@maine.gov

Subcontractor(s)

Nadine Edris
Center for Learning
Edmund Muskie School of Public Service
University of Southern Maine
207-626-5220
nadine.edris@maine.gov

Shery Mead
302 Bean Road
Plainfield, NH 03781
603-469-3577
shery466@adelphia.net

Target Population(s)


Adults with mental illness who are Medicaid eligible.

Goals


Activities


Abstract


The Maine Recovery Specialist program for Consumer-Driven Mental Health Systems Change project is guided by the view that effective implementation of recovery-oriented principles in a state mental health system requires a strategic catalyst, a top-down and bottom-up approach, and a collaborative approach with strategic partners. Maine Department of Health and Human Services (DHHS), Adult Mental Health Services, in cooperation with DHHS Bureau of Medical Services, will collaborate with the Maine Peer Support Workgroup and the Center for Learning, Institute for Public Sector Innovation of the Edmund S. Muskie School of Public Service, University of Southern Maine, to implement this grant project.

A Consumer Project Advisory Committee representing consumers, survivors, and former patients from across the State will advise the project and provide a communications link to consumer organizations statewide. This Advisory Committee will be an expanded form of the Peer Support Workgroup, which designed the premise for this project with the Office of Consumer Affairs to further mobilize consumers and families to move a recovery-based agenda forward.

The project focus on training consumers as Recovery Specialists will serve as a catalyst for promoting a recovery-based approach for increasing community integration and inclusion of consumers and transforming the overall level of recovery-orientation of Maine's mental health system. Adult Mental Health Services will strengthen its strategic alliance with MaineCare, the State Medicaid program, collaborating to ensure utilization of newly trained and certified peer support Recovery Specialists and WRAP and RWG facilitators and thereby enhance the recovery-orientation of Maine's mental health system. Concurrently, the Deputy Commissioner, Programs, Director of Adult Mental Health Services, and grant project staff in the Office of Consumer Affairs will work to permeate a recovery-oriented philosophy in policy and decision making and planning and evaluation processes of the state mental health agency.

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Mental Health: Systems Transformation

MASSACHUSETTS

Grant Information


Name of Grantee
University of Massachusetts Medical School Center for Health Policy and Research
Title of Grant
Massachusetts Mental Health Systems Transformation Grant
Type of Grant
Mental Health: Systems Transformation
Amount of Grant
$300,000
Year Original Funding Received
2004

Contact Information


Debra Hurwitz, Co-Principal Investigator
55 Lake Avenue North
Worcester, MA 01655
508-856-4270
Debra.Hurwitz@umassmed.edu

Subcontractor(s)

Deborah Delman, Executive Coordinator
M-Power
617-929-4111
drdelman@comcast.net

Jonathan Delman, Executive Director
Consumer Quality Initiatives
197 Ashmont Street
Dorchester, MA 02124
617-929-4400
jdelman@cqi-mass.org

Target Population(s)


Mental health consumers, adults, adolescents, and children who are Medicaid-eligible, including mental health consumers with substance abuse problems and young adults transitioning out of the children's mental health system.

Goals


Activities


Abstract


Consumer-directed services have taken root in Massachusetts and are providing much-needed support and assistance to mental health consumers, especially those who tend to avoid traditional service providers. However, several barriers currently stand in the way of consumer-directed programs being able to fully impact services and policy, including the lack of systematic quality measurement tools and program evaluations, limited training and technical assistance, limited funding streams, and systemwide cultural inertia.

The ultimate aim of this grant is to address these barriers, developing the infrastructure needed to support and sustain effective ROCD mental health services in Massachusetts. This will be accomplished through the establishment of a state-level, consumer-directed RCOE that will address each of these barriers by focusing on training, education and advocacy, planning and program development, and policy development. The RCOE will integrate consumer leaders and organizations to develop a consumer center of gravity that will influence the Massachusetts Department of Mental Health and Office of Medicaid policy and practice, and will ultimately promote systems transformation throughout the State.

Although the RCOE will ultimately impact the overall mental health system, its primary focus will be on Medicaid-eligible mental health consumers of all ages. This will be accomplished by targeting training, technical assistance, and education efforts to consumer-directed programs and traditional mental health providers that serve MassHealth members. Additionally, the RCOE will aim its efforts at two specific populations that have struggled greatly with the traditional mental health system-mental health consumers with substance abuse problems and young adults transitioning out of the children's mental health system.

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Mental Health: Systems Transformation

MICHIGAN

Grant Information


Name of Grantee
Michigan Department of Community Health
Title of Grant
Mental Health Systems Transformation
Type of Grant
Mental Health: Systems Transformation
Amount of Grant
$300,000
Year Original Funding Received
2004

Contact Information


Irene Kazieczko, Grant Administrator
Director, Bureau of Community Mental Health Services
Lewis Cass Building, 5th floor
320 S. Walnut
Lansing, MI 48913
517-335-0252
Kazieczko@michigan.gov

Subcontractor(s)

To be decided.

Target Population(s)


Adults with serious and persistent mental illness.

Goals


Activities


Abstract


Michigan has a strong history of promoting and supporting consumer choice and control in the delivery of mental health services and supports. The State has partnered with consumers and families in work groups to develop practice guidelines, technical advisories, and other communications to the field. Person-centered planning is included in the State's Mental Health Code and a Self-Determination Policy and Practice guideline became effective in October 2004. While these innovations have moved professionals and systems into a service delivery model of consumer choice and control, there have been pockets of success without significant systems change.

In recent years, the State has sought to bring the theme of recovery into the forefront of thinking among professionals, service system mangers, families, and consumers. However, infrastructure is needed to address systems barriers and accountability of recovery-oriented services. Recovery education, training, and support are needed to continue the evolution of supporting positive practices that are evidenced-based.

The grant project seeks to transform Michigan's public mental health system so that recovery is the foundation of the service delivery system. The Department of Community Health will lead a focused and intensive effort to instill the principles of recovery, to enhance the understanding of pathways to achieve recovery, and to support models that can be built upon to demonstrate these pathways. The infrastructure development will include peer supports, self-direction, and consumer-owned and -operated services. In Year 2, the project will focus on developing and supporting at least three Recovery Centers of Excellence to move recovery from a statewide leadership focus to a regional and local level.

Outcomes and products will minimally include a Recovery Council of experts; a recovery brochure and handbook; a Web site with links to national resources; a speakers bureau of recovery experts; contract requirements for managed care; and infrastructure development to support recovery-oriented, evidenced-based mental health services.

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Mental Health: Systems Transformation

MINNESOTA

Grant Information


Name of Grantee
Minnesota Department of Human Services
Title of Grant
Using Evidence to Transform Systems: Science in Service of Children's Mental Health
Type of Grant
Mental Health: Systems Transformation
Amount of Grant
$300,000
Year Original Funding Received
2004

Contact Information


Dr. Patricia Nygaard, Project Lead
Children's Mental Health Division
Minnesota Department of Human Services
PO Box 64985
St. Paul, MN 55164-0985
651-431-2332
pat.nygaard@state.mn.us

Subcontractor(s)

Dr. Eric Daleiden, Consultant
Hawaii Department of Health
808-733-8354
eldaleid@camhmis.health.state.hi.us

Dr. Bruce Chorpita, Consultant
University of Hawaii
808-956-3607
chorpita@hawaii.edu

Sue Abderholden, Supervisor
National Alliance for the Mentally Ill, Minnesota (NAMI-MN)
651-645-2948
sabderholden@nami.org

Target Population(s)


Medicaid-eligible children with serious emotional disturbance (SED).

Goals


Activities


Abstract


The Minnesota Department of Human Services will develop and implement an evidence-based practices database to function as a clinical decision-making tool for parents and providers. The project is designed to make the best possible use of structures and processes used by Hawaii to implement evidence-based interventions throughout its system of care, to determine modifications in those structures and processes needed to match Minnesota's unique assets and constraints, and to evaluate the effectiveness and cost-efficiency of these changes to Minnesota's children's mental health service system.

Based on Hawaii's approach, the project will join families and providers in a learning collaborative to build and implement a systematic approach to evidence-based services from published research and evaluation data. By the end of the project's first year, there will be a plan in place for technical systems changes that need to be made; evidence-based concepts will be familiar to a wide range of families, providers, and administrators; and Minnesota will be prepared to acquire and install the Hawaii-developed core practice elements database. In the second phase of the project, spanning most of Year 2, pilot projects will be developed, implemented, and evaluated. Pilot sites will be chosen regionally in order to ensure the applicability of the project to urban, rural, and frontier areas. At the end of Year 3, the State will have a fully operational EBP database accompanied by strengthened collaborative consumer/provider relationships, customized training materials, enhanced claims and authorization systems, a continuous quality monitoring system, and evaluation reports.

Ultimately, the outcome will be a statewide system that improves clinical and functional outcomes for children, and parents and providers will have more choices in treating children. These system changes will also result in less institutional treatment of children and greater efficiencies in the State's Medicaid system.

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Mental Health: Systems Transformation

NEW HAMPSHIRE

Grant Information


Name of Grantee
State of New Hampshire, Bureau of Behavioral Health (BBH)
Title of Grant
Statewide Implementation of Illness Management and Recovery (IMR) for Consumers with Severe Mental Illness (SMI)
Type of Grant
Mental Health: Systems Transformation
Amount of Grant
$300,000
Year Original Funding Received
2004

Contact Information


Norman Cordell, Project Co-Director
Office of Medicaid Business and Policy
603-271-4297
ncordell@dhhs.state.nh.us

Erik Riera, Project Director
Bureau of Behavioral Health (BBH)
105 Pleasant Street, Main Building
Concord, NH 03301
603-271-5000
eriera@dhhs.state.nh.us

Subcontractor(s)

Kim Mueser, Consultant/Training Director
NH-Dartmouth Psychiatric Research Center (PRC)
603-271-5226
Kim.T.Mueser@dartmouth.edu

Target Population(s)


Individuals with severe mental illness (SMI).

Goals


Activities


Abstract


The New Hampshire BBH will implement the EBP IMR program statewide to empower consumers to better manage their mental illness and reclaim their lives by supporting their pursuit of personal recovery goals. The critical ingredients of IMR are supported by multiple controlled studies and include psycho-education, strategies for improving medication adherence, developing a relapse prevention plan, and enhancing skills for coping with persistent symptoms.

Implementation analyses of the IMR program and other EBPs conducted in New Hampshire and across the country have identified barriers to accessing IMR, including lack of a coherent service structure for IMR, a mismatch between Medicaid-reimbursable procedures and some key components of evidence-based IMR interventions, lack of involvement of consumer providers, and the need for ongoing mechanisms to ensure access to training and to sustain high-quality services. The grant will be used to address these barriers to IMR in New Hampshire as follows: (1) establish a coherent service structure for delivering and monitoring IMR in every community mental health center/peer-support program region (and the two state-operated inpatient facilities) involving trained clinician IMR service providers at each site, a supervisor, and a state IMR coordinator; (2) provide training for IMR in each community mental health center/peer-support program region and state-run inpatient facilities, and consultation to center administrations; (3) develop recommendations for modifying Medicaid reimbursement guidelines to support provision of IMR services; (4) develop an IMR state team at the BBH level to lead, monitor, and continuously improve the system transformation; (5) develop credentialing procedures and standards to facilitate long-term Medicaid reimbursement capability; and (6) establish a Center of Excellence for IMR services that will provide training and consultation to both centers and the State to ensure sustainability of collaborative high-quality IMR services throughout New Hampshire.

BBH has already convened a multi-stakeholder EBP team comprising consumers, family members, community mental health providers, BBH, and NH-Dartmouth Psychiatric Research Center (PRC). This team has been meeting on a regular basis and has unanimously endorsed this IMR project.

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Mental Health: Systems Transformation

NORTH CAROLINA

Grant Information


Name of Grantee
NC Division of Mental Health, Development Disabilities, and Substance Abuse Services
Title of Grant
Real Choice Systems Change Grant-Mental Health Systems Transformation
Type of Grant
Mental Health: Systems Transformation
Amount of Grant
$881,307
Year Original Funding Received
2004

Contact Information


Flo Stein, Chief
Community Policy and Management
Division of Mental Health, Developmental Disabilities, and Substance Abuse Services
NC Department of Health and Human Services
3007 Mail Service Center
Raleigh, NC 27699-3007
919-733-4670
Flo.Stein@ncmail.net

Subcontractor(s)

Wei Li Fang, Ph.D.
Project Director
Director for Research and Evaluation
Governor's Institute on Alcohol and Substance Abuse, Inc.
PO Box 13374
Research Triangle Park, NC 27709
919-990-9559
Wei.Li.Fang@governorsinstitute.org

Target Population(s)


Adults with mental illness.

Goals


Activities


Abstract


The goal of the grant project is to achieve greater incorporation of evidence-based practices into the mental health system by assisting LMEs to develop the infrastructure necessary to support and sustain the implementation of evidence-based practices within their local communities. To accomplish this goal, a project work group was established at each LME, consisting of administrators, managers, clinicians, providers, and Consumer and Family Advisory Committee (CFAC) members. During planning and development, the local work groups met once or twice a month until consensus was reached on the strategic action plan. Since LMEs are implementing the strategic action plan, the work groups are meeting monthly.

Representatives (i.e., LME coordinator, LME staff member, and CFAC member) of the four project work groups meet as a group quarterly to discuss implementation issues such as essential infrastructure elements for successful planning, purchasing of services, training, instrument development, barriers to implementation, monitoring of implementation fidelity, clinical supervision, and reporting. Two of the four meetings are held in tandem with the Steering Committee meeting so that progress at each site may be reported to the Steering Committee for constructive feedback and future planning.

At Steering Committee meetings, representatives of the state Division of Medical Assistance and Mental Health, Division of Developmental Disabilities, and Division of Substance Abuse Services, the NC Council of Community Programs, the four LMEs, and the MHST Grant project staff discuss the goals, proposed activities, and expectations at each level (i.e., state, Council of Community Programs, Institute, LME, and CFAC). These meetings ensure that all participants understand what the project is trying to achieve.

The first year of the grant focused on planning and development; and the second year focused on field testing, review, and documentation of the experience, and development of an evaluation design for dissemination efforts. The third year will focus on dissemination, training, and technical assistance to implement standardized infrastructure tools across the State. Efforts will include workshops, training materials, and considerable technical assistance provided primarily by individuals from the field sites and the grant work group.


3 The responsibilities of the LME as they relate to system performance are as follows: (1) general administration and governance; (2) access, triage, and referral; (3) service management; (4) provider relations and support; (5) customer services and consumer rights; (6) quality management and outcomes evaluation; (7) business management and accounting; and (8) information management, analysis, and reporting.

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Mental Health: Systems Transformation

OHIO

Grant Information


Name of Grantee
Ohio Department of Mental Health
Title of Grant
Incorporating Peer Support Specialists into Ohio's Assertive Community Treatment (ACT) Teams
Type of Grant
Mental Health: System Transformation
Amount of Grant
$300,000
Year Original Funding Received
2004

Contact Information


Liz Gitter, LISW
Ohio Department of Mental Health
30 East Broad Street, 8th Floor
Columbus, OH 43215
614-466-9963
614-446-3077 (cell)
gitterl@mh.state.oh.us

Subcontractor(s)

Doug DeVoe
Ohio Advocates for Mental Health
614-340-6264
ddevoe@ohioadvocates.org

Jonas Thom
Ohio Coordinating Center for ACT
513-458-6733
jthom@healthfoundation.org

Target Population(s)


Medicaid beneficiaries receiving mental health services from community mental health providers, including Assertive Community Treatment (ACT) services to aid recovery.

Goals


Activities


Abstract


The Ohio Department of Mental Health (ODMH) is partnering with the State Medicaid agency and the Ohio Department of Job and Family Services, to incorporate the evidence-based practices ACT as a distinct Medicaid community mental health service beginning in July 2005. ODMH is working with consumer groups, providers, and county boards to incorporate peer support specialists into Ohio's ACT teams. The grant project will provide funding for training and technical assistance to realize the goal. This will increase Ohio's capacity to deliver evidence-based practices and recovery-oriented services to Medicaid consumers with mental health needs and will have a positive impact on Ohio's mental health system's ability to provide the same services for all mental health consumers.

The measurable outcomes and products of this grant will include a white paper on how to incorporate peer support into ACT, which will be disseminated at national mental health conferences. Eighty people will be trained as peer support specialists, and ACT training will be conducted for providers to support the employment of peer support specialists. In addition, training and/or technical assistance will be provided to 40 providers on how to effectively incorporate peer support specialists into their staff.

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Mental Health: Systems Transformation

OKLAHOMA

Grant Information


Name of Grantee
Oklahoma Department of Mental Health and Substance Abuse Services
Title of Grant
Oklahoma Evidence-Based Practices Implementation Project
Type of Grant
Mental Health: Systems Transformation
Amount of Grant
$299,820
Year Original Funding Received
2004

Contact Information


Carrie Slatton-Hodges
Director, Community Based Services
1200 NE 13th
PO Box 53277
Oklahoma City, OK 73152-3277
405-522-3992
CHodges@odmhsas.org

Subcontractor(s)

None.

Target Population(s)


Adults with mental illness or substance abuse who are eligible to receive Medicaid or state-purchased services.

Goals


Activities


Abstract


The Oklahoma Evidence-Based Practices Implementation Project is an extension of the Recovery Collaborative of Oklahoma. The Collaborative is sponsored by the Oklahoma Department of Mental Health and Substance Abuse Services (ODMHSAS), which is the state Mental Health Authority, and the Oklahoma Health Care Authority (OHCA), the state Medicaid agency. The Oklahoma Department of Human Services and the Oklahoma Department of Rehabilitative Services also participate in activities of the Collaborative as needed.

The mission of the Collaborative is to implement modifications to the Oklahoma adult outpatient behavioral health delivery system that will enhance the quality of services provided, focus those services upon recovery and the needs of the consumer, and ensure that state- and federally-funded health care is purchased in the most efficient and comprehensive manner.

The Collaborative will implement two evidence-based practices: the Family Psycho-education Program and the Illness Management and Recovery Program. These initiatives fall within the purview of the Collaborative to implement the six evidence-based practices suggested by SAMHSA.

The Collaborative will use grant funding to add one full-time staff member at ODMHSAS and one full-time staff member at OHCA. These individuals will develop a statewide network of Recovery Support Specialists who will collaborate with the current network of behavioral health practitioners to form a multidisciplinary team that will serve as providers of Illness Management and Recovery Services and Family Psycho-education. The new staff members will develop policies, procedures, reimbursement strategies, credentialing standards, outcome measures, and provider contracts that will serve as the foundation for these two programs.

Network development and provider training activities will begin in late 2005 and will continue throughout 2006. It is anticipated that the practitioner training sessions conducted through the funding of this grant will continue developing a collaborative relationship with the behavioral health provider community that will serve as the foundation for this effort and the continued implementation of evidence-based practices in the future.

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Mental Health: Systems Transformation

OREGON

Grant Information


Name of Grantee
Portland State University
Title of Grant
The Peer Expertise Network: Building Peer Operated Supports for Recovery
Type of Grant
Mental Health: Systems Transformation
Amount of Grant
$300,000
Year Original Funding Received
2004

Contact Information


Laurie Powers, Project Director
503-725-4040
powersl@pdx.edu

Rollin Shelton, Project Manager
Regional Research Institute for Human Services
PO Box 751
Portland, OR 97207
503-725-8097
sheltonr@pdx.edu

Subcontractor(s)

None.

Target Population(s)


Individuals with psychiatric disabilities.

Goals


Activities


Abstract


The Peer Expertise Network (PEN) project is undertaking a series of interrelated activities designed to increase the utilization, validation, and sustainability of peer-operated services. Consumer leaders are involved at all levels of the project, leading design, outreach, policy, evaluation, and dissemination teams. Peer-operated services are being outreached through the development of a network that brings together groups and leaders already skilled in the delivery of peer-based services with groups committed to moving toward increased peer operation. Train-the-trainer tools and approaches for peer support, education, and advocacy are being infused as well as peer-guided methods for providing supports, such as person-directed planning and self-directed employment.

A PEN Leadership Conference is being conducted to promote knowledge exchange, to facilitate organizational planning for peer-operated services, and to establish network linkages that bring together consumer/survivor leaders to support one another's efforts. An ongoing collaborative planning effort by consumers, state, and local agencies, and other leaders is identifying policy improvements, collaboration strategies, and funding mechanisms for sustaining peer-operated programs and services.

Key outcomes include an increase in (1) the number of peer-operated programs, (2) the level of evidence-based peer services delivered within those programs, and (3) consumer/survivor involvement in the implementation and evaluation of other evidence-based practices. Products include evidence-based practice guidelines, benchmarks, tools for structuring and delivering peer-operated services, and a policy and funding framework for incorporating peer-operated services as a standard practice.

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Mental Health: Systems Transformation

PENNSYLVANIA

Grant Information


Name of Grantee
Pennsylvania Department of Public Welfare, Office of Mental Health and Substance Abuse Services (OMHSAS)
Title of Grant
Real Choice Systems Transformation Grant
Type of Grant
Mental Health: Systems Transformation
Amount of Grant
$300,000
Year Original Funding Received
2004

Contact Information


Carol J. Ward-Colasante
Project Director
717-772-7913
ccolasante@state.pa.us

Bill Boyer
OMHSAS
PO Box 2675
Beechmont Building, 2nd Floor
Harrisburg, PA 17105
717-705-8181
wboyer@state.pa.us

Subcontractor(s)

Jeanie Whitecraft
Mental Health Association of Southeastern Pennsylvania
1211 Chestnut Street, 11th Floor
Philadelphia, PA 19107
215-751-1800
jwhitecraft@mhasp.org

Target Population(s)


Persons with mental illness.

Goals


Activities


Abstract


Through the Office of Mental Health and Substance Abuse Services (OMHSAS), Pennsylvania develops programs and policies, allocates funds, and develops guidelines for county planning and outcome reporting. County government, through the Mental Health/Mental Retardation Act of 1966 and the Mental Health Procedures Act of 1976, has the responsibility to provide a full array of mandated services to its citizens within each county area. OMHSAS has a long-term commitment to the development of a comprehensive array of mental health and substance abuse services and supports.

The Mental Health Association of Southeastern Pennsylvania (MHASP), in partnership with the Montgomery County Office of Mental Health/Mental Retardation/Drug and Alcohol Services, local providers, consumers, and other stakeholders, has implemented in Montgomery County a CPS Program similar to those developed in other states. Through this program, current or former mental health clients are being trained and certified to function as Peer Specialists. These programs assist consumer trainees to better understand peer support, communication skills, cultural competency, outreach, engagement, conflict management, crisis intervention, setting up and sustaining mutual self-help groups, helping clients build their own self-directed recovery tools, and navigating the work place. In Montgomery County, a protocol has been developed for engaging community stakeholders to support this new recovery workforce, a recovery training curriculum has been produced, training strategies are finalized, and a class of 18 consumers is now certified and functioning as the county and State's first Certified Peer Specialists. Montgomery County is using these Certified Peer Specialists in various service settings, including Targeted Case Management, Community Treatment Teams, and Mobile Psychiatric Rehabilitation programs.

Based on this successful program in the Southeast region of Pennsylvania and the accolades Peer Specialist Certification programs have received in other states (e.g., Georgia, South Carolina, Arizona, Vermont, New Mexico), OMHSAS will use this project to introduce and support a Peer Specialist Certification program in the northeast, central, and western regions of the State. Under the grant, the program will be developed in selected counties and then expanded to the rest of the State. A support network will also be developed for CPS training program graduates. OMHSAS will simultaneously work on a State Plan Amendment to win approval to support a continuing program by Medicaid reimbursement of peer specialist services through the Mental Health Rehabilitation Option.

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Mental Health: Systems Transformation

VIRGINIA

Grant Information


Name of Grantee
Virginia Department of Mental Health, Mental Retardation and Substance Abuse Services
Title of Grant
Transforming Virginia's Mental Health Services System
Type of Grant
Mental Health: Systems Transformation
Amount of Grant
$300,000
Year Original Funding Received
2004

Contact Information


James M. Martinez, Jr., Director
Office of Mental Health
1220 Bank Street, 10th Floor
Richmond, VA 23219
804-371-0767
jim.martinez@co.dmhmrsas.virginia.gov

Subcontractor(s)

Virginia Organization of Consumers Asserting Leadership (VOCAL)
Mental Health Association of Virginia

Target Population(s)


Adults with serious mental illness.

Goals


Activities


Abstract


The Virginia DMHMRSAS will use the grant project to strengthen the capacity of the State's mental health services system to provide integrated community services that embody self-determination, recovery, and empowerment. The project will focus on consensus and partnership building with multiple stakeholders and constituencies to develop (1) state-specific models of illness management and recovery and supported employment; (2) regulatory analysis and agency funding streams that will support programs on assertive community treatment, illness management and recovery, and supported employment services; (3) provider training, consultation, and technical assistance; and (4) process evaluation of project implementation.

Project activities are intended to increase the number of mental health consumers who assume policy, planning, evaluation, and leadership functions and roles at Community Services Boards and in mental health system transformation activities; provide Community Mental Rehabilitative Services (CMHRS) that include relevant components of IMR and SE; and are better able to access recovery-oriented and personalized supports leading to competitive employment and independence. The State estimates that approximately $5 to $10 million of existing CMHRS Medicaid reimbursement will ultimately be redirected to support more effective and efficient recovery-oriented community mental health services and supports.

Grant activities were developed collaboratively with consumers and are responsive to numerous recommendations in the President's New Freedom Commission on Mental Health Report and Virginia's One Community, the Olmstead Task Force Report.

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Quality Assurance and Quality Improvement in Home and Community Based Services

ALASKA

Grant Information


Name of Grantee
Department of Health and Social Services
Title of Grant
Alaska's Comprehensive Quality Management System
Type of Grant
Quality Assurance and Quality Improvement in Home and Community Based Services
Amount of Grant
$417,849
Year Original Funding Received
2004

Contact Information


Carol Downey
Project Coordinator
Division of Senior and Disabilities Services
907-269-3664
carol_downey@health.state.ak.us

Rebecca Hilgendorf
Project Manager
Division of Senior and Disabilities Services
3601 C Street, Suite 310
Anchorage, AK 99503
907-269-2083
rebecca_hilgendorf@health.state.ak.us

Subcontractor(s)

None.

Target Population(s)


Participants in all the State's Home and Community-Based Services (HCBS) waiver programs.

Goals


Activities


Abstract


The processes used by the State to assess needs for services, and to periodically review service plans already incorporates person-centered strategies. The purpose of the grant project is to expand the ability of the Division of Senior and Disabilities Services (DSDS) to provide more comprehensive quality management.

In Year 1, consumer partners (Alaska Commission on Aging, Alaska Mental Health Trust Authority, Governor's Council on Disabilities and Special Education, and State Independent Living Council) will examine instruments and methodologies for assessing quality of life on an ongoing basis and make recommendations to the DSDS Quality Improvement Steering Committee. An assessment will be implemented with a small sample of waiver recipients and, after review by the partner organizations, any problems will be addressed. In Years 2 and 3, this assessment will be implemented with larger samples and expanded to other regions of the State, becoming an ongoing part of Alaska's Quality Management System.

Simultaneously, in collaboration with the Alaska Mental Health Trust Authority, the project will assist in the implementation of an already existing data management system that can integrate quality of life data with other data, such as eligibility assessments, case management, service delivery, program provider performance, complaints, and incident reports. This will make it possible for Alaska's Quality Management System to become more data-driven in ongoing monitoring and improvement activities. It will allow DSDS to provide data-supported information that will be accessible to consumers and families as a tool for making informed choices, to providers as a tool for making their own quality assurance decisions, and to other stakeholders.

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Quality Assurance and Quality Improvement in Home and Community Based Services

ARIZONA

Grant Information


Name of Grantee
State of Arizona, Department of Economic Security, Division of Developmental Disabilities
Title of Grant
Empowering AriZona's Individuals with developmental disabilities (EAZI)
Type of Grant
Quality Assurance and Quality Improvement in Home and Community Based Services
Amount of Grant
$500,000
Year Original Funding Received
2004

Contact Information


Dr. Ric Zaharia, Principal Investigator
State of Arizona, Department of Economic Security
Division of Developmental Disabilities
1789 West Jefferson
Phoenix, AZ 85007
602-542-6853
rzaharia@azdes.gov

Princess Lucas-Wilson, M.S.W.
Policy, Planning and Special Projects
602-542-6090
plucas-wilson@azdes.gov

Subcontractor(s)

Thomas Uno, Ed.S., Assistant Director
Northern Arizona University/Institute for Human Development

Target Population(s)


People with developmental disabilities and their families.

Goal


Develop and test a consumer-to-consumer strategy for gathering quality assurance (QA) data and identifying quality improvement (QI) needs.

Activities


Abstract


The goal of this project is to develop and evaluate a consumer-to-consumer strategy for gathering QA data and identifying potential QI needs. To ensure the project is consumer/family driven, a consumer steering committee will be created to oversee all aspects of the project. The Grantee will first conduct small pilots and later a larger demonstration to evaluate and refine the model.

The Division of Developmental Disabilities will administer the project and coordinate with the Northern Arizona University, Institute for Human Development, to conduct the initial design and discovery tasks to create the model and engage in evaluation activities. Other partner agencies (Administration on Aging and Department of Health Services) will help review the project, identify ways to ensure that the model is sustainable, and implement model components as appropriate in their quality management systems.

Measurable outcomes and products of this project include (a) a consumer-run steering committee with a direct connection to the quality management system, (b) a set of consumer-identified characteristics of quality services, (c) a training curriculum for consumer-to-consumer assessment, (d) a cadre of peer quality reviewers, (e) pilot study and demonstration reports, and (f) a consumer-to-consumer model plan.

Ultimately, the project will help to improve services provided to people with disabilities in Arizona by offering a consumer perspective on the quality of services provided to individuals and families in their own homes. This new source of information will aid continuous quality improvement efforts for the target population.

Note: This Compendium form was not reviewed by the Grantee prior to publication.

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Quality Assurance and Quality Improvement in Home and Community Based Services

ARKANSAS

Grant Information


Name of Grantee
Department of Human Services, Division of Aging and Adult Services (DAAS)
Title of Grant
Quality Assurance and Quality Improvement in Home and Community Based Services
Type of Grant
Quality Assurance and Quality Improvement in Home and Community Based Services
Amount of Grant
$500,000
Year Original Funding Received
2004

Contact Information


Kris Baldwin
Program Administrator, DAAS
PO Box 1437-S530
Little Rock, AR 72203-1437
501-682-8509
kris.baldwin@arkansas.gov

Subcontractor(s)

Contractor to be determined through RFP in first year of the grant.

Target Population(s)


Persons who participate in Arkansas's 1915(c) Home and Community-Based Services (HCBS) waivers.

Goals


Activities


Abstract


The grant project represents a commitment by the Arkansas Department of Human Services (DHS) to (1) ensure the quality of the State's HCBS waivers, (2) develop quality management strategies for waiver services, and (3) produce a QM strategy for home and community services that address quality issues in each of the seven focus areas of the HCBS Quality Framework. At present, the State's HCBS quality assurance initiatives are unevenly developed across waiver programs with varying levels of automated data collection and tracking. The overarching goal of the project is to move HCBS quality assurance and improvement activities from the project or program level to a collaborative, interdepartmental commitment to ensure the health and welfare of all Arkansas waiver participants. DHS, with the Division of Aging and Adult Services as lead agency, will update and standardize quality assurance procedures across programs through the Quality Assurance and Quality Improvement (QA/QI) grant project.

Successful implementation of this project will result in the following measurable outcomes or products: (1) a sustainable systemwide QM Strategy that meets the requirements of the CMS Quality Framework; (2) a single, automated data collection system for all HCBS waivers that generates reliable and timely reports to allow for informed program decisions; (3) a QA/QI Task Force to provide consumer input on HCBS participant-defined measures of quality (in both services and service delivery) and participant outcomes; and (4) shortening of the response time between identification of quality problems and issues and their remediation.

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Quality Assurance and Quality Improvement in Home and Community Based Services

FLORIDA

Grant Information


Name of Grantee
Agency for Persons with Disabilities (APD)
Title of Grant
A Customer Approach to Quality Management
Type of Grant
Quality Assurance and Quality Improvement in Home and Community Based Services
Amount of Grant
$475,000
Year Original Funding Received
2004

Contact Information


Linda Mabile, Project Manager
Agency for Persons with Disabilities
4030 Esplanade Way, Suite 380
Tallahassee, FL 32399
850-414-9132
Linda_Mabile@apd.state.fl.us

Subcontractor(s)

Anne Buechner, Florida Coordinator
Council on Quality and Leadership
443-762-6476
Annetnn@aol.com

Bob Foley
Vice President of Florida Programs
Delmarva Foundation
813-972-8100
Foleyb@dfmc.org

Target Population(s)


Individuals with developmental disabilities (DD) and other stakeholders.

Goals


Activities


Abstract


The grant project involves a partnership effort between the APD (formerly the Department of Children and Families, Developmental Disabilities Program), the Council on Quality and Leadership, Delmarva Foundation, and the Agency for Health Care Administration. All four organizations have been involved in providing direction and resources for project development as well as identifying resources that will be dedicated to its implementation. The grant provides an opportunity for the newly established APD to institute quality management and service delivery structures consistent with the principles of self-determination. The overall goal for this project is to achieve, through improved quality management, a more person-directed service delivery system that will result in increased achievement of desired outcomes for people receiving services.

The focus of Florida's initiative will be to enhance the use of data from existing QA activities and realign district functions to build QI and quality management capacities throughout the service system. This effort will improve abilities at all levels of the system, including local service providers and stakeholders, district operational management, and state-level policy and funding partners. The project will specifically target QI and ongoing quality management for organizational change that supports self-determination and meeting customer expectations through the project's goals, activities, outcomes, and products.

Project funds will be spent at a higher rate early in the grant cycle to establish a strong infrastructure and as capacity is established, a smaller percentage of the grant will be spent each year with an expectation that sustainability is facilitated by a growth and shift in funding through both state and local DD program offices.

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Quality Assurance and Quality Improvement in Home and Community Based Services

MASSACHUSETTS

Grant Information


Name of Grantee
University of Massachusetts Medical School
Title of Grant
New England Quality Improvement Collaborative
Type of Grant
Quality Assurance and Quality Improvement in Home and Community Based Services
Amount of Grant
$499,226
Year Original Funding Received
2004

Contact Information


Dr. Steven Staugaitis, PI
University of Massachusetts Medical School
Room 105, Chang Building
222 Maple Avenue
Shrewsbury, MA 01545
508-856-7792
steven.staugaitis@umassmed.edu

Subcontractor(s)

R. Gettings
National Association of State Directors of Developmental Disabilities Systems
rgettings@nasddds.org

Target Population(s)


People with mental retardation and/or developmental disabilities (MR/DD).

Goals


Activities


Abstract


The Commonwealth of Massachusetts, through the University of Massachusetts Medical School, E.K. Shriver Center, Center for Developmental Disabilities Evaluation and Research, will develop a unique QI collaboration between the New England MR/DD state systems. The major outcomes for this grant project include the development of a set of common quantitative standards and quality indicators, comparative interstate benchmarks, standard algorithms for trend and pattern analysis of quality data, standardized evidence for use by the CMS Regional Office, National Core Indicators (NCI) enhancement, coordinated resource sharing, multistate training and learning opportunities regarding QI and the use of objective data and analytic methods of performance evaluation, increased partnership between the state Medicaid directors and the MR/DD system leadership, and improved methods for federal oversight of HCBS supports.

Consumers, families, service providers, and CMS regional personnel will be invited to participate with state personnel in the initial identification of standards and indicators to ensure that the design reflects what is important to HCBS participants, providers, and federal monitors. In addition, grant funds will be utilized to establish methods to facilitate the sharing of resources regarding quality and QI across the participating states and the training of stakeholders in the use of quantitative information and methods for consumer use of objective quality information, including prototype provider profiles.

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Quality Assurance and Quality Improvement in Home and Community Based Services

NEBRASKA

Grant Information


Name of Grantee
Nebraska Department of Health and Human Services
Title of Grant
Quality Assurance and Quality Improvement System in Home and Community Based Services
Type of Grant
Quality Assurance and Quality Improvement in Home and Community Based Services
Amount of Grant
$470,000
Year Original Funding Received
2004

Contact Information


Mary Jo Iwan, Administrator
Nebraska Department of Health and Human Services
Home and Community Services for Aged and Persons with Disabilities
301 Centennial Mall South
PO Box 95026
Lincoln, NE 68509-5026
402-471-9345
maryjo.iwan@hhss.ne.gov

Subcontractor(s)

Dr. Barbara Jackson, Project Manager
Munroe-Meyer Institute
University of Nebraska Medical Center
402-559-5765
jjackso@unmc.edu

Charlie Lewis, Project Director
Answers4Families
Center on Children, Families and the Law
University of Nebraska-Lincoln
402-472-3479
clewis@answers4families.org

Dr. Linda Redford, University of Kansas

Creighton University

Target Population(s)


Consumers receiving services through the Aged and Disabled Home and Community-Based Services (HCBS) waiver, which covers populations across the lifespan.

Goals


Activities


Abstract


The purpose of the grant project is to develop a system of supports and services that builds quality into the design of program operations, including a QM strategy that involves real-time methods of feedback and information gathering; involves consumers, families, and advocates in active roles; and makes effective use of QM processes to guide system improvement. This grant will target consumers receiving services through the Aged and Disabled HCBS waiver, which covers populations across the lifespan.

This project will integrate and enhance current quality assurance efforts into a coordinated, comprehensive QM system that is aligned with the CMS HCBS Quality Framework. Three key issues will be addressed to improve current processes:

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Quality Assurance and Quality Improvement in Home and Community Based Services

NEW HAMPSHIRE

Grant Information


Name of Grantee
New Hampshire Department of Health and Human Services
Title of Grant
Enhancing New Hampshire's Quality Assurance and Quality Improvement System
Type of Grant
Quality Assurance and Quality Improvement in Home and Community Based Services
Amount of Grant
$498,988
Year Original Funding Received
2004

Contact Information


Diane Langley, Project Manager
603-271-7103
DLangley@dhhs.state.nh.us

Sally Varney, Grant Manager
NH Department of Health and Human Services
Brown Building, 129 Pleasant Street
Concord, NH 03301
603-271-3264
svarney@dhhs.state.nh.us

Subcontractor(s)

To be determined.

Target Population(s)


Individuals with physical or mental disabilities, chronic illness, or older adults.

Goals


Activities


Abstract


The New Hampshire DHHS, through the Bureaus of Continuous Improvement and Integrity (BCII) and Elderly and Adult Services (BEAS) proposes to institutionalize a continuous QI culture and management system at the department level that impacts all HCBS waiver programs as well as other Medicaid and state-funded services for those citizens who have a disability or long-term illness. Additionally, DHHS proposes to initiate selective QA/QI activities that are specific to the HCBC-ECI waiver program that is administered by the BEAS and transfer the knowledge and products to other waiver programs.

These two-tiered goals provide an opportunity to advance the department's new leadership and reorganization efforts that are aimed at generating operational and fiscal efficiencies, increasing program integrity, and building a permanent system of ongoing program monitoring and continuous QI. All of these efforts involve enhanced collaboration with community stakeholders, with the foremost challenge of expanding the role of participants and family representatives in designing, developing, and evaluating the system and its performance.

The project will enable the State to create a fundamental change in the DHHS quality management system and to develop or improve community-based services for the HCBC-ECI waiver program in multiple ways. A participant-centered and participant-directed departmental quality management infrastructure will be secured. This will include a continuous QI culture and department-wide standards for quality management. The HCBC-ECI program will realize operational efficiencies; improved assessment and service planning; an ongoing method for capturing participants' level of satisfaction with services and supports; and the active, meaningful involvement of participants at all levels of system planning and evaluation.

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Quality Assurance and Quality Improvement in Home and Community Based Services

NEW JERSEY

Grant Information


Name of Grantee
New Jersey Department of Human Services, Division of Developmental Disabilities (DDD)
Title of Grant
Building a Quality Management Infrastructure for New Jersey's Division of Developmental Disabilities HCBS Waiver
Type of Grant
Quality Assurance and Quality Improvement in Home and Community Based Services
Amount of Grant
$475,000
Year Original Funding Received
2004

Contact Information


Kelli Rice, Project Director
New Jersey Department of Human Services
Division of Developmental Disabilities
PO Box 726
Trenton, NJ 08625-0726
609-987-1922
kelli.rice@dhs.state.nj.us

Subcontractor(s)

Cindy Kaufman
The Center for Leadership and Quality
301-262-2956
tcbkauff@aol.com

Jeanne H. Wurmser, Ph.D.
Clinical Services Management, P.C.
732-706-7241
jwurmser@comcast.net

Michael Steinbruck
Elizabeth M. Boggs Center for Developmental Disabilities
732-235-9308
michael.steinbruck@umdnj.edu

Diane Conway, Executive Director
New Jersey Association of Community Providers
609-406-1400
njacp.main@verizon.net

Target Population(s)


Persons with developmental disabilities (DD).

Goals


Activities


Abstract


The New Jersey DDD has been serving developmentally disabled persons through the Community Care HCBS waiver, relying heavily on group homes and day habilitation programs as its primary service models. Since September 2002, DDD has been pursuing a broad program of system change and planning to expand choices with a community-based, self-directed services option called "Real Life Choices," which uses an objective assessment to allocate an individual budget based on support needs and a person-centered planning model built on Essential Lifestyle Planning to assist participants to purchase supports they choose to achieve desired personal outcomes. DDD has expanded the array of supports for individuals living at home and added resources for participants transitioning from special education.

The current DDD QA/QI program for the Division began in 2001 with the creation of an Assistant Director position in the central office to oversee and coordinate quality enhancement activities and the development of a QA/QI staff. The quality program has been involved in planning QM systems for Real Life Choices, helping to develop a new model for the plan of care.

However, the quality program has been hampered by several barriers, including (1) the language and models of facility-based services that dominate the culture of most DDD staff and providers, (2) QA/QI activities that are fragmented and rely on paper systems for data collection and analysis, and (3) a need for broader family and participant involvement in QM. This grant project aims to upgrade the QA/QI system in a manner consistent with the CMS HCBS Quality Framework by changing the existing culture to support person-centered community-based service models, instituting an integrated QM system supported by browser-based data management, and revamping the existing Quality Improvement Steering Committee system to provide more consumer and family input.

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Quality Assurance and Quality Improvement in Home and Community Based Services

VERMONT

Grant Information


Name of Grantee
Agency of Human Services, Department of Disabilities, Aging, and Independent Living (DAIL)
Title of Grant
Quality Assurance and Quality Improvement in Home and Community Based Waiver Services
Type of Grant
Quality Assurance and Quality Improvement in Home and Community Based Services
Amount of Grant
$499,709
Year Original Funding Received
2004

Contact Information


Stephen Morabito
Quality Management Development Specialist
802-241-2659
Stephen.Morabito@dail.state.vt.us

Joseph Carlomagno
Quality Management Unit Director
Agency of Human Services, DAIL, DDAS
Weeks Building, 103 South Main Street
Waterbury, VT 05671
802-241-2721
joe.carlomagno@dail.state.vt.us

Subcontractor(s)

Susan Yuan
University of Vermont
Center on Disability and Community Inclusion
The University Center for Excellence in Developmental Disabilities Education, Research, and Service (UCEDD)
802-656-4031
susan.yuan@uvm.edu

Green Mountain Self-Advocates
802-229-2600
gmsa@sover.net

Target Population(s)


Persons with disabilities who are eligible for Home and Community-Based Services (HCBS) waivers within the Department of Disabilities, Aging, and Independent Living (DAIL).

Goals


Activities


Abstract


The grant project will develop a comprehensive quality management system across the HCBS waivers within DAIL. This system will be based on the expectations contained in the CMS Quality Framework. These home and community services are provided to individuals with developmental disabilities, elders, individuals with physical disabilities, and individuals with traumatic brain injuries.

The goals of the project are to effect enduring systems change that fulfills Vermont's commitment to ensure the health and well-being of individuals receiving an HCBS waiver within Vermont's community-based, long-term care system.

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Integrating Long-Term Supports with Affordable Housing

ARKANSAS

Grant Information


Name of Grantee
Department of Human Services, Division of Aging and Adult Services (DAAS)
Title of Grant
Affordable Housing with Long-Term Supports
Type of Grant
Integrating Long-Term Supports with Affordable Housing
Amount of Grant
$900,000
Year Original Funding Received
2004

Contact Information


Kris Baldwin
Program Administrator, DAAS
PO Box 1437-S530
Little Rock, AR 72203-1437
501-682-8509
kris.baldwin@arkansas.gov

Subcontractor(s)

NCB Development Corporation (NCBDC)

University of Arkansas at Fayetteville
School of Architecture

Target Population(s)


All persons who are currently residents of nursing facilities and those at risk of nursing facility placement.

Goals


Activities


Abstract


The overall goals of this project being administered by the Division of Aging and Adult Services (DAAS) under the Arkansas Department of Human Services will be to (1) partner with persons with disabilities of all ages and other stakeholders in a workgroup to identify current and innovative models of AHLTS, create a short-term and a 10-year plan to meet Arkansas's needs, and implement the plan; (2) conduct a county-level needs and resource analysis for community-based care options to direct state activities and provide planning estimates; (3) address the immediate need for affordable AFC and assisted living options by implementing and modifying policy, program, and development infrastructure to facilitate their creation; (4) create universal design standards for state implementation to promote housing accessibility statewide; (5) provide financial and development tools (including universal design standards), technical assistance, and financing to create and help replicate demonstration projects; (6) provide training and dissemination on grant activities to consumers, providers, developers, and state staff to transfer knowledge and create sustainable capacity; and (7) develop and maintain a housing registry to facilitate linkages to community-based sheltering arrangements.

Some of the major outcomes include meaningful consumer involvement in state planning efforts leading to improvement in consumer satisfaction; development of state infrastructure to support innovative settings offering high levels of care that are sustainable, easily integrated into neighborhoods, and viable in small, rural markets; formulation of efficient business models to foster the rapid development of these innovative models; and implementation of development financing, demonstration projects, and an affordable supportive housing registry to promote access to a wide variety of community-based options.

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Integrating Long-Term Supports with Affordable Housing

DISTRICT OF COLUMBIA

Grant Information


Name of Grantee
District of Columbia Department of Mental Health
Title of Grant
Building Capacity to Integrate Access to Housing Supporting Home Ownership in DC's Medicaid Programs Serving Individuals with Mental Illness, Mental Retardation and Developmental Disabilities
Type of Grant
Integrating Long-Term Supports with Affordable Housing
Amount of Grant
$812,004
Year Original Funding Received
2004

Contact Information


Juanita Reaves, Director
Adult Services Division
64 New York Avenue NE, 4th floor
Washington, DC 20002
202-673-7597
juanita.reaves@dc.gov

Subcontractor(s)

HCBS Strategies and Marialice Williams

Target Population(s)


Persons dually diagnosed with mental illness and mental retardation/developmental disabilities (MR/DD) and youth with severe mental illness that are transitioning from foster care.

Goals


Activities


Abstract


The Department of Mental Health (DMH) will establish a mechanism to link an application for mental health services funded under the District's Mental Health Rehabilitation Services with an application for housing from the DC Housing Authority. DMH will also work to remove the barriers in current regulations regarding shared housing.

The grant will involve two parallel pilot demonstration programs. DMH has entered into an agreement with the DC Housing Finance Agency that has resulted in the identification of a substantial number of housing units that can be used for this effort. The addition of identified housing units greatly increases the likelihood that the proposed demonstrations will be successful. The two pilot demonstrations will function as follows:

For both these demonstrations, the grant will fund the following activities: (1) the recruitment of pilot participants, (2) the identification of the housing needs of the program participants, (3) the identification of housing, (4) the payment of costs associated with transitioning to an independent housing option, and (5) the establishment of mechanisms that will allow the pilot program participants to own their homes.

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Integrating Long-Term Supports with Affordable Housing

MISSISSIPPI

Grant Information


Name of Grantee
The University of Southern Mississippi, Institute for Disability Studies
Title of Grant
Project BRIDGE
Type of Grant
Integrating Long-Term Supports with Affordable Housing
Amount of Grant
$720,000
Year Original Funding Received
2004

Contact Information


Royal Walker, Jr., J.D.
Associate Director and Project Director
601-432-6261
rwalker@ihl.state.ms.us

Alma Ellis, Project Coordinator
3825 Ridgewood Road, Suite 723
Jackson, MS 39211
601-432-6975
aellis@ihl.state.ms.us

Subcontractor(s)

None.

Target Population(s)


Medicaid-eligible individuals with disabilities and/or long-term illnesses requiring long-term supports and housing services.

Goals


Activities


Abstract


The Institute for Disability Studies (IDS), Mississippi's University Center for Excellence located at the University of Southern Mississippi, has been endorsed by the Executive Director of the Governor's Office, Division of Medicaid for the State of Mississippi as the lead agency for the Real Choice Systems Change Grant in the area of integrating long-term supports with affordable housing. IDS will work with the Division of Medicaid and other key stakeholders, including Medicaid-eligible individuals with disabilities (and their families) requiring long-term supports who want to live in their community in the housing arrangement of their choice.

Project BRIDGE is designed to prepare consumers and other key stakeholders to set an agenda through the development of a comprehensive plan for systems change resulting in the building of an infrastructure that integrates and coordinates long-term supports and housing services.

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Integrating Long-Term Supports with Affordable Housing

NEW HAMPSHIRE

Grant Information


Name of Grantee
University of New Hampshire, Institute on Disability
Title of Grant
Home Care Connections
Type of Grant
Integrating Long-Term Supports with Affordable Housing
Amount of Grant
$899,954
Year Original Funding Received
2004

Contact Information


Jan Nisbet, Project Director
University of New Hampshire
10 West Edge Drive, Suite 101
Durham, NH 03824
603-862-4320
jan.nisbet@unh.edu

Linda Bimbo, Project Coordinator
(contact for all reports, conferences, and grant-specific information)
UNH/Institute on Disability
56 Old Suncook Road, Suite 2
Concord, NH 03301
603-228-2084
lbimbo@unh.edu

Subcontractor(s)

David Frydman, Consultant
603-225-4610
dfrydman2003@yahoo.com

Jill Burke, LTC Coordinator
Granite State Independent Living
603-228-9680
jill.burke@gsil.org

Keith Miles, Evaluation Consultant
NH-Dartmouth Psychiatric Research Center
603-271-8345
Keith.M.Miles@Dartmouth.edu

Beverly Bolduc, Housing Specialist
Genesis Behavioral Health
603-393-7747

Target Population(s)


Older adults with disabilities who are Medicaid-eligible, especially those with mental illness/ dementia/Alzheimer's disease.

Goals


Activities


Abstract


The overall goal of the project is to develop a system that encourages and fosters the collaboration and cooperation of existing housing and support networks. An infrastructure will be established that represents two levels of input and collaboration-one for resource and policy development and a second to coordinate hands-on delivery of services. Both should reflect the ethnic and cultural diversity of the community. The process will include six key areas:

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Integrating Long-Term Supports with Affordable Housing

NORTH CAROLINA

Grant Information


Name of Grantee
North Carolina Department of Health and Human Services (DHHS)
Title of Grant
Integrating Long-Term Supports with Affordable Housing in North Carolina
Type of Grant
Integrating Long-Term Supports with Affordable Housing
Amount of Grant
$775,123
Year Original Funding Received
2004

Contact Information


Julia Bick, Housing Coordinator
919-733-4534
julia.bick@ncmail.net

Tara Peele
NC DHHS
2001 Mail Service Center
Raleigh, NC 26699-2001
919-733-4534
tara.peele@ncmail.net

Subcontractor(s)

School of Government (formerly Institute of Government), University of North Carolina at Chapel Hill

Center for Urban and Regional Studies, University of North Carolina at Chapel Hill

NC Housing Coalition, Raleigh, NC

NC Justice and Community Development Center, Raleigh, NC

Target Population(s)


Low-income adults with disabilities and long-term illnesses who would benefit from access to supportive housing.

Goals


Activities


Abstract


DHHS will partner with the NC Housing Finance Agency (HFA) to work with consumers, housing providers, and local service providers to build infrastructure between the affordable housing system and the human services system to integrate long-term supports with affordable housing by accomplishing the following goals:

The grant project will help the State bring needed staff capacity to local communities to organize a collective response to the LIHTC opportunity and expand the housing knowledge and capacity of the local human services system. At the end of the grant, local cross-agency Housing Support Committees will be working in local communities to ensure that persons with disabilities have access to the LIHTC units and to services they may need to live successfully in the community. Housing needs of persons with disabilities will be documented and represented in local and state affordable housing activity. The demonstration rental subsidy program will provide assistance to qualified tenants, and its findings will be documented. In addition, a minimum of 45 individuals will have successfully transitioned from institutional settings to affordable housing in the community.

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Integrating Long-Term Supports with Affordable Housing

OREGON

Grant Information


Name of Grantee
State of Oregon Department of Human Services (DHS)
Title of Grant
Expanding Housing and Supports for Oregonians
Type of Grant
Integrating Long-Term Supports with Affordable Housing
Amount of Grant
$828,232
Year Original Funding Received
2004
Expected Completion Date
September 2008

Contact Information


Mr. Gerald Stolp, Project Co-Director
DHS, Seniors and People with Disabilities
500 Summer Street, NE, E-10
503-945-9785
gerald.stolp@state.or.us

Ms. Vicki Skryha, Project Co-Director
DHS, Office of Mental Health and Addiction Services
500 Summer Street, NE, E-86
503-945-9722
vicki.skryha@state.or.us

Ms. Joyce Phelps, Assistive Technology Specialist
DHS, Seniors and People with Disabilities
500 Summer Street, NE, E-12
503-945-6742
joyce.l.phelps@state.or.us

Ms. Terry N. Mastin
Housing Supp. Ref. Specialist
DHS, Office of Mental Health and Addiction Services
500 Summer Street, NE, E-86
Salem, OR 97301-1118
503-945-6722
terry.n.mastin@state.or.us

Subcontractor(s)

Tom Keating, Institute Director
Eugene Research Institute (ERI)
99 West 10th, Suite 395
Eugene, OR 97401
541-342-3763

Target Population(s)


Medicaid-eligible individuals of all ages with physical, developmental, and psychiatric disabilities.

Goals


Activities


Abstract


Over the years, Oregon has exhibited leadership in providing community-based services to Medicaid-eligible people with disabilities. Oregon's achievements in implementing assisted living for seniors are well recognized. Similar shifts to community-based care for people with developmental and psychiatric disabilities have occurred, and impressive partnerships among service and housing providers are well established. However, there is a need for infrastructure mechanisms that incorporate both (1) systematic consideration of consumers' assistive technology needs in individual planning related to housing and long-term supports, and (2) avenues to effectively connect consumers, technical assistance providers, and property managers who implement long-term supports in housing.

Expanding Housing and Supports for Oregonians will implement infrastructure improvements to remove barriers that prevent people with physical, developmental, and psychiatric disabilities from residing in the community housing of their choice. The lead agency for the project is the Oregon Department of Human Services (DHS). DHS is the single state Medicaid agency and manages the State Section 1915(c) Home and Community-Based Services (HCBS) waiver and the Section 1115 Managed Care waiver. The project is a collaborative effort of two offices within DHS-the Office of Mental Health and Addiction Services (OMHAS) and Seniors and People with Disabilities (SPD)-which will bring people together on a cross-disability basis to formulate ways to integrate supports with housing. The Oregon Housing and Community Services (OHCS) Department will actively participate in the grant, and meaningful involvement by consumers and other key stakeholders will be ensured through the Stakeholders Coordinating Council.

Grant activities include completing analyses of existing and proposed resources and strategies, planning and implementing identified infrastructure changes, developing resource materials to support changes, providing training and technical assistance, and transitioning the grant accomplishments to insure sustainability. The successful systems reforms will be accompanied by modifications of service financing systems that reimburse desired services. Evaluation will include both ongoing formative evaluation throughout the project to ensure timely completion of project activities and summative evaluation of project impact and effectiveness.

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Integrating Long-Term Supports with Affordable Housing

PENNSYLVANIA

Grant Information


Name of Grantee
Governor's Office of Health Care Reform
Title of Grant
Integrating Long-Term Supports with Affordable Housing
Type of Grant
Integrating Long-Term Supports with Affordable Housing
Amount of Grant
$893,340
Year Original Funding Received
2004

Contact Information


Jennifer Burnett
Housing Grant Project Manager
Governor's Office of Health Care Reform
433 Forum Building
Harrisburg, PA 17120
717-346-9712
jenburnett@state.pa.us

Subcontractor(s)

Pennsylvania Housing Finance Agency

Diana T. Myers and Associates

Target Population(s)


Persons of all ages with disabilities.

Goals


Activities


Abstract


Pennsylvania is a large, populous state with the second highest percentage of elderly of any state. In 2003, 72 percent of Pennsylvania's long-term care Medicaid budget went to nursing homes, while Pennsylvanians rated nursing facilities as the last place they wanted to receive LTC services. In order to provide housing to support this preference, the State faces a number of challenges, the foremost being the lack of a statewide system to ensure coordination between LTC supports in the community and accessible, affordable housing. Other challenges include an inadequate supply of affordable and accessible housing, the lack of a single entity that systematically addresses the barriers people with LTC support needs face in finding accessible and affordable housing, and the lack of effective mechanisms to connect persons needing LTC supports with the accessible housing that exists. A statewide needs assessment of the amount, location, and rental subsidy needed to provide affordable, accessible housing in the State is also needed.

The State has begun to address these issues through Regional Housing Coordinators in five regions and Local Housing Options Teams in 18 locations helping to identify, develop, and facilitate access to housing options for people with disabilities. In addition, a state-funded nursing home transition program is already in operation. The grant project will extend these efforts into a statewide initiative by (1) creating state and local infrastructures to help link consumers of LTC supports to affordable, accessible housing options and eliminating the barriers that prevent them obtaining such housing; (2) working with public housing authority partners to expand the supply of affordable and accessible housing and to connect those units to nursing home transition and diversion project clients; (3) developing an inventory of Pennsylvania's publicly funded accessible housing, including a real-time listing of vacant, affordable, accessible housing; (4) performing a needs assessment of present and future accessible and affordable housing stock; and (5) developing a state strategic plan for the development of affordable, accessible housing for the next decade.

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Integrating Long-Term Supports with Affordable Housing

VERMONT

Grant Information


Name of Grantee
Agency for Human Services, Department of Disabilities, Aging and Independent Living (DAIL)
Title of Grant
Integrating Long-Term Supports with Affordable Housing
Type of Grant
Integrating Long-Term Supports with Affordable Housing
Amount of Grant
$900,000
Year Original Funding Received
2004

Contact Information


Mr. Richard H. Moffi, Project Director
Real Choices Supportive Housing
802-241-4612
richard.moffi@dail.state.vt.us

Ms. Joan Haslett*
Real Choice Systems Change Project Director
VT Department of Disabilities, Aging and Independent Living
103 South Main Street
Waterbury, VT 05671-1601
802-241-4529
joan.haslett@dail.state.vt.us
* PACE component of grant

Subcontractor(s)

Ms. Nancy Rockett Eldridge, Executive Director
Cathedral Square Corporation
308 Pine Street
Burlington, VT 05401
802-863-3868
eldridge@cathedralsquare.org

Ms. Naomi Clemmons, Project Manager
JSI Research & Training Institute, Inc.
47 Maple Street, Suite 103
Burlington, VT 05401
802-860-6670
nclemmons@jsi.com

Target Population(s)


Elders and adults with disabilities who require long-term supports coordinated with affordable and accessible housing and are dually eligible for Medicare and Medicaid.

Goals


Activities


Abstract


The Department of Disabilities, Aging and Independent Living (DAIL) has been designated by the Vermont Agency for Human Services and its state Medicaid Director to lead the grant project. DAIL is the state department charged with accomplishing the shift of nursing home resources to community services. Each of the grant project initiatives is strongly supported by public/private partnerships and will benefit from the guidance and technical assistance of a workgroup that shall include partners, stakeholders, and consumers.

DAIL has contracted with CSC, as lead developer, management, and operations consultant to the housing network, regarding elders and adults with disabilities and will work with community housing partners including the Vermonters Coming Home partnership.

JSI Research & Training Institute has been retained by DAIL to research, analyze, recommend, help establish, and evaluate medication assistance best practices to be implemented within unlicensed congregate housing to support aging in place and consumer satisfaction for residents of those settings.

Vermont PACE will lead focus groups with seniors to evaluate proposals that plan for two PACE sites that will coordinate services with supportive housing to meet later, high care needs.

The grant project's measurable outcomes include (1) the number of housing sites and Medicaid beneficiaries assisted (and potentially assisted); (2) a public housing agency plan for a first demonstration of affordable assisted living in public housing; (3) adoption by the State of medication assistance best practices in unlicensed housing sites; (4) consumer satisfaction with the suggested best practices; (5) provider satisfaction that they have the knowledge, skills, and coordination with others to do their part to support medication assistance; and (6) feasibility studies for two sites completed by PACE.

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Rebalancing Initiative

ILLINOIS

Grant Information


Name of Grantee
Illinois Department of Aging
Title of Grant
Illinois' Initiatives to Increase Community Services for Frail Elderly
Type of Grant
Rebalancing Initiative
Amount of Grant
$300,000
Year Original Funding Received
2004

Contact Information


Michael Gelder, Deputy Director
Illinois Department on Aging
160 N. LaSalle Street, 7 North
Chicago, IL 60601
312-814-4179
michael.gelder@illinois.gov

Subcontractor(s)

University of Illinois at Chicago, Institute for Disability and Human Development

Target Population(s)


Seniors residing in nursing facilities who are eligible to reintegrate back into the community, seniors wanting to remain in the community but need additional support, and caregivers in need of information or services in order to help the senior remain in the community.

Goals


Activities


Abstract


The Illinois Department on Aging is leading the Rebalancing Initiative to address the planning capacity needs associated with designing a framework for the retooling of Illinois' LTC system. This will enable elderly nursing facility residents the opportunity to choose to return to their homes and communities.

Illinois' seniors have identified that the inaccessibility of some services hinders their ability to remain in their homes or transition from nursing facilities. Seniors and their caregivers have also indicated that obtaining information regarding service availability is difficult and confusing.

Illinois' existing provider network provides a strong foundation and community presence to implement LTC reform. The additional tools and resources developed through this initiative will enhance Illinois' capacity to develop a community reintegration program for the frail elderly. In addition, the project will create an effective quality assurance and improvement framework for evaluation and monitoring of the program.

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Rebalancing Initiative

LOUISIANA

Grant Information


Name of Grantee
Louisiana Department of Health and Hospitals
Title of Grant
Louisiana Department of Health and Hospitals Real Choice Rebalancing Initiative
Type of Grant
Rebalancing Initiative
Amount of Grant
$300,000
Year Original Funding Received
2004

Contact Information


Kathy Kliebert, Assistant Secretary
225-342-0095
kklieber@dhh.la.gov

Amy Bamburg, Project Director
Office for Citizens with Developmental Disabilities
Louisiana Department of Health and Hospitals
628 N. 4th Street, 2nd Floor, Bienville Building
Baton Rouge, LA 70802
318-641-2098
abamburg@dhh.la.gov

Subcontractor(s)

Oregon Technical Assistance Corporation
3886 Beverly Avenue NE, Building 1, Suite 21
Salem, OR 97305

Target Population(s)


People with developmental disabilities living in Intermediate Care Facilities for the Mentally Retarded (ICFs/MR) with 16 or more beds.

Goals


Activities


Abstract


The purpose of the grant project is to develop a comprehensive plan that addresses the pattern of need for people with developmental disabilities to transition from large ICFs/MR to the community-based living options.

To accomplish this goal, the project will establish an Advisory Board comprising people with developmental disabilities and their families, advocates, professionals who provide supports and services, public and private policymakers, and others to steer the project. In collaboration with the Advisory Board, Regional Workgroups comprising people with developmental disabilities and their families, case managers, advocates, agency personnel, and others will examine the needs of consumers who wish to transition. The Regional Workgroups will also examine the pattern of needs exhibited by consumers and establish an action plan to obtain community services and supports for individuals wishing to transition to the community.

A consultant experienced in transition issues will be hired to assist with the development of the statewide transition plan. The consultant will work with Regional Workgroups and the Advisory Board to develop an ongoing system of supports that is based on best practices and provides increased, high quality community-based living options. The consultant will provide assistance in the implementation of these newly established practices to Department of Health and Hospital staff, consumers, advocates, and other stakeholders.

The grant will fund the development and implementation of both a guide to transition for people living in large ICFs/MR facilities and an accompanying community resource guide to adequately equip consumers and providers with the information necessary to ensure that consumers with developmental disabilities can control and direct their own services and supports in a way that enhances their participation, choice, and autonomy in community living.

The project intends to transition 10 percent of the number of persons with developmental disabilities currently living in large institutional settings. Additional measurable outcomes include a quality framework to accompany the comprehensive transition plan and increased local resources to provide transition services and community supports.

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Rebalancing Initiative

MISSISSIPPI

Grant Information


Name of Grantee
Mississippi Department of Mental Health
Title of Grant
Mississippi Statewide Coordinated Transportation System
Type of Grant
Rebalancing Initiative
Amount of Grant
$282,700
Year Original Funding Received
2004

Contact Information


Matt Armstrong, Director
MS Department of Mental Health
Division of Community Services
601-359-1288
matt.armstrong@dmh.state.ms.us

Jake Hutchins, MSW
Division of Community Services, DMH
239 North Lamar Street, Suite 1101
Jackson, MS 39201
601-359-1288
jake.hutchins@dmh.state.ms.us

Subcontractor(s)

Community Mental Health Centers in Region 4, Corinth, MS (North) and Region 15, Vicksburg, MS (Central)

Jan Larsen
Global Strategies Incorporated

Target Population(s)


Adults, adolescents, and parents of children with disabilities.

Goals


Activities


Abstract


The Mississippi Department of Mental Health, in partnership with the Mississippi Division of Medicaid and other consumer and stakeholder organizations, will develop a plan for the design and implementation of a system of statewide, coordinated transportation services for adults and children of all ages with a disability. This system will provide accessibility by these persons to long-term support services anywhere in the State. This comprehensive accessibility to community-based services will give them a full range of noninstitutional options for care based on service choices they make for themselves.

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Rebalancing Initiative

NORTH CAROLINA

Grant Information


Name of Grantee
North Carolina Department of Health and Human Services
Title of Grant
Rebalancing Project
Type of Grant
Rebalancing Initiative
Amount of Grant
$249,500
Year Original Funding Received
2004

Contact Information


Carol G. Potter, Project Director
NC Division of Vocational Rehabilitation Services (DVRS)
Community Services Section
2801 Mail Service Center
Raleigh, NC 27699-2801
919-855-3594
carol.potter@ncmail.net

Subcontractor(s)

William Lamb
UNC Institute on Aging
919-966-9444

Marian Hartman, Project Coordinator

Target Population(s)


Medicaid-eligible adults with significant physical disabilities who have applied for admission to, are waiting to enter, or reside in institutions such as nursing homes.

Goals


Activities


Abstract


The North Carolina Department of Health and Human Services (DHHS) will develop a targeted rebalancing plan to prevent and correct inappropriate placements of adults with significant physical disabilities. The project will target those Medicaid-eligible adults with significant physical disabilities who have applied for admission to, are waiting to enter, or reside in institutions such as nursing homes.

The Rebalancing and 5-year Implementation Plans will describe the target population, the nature of the diversion/institutionalization services, the role of key stakeholders, the policies and procedures governing service priorities, and the schedule of events. The project will be implemented based on input from a broadly based local Rebalancing Team consisting of consumers, state and local agency representatives, and service providers. Its work will be reviewed by the DHHS Long-Term Care Cabinet headed by the DHHS Assistant Secretary for Long-Term Care and Family Services.

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Rebalancing Initiative

NORTH DAKOTA

Grant Information


Name of Grantee
North Dakota Department of Human Services
Title of Grant
Choice and Self-Directed Community Resource Delivery for the Elderly and People with Disabilities in North Dakota
Type of Grant
Rebalancing Initiative
Amount of Grant
$300,000
Year Original Funding Received
2004

Contact Information


Linda Wright
ND Department of Human Services
600 E. Boulevard Avenue, Department 325
Bismarck, ND 58505-0250
701-328-4607
sowril@nd.gov

Subcontractor(s)

Amy Armstrong, Project Director
Minot State University
North Dakota Center for Persons with Disabilities
500 University Avenue West
Minot, ND 58707
701-858-3578
amy.armstrong@minotstateu.edu

Target Population(s)


Persons who are elderly (60+) and adults with disabilities.

Goals


Activities


Abstract


The Rebalancing Initiative Grant project will improve community-integrated services by providing a forum for all constituencies to participate in a new mechanism for funding home and community services, and by providing full consultation with consumers and stakeholders in building a lasting agreement on the direction of LTC services in the State. The project will also enhance coordination of all LTC services through a single point of entry for home and community services and institutional services.

The stakeholder consultation process will develop a "roadmap" or strategic plan for the development and implementation of a single point of entry, and direction and recommendations for continued efforts to balance the system of LTC services in the State. In addition, incentives will be considered for enabling and supporting the leadership of the existing infrastructure of nursing homes to participate in providing home and community services. The grant project will also conduct research regarding choice and access to all LTC services in North Dakota and disseminate these findings statewide. This research information, along with past studies and best practices, will be used to guide the development of a single point of entry and the rebalancing initiative roadmap.

The stakeholder consultation process will produce a comprehensive set of legislative proposal(s) for consideration in the 2007 session of the North Dakota Legislative Assembly. These proposals will provide clear mandates and the financial support for their implementation.

The development of public information services through the grant project will strengthen the current trend in public thinking toward rebalancing resources for institutional and home and community services, and can provide the foundation for future significant initiatives for rebalancing. The Department of Human Services is committed to seeking appropriate Medicaid waivers to support implementation of the recommendations that are identified in the Stakeholder Consultation Process and to ensure sustainability of the initiative.

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Rebalancing Initiative

TENNESSEE

Grant Information


Name of Grantee
Tennessee Department of Finance and Administration's Bureau of TennCare
Title of Grant
Improving Access to Community-Based Care with a New Comprehensive Client Assessment Instrument
Type of Grant
Rebalancing Initiative
Amount of Grant
$291,382
Year Original Funding Received
2004

Contact Information


Pat Santel, Director
615-507-6777
Pat.A.Santel@state.tn.us

Brooke Boswell, Project Manger
615-507-6998
Brooke.L.Boswell@state.tn.us

Sharon Peters, Project Director
Division of LTC
Bureau of TennCare
Department of Finance & Administration
310 Great Circle Road
Nashville, TN 37243
615-507-6984
Sharon.a.peters@state.tn.us

Subcontractor(s)

Pacific Health (Andy Cohen)-Health care consulting firm

Target Population(s)


Medicaid-eligible, long-term care applicants and recipients who qualify for nursing home admission and who would be served typically in Level 1 nursing facilities.

Goals


Activities


Abstract


The goal of the project is to improve client access to community-based care by implementing a new comprehensive client assessment instrument and process. Tennessee needs a comprehensive assessment instrument and process, designed for facility and community-based care, which supports consumer choice. Such an instrument could help consumers make more informed choices, make the process more predictable for providers, improve the operation of the evolving long-term care system, and allow the system to function in a more fiscally responsible and accountable manner.

A new comprehensive client assessment instrument and process will (1) be more objective, (2) help consumers identify the program that best meets their needs, (3) be more respectful of applicants' time, and (4) reduce the financial risk of providers by providing more timely decisions. Faster eligibility determination will increase the likelihood of appropriate community-based placement, while a future computer-based comprehensive client assessment instrument will provide administrators with a broader scope of information to more efficiently manage programs and quality.

This project consists of five primary activities: (1) project start-up; (2) needs assessment, comprehensive client assessment instrument selection, and parallel testing to calibrate the instrument; (3) regulatory approval; (4) statewide implementation; and (5) operations monitoring, evaluation, and reporting. Several intermediate products will be produced by the grant project. A requirements report will be produced from the needs assessment activity, a new comprehensive client assessment instrument will be selected, and a process will be defined. Parallel (new instrument compared to current instrument) test results will be used to create a final comprehensive client assessment instrument, and rules approval will lead to statewide implementation of the new instrument and process.

With the overall goal of improving access to community-based care, the State expects to produce the following outcomes: (1) improve access to services, resulting in a decrease in eligibility decision time from 7 days to 1 to 2 days; (2) improve client choice of services, resulting in a higher proportion of consumers choosing and being served in community-based care; (3) rebalance long-term care expenditures, resulting in expenditures growing less rapidly as clients are served in lower-cost settings; and (4) improve public accountability through more objective, reliable, and consistent long-term care admission criteria.

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Rebalancing Initiative

VIRGINIA

Grant Information


Name of Grantee
Partnership for People with Disabilities, Virginia Commonwealth University
Title of Grant
Increasing Person-Centered Planning, Informed Choice and Self-Direction
Type of Grant
Rebalancing Initiative
Amount of Grant
$300,000
Year Original Funding Received
2004

Contact Information


Tera Yoder, Project Director
Partnership for People with Disabilities
Virginia Commonwealth University
PO Box 843020
Richmond, VA 23284-3020
804-828-3879
tyoder@vcu.edu

Subcontractor(s)

None.

Target Population(s)


Individuals with intellectual disabilities, as well as individuals with other developmental and physical disabilities who may also benefit from materials being developed.

Goals


Activities


Abstract


The Rebalancing Initiative will build the infrastructure to allow individuals with disabilities to plan, select, and manage their own services by focusing its work strategies in two areas that will increase access to and the availability and diversity of home and community-based long-term services and supports. The first area involves the design, development, and piloting of materials and processes in selected pilot localities to increase the use of person-centered thinking, planning, and services for individuals who are targeted to receive new waiver slots, including the development of resources that explore multiple options for support. A subset of the materials will be designed with a specialized focus on person-centered discharge planning for individuals transitioning from state training centers and who are targeted to receive new waiver slots.

The second area examines mechanisms and strategies for determining how additional services can become consumer-directed in the State's current waiver programs. This is a step toward greater self direction of key supports and will benefit all waiver recipients, including those leaving institutions. The selected areas have the potential to expand community options for supports and shift the balance in the State by focusing on the individual's preferences and choices rather than on the service systems' programs and requirements.

Several products will be developed as part of the project. These include (1) local systems change process and materials that organize person-centered thinking, planning, and services in formats useful for individuals, family members, case managers, providers, and other supporters; (2) resource documents that explain informed and meaningful choices and provide an array of options for community support and service possibilities; (3) a report that describes the pilot demonstration, including methods, findings, and results; (4) a report listing the findings of research from other states and outlining additional prospective consumer-directed services and definitions for services; (5) a rebalancing plan to be submitted to key state agencies and leaders; and (6) an implementation plan that addresses how the State can integrate and continue the work of this initiative, including how these efforts will eventually become a part of a greater reform effort.

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Portals from EPSDT to Adult Supports

DISTRICT OF COLUMBIA

Grant Information


Name of Grantee
District of Columbia, Department of Mental Health (DMH)
Title of Grant
Supporting Transitions for EPSDT Eligible Children in Foster Care with Mental Health Disorders in the District of Columbia
Type of Grant
Portals from EPSDT to Adult Supports
Amount of Grant
$499,649
Year Original Funding Received
2004

Contact Information


Shauna Spencer, Project Director
202-673-4443
Shauna.Spencer@dc.gov

Joyce White, Project Coordinator
Department of Mental Health
Child and Youth Services Division
64 New York Avenue, NE, 4th Floor
Washington, DC 20002
202-671-4035
Joyce.White@dc.gov

Subcontractor(s)

Irene Jillson
Georgetown University
School of Nursing and Health Studies
202-687-1312
iaj@georgetown.edu

Steven Lutzky, President
HCBS Strategies, Inc.
202-558-2176
Steve@hcbs.org

Target Population(s)


Children in foster care with mental health issues, who are transitioning into adult mental health care.

Goals


Activities


Abstract


The roughly 3,000 children in foster care in the District are at high risk of having mental health disorders. The District currently lacks mechanisms to assist these children to receive the supportive services they need as they age out of the foster care system. If these children do not receive mental health supports, they are dramatically more likely to experience homelessness, substance abuse, and criminal behavior. Although the District has made strides in improving mental health services for EPSDT-eligible children in foster care, the system is complex and lacks linkages to mental health services offered under the Medicaid Rehabilitation Option, locally known as Mental Health Rehabilitation Services (MHRS).

The Department of Mental Health (DMH) has worked closely with Children and Family Services Administration (CFSA) to redesign services to children in foster care and improve pathways for these children to access services as they age out of the program. Both agencies have recognized the pivotal role played by Medicaid in this endeavor. The grant will further this work toward reviewing current regulations and program operations for Medicaid-funded mental health services to improve coordination across the range of services and ensure that as foster care children with mental health disorders age out of the system, they are still able to access the supportive services they need.

Grant funds will be used to hire District staff to conduct much of the work of this initiative. Georgetown University will supply policy and programmatic guidance and will conduct a process evaluation of this major systems change effort. This grant represents the strong collaboration that has been formed as a result of CINGS (Children Inspired Now Gain Strength), the District's System of Care initiative being implemented by DMH, CFSA, Medical Assistance Administration (MAA), and other partner agencies. This collaboration among District government agencies, with strong consumer input, has made it possible to have dramatic and sustainable improvements in Medicaid services for foster care children with mental health disorders.

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Portals from EPSDT to Adult Supports

NEBRASKA

Grant Information


Name of Grantee
Nebraska Department of Health and Human Services
Title of Grant
Portals from EPSDT to Adult Supports
Type of Grant
Portals from EPSDT to Adult Supports
Amount of Grant
$500,000
Year Original Funding Received
2004

Contact Information


Sharon J. Johnson, Grant Coordinator
402-471-1764
sharon.j.johnson@hhss.ne.gov

Mary Jo Iwan, Administrator
Aging and Disability
301 Centennial Mall South, 5th Floor
Lincoln, NE 68509-5026
402-471-9345
maryjo.iwan@hhss.ne.gov

Subcontractor(s)

Dr. Brad Schaefer
University of Nebraska Medical Center Munroe-Meyer Institute
402-559-6800
gbschaef@unmc.edu

The Parent Training Institute will be a subcontractor under the UNMC-MMI subcontract.

Christine Reed
402-556-5509
breed@mitec.net

Family Voices
800-284-8520

Easter Seals Nebraska
800-471-6425
bkoehler@ne.easterseals.com

Target Population(s)


SSI-eligible youth with physical disabilities or medically complex health needs receiving services from the Aged and Disabled waiver, youth served through the Medically Handicapped Children's Program and SSI-Disabled Children's Program, and parents of these youth.

Goals


Activities


Abstract


The Nebraska Health and Human Services System (NHHSS) will develop a transition project for young adults with disabilities with the ultimate goal of improving access to adult-focused tertiary and specialized medical care for SSI-eligible youth transitioning from early and periodic screening, diagnosis, and treatment (EPSDT) to adulthood.

In Nebraska, the Home and Community-Based Aged and Disabled Medicaid waiver is a lifespan waiver, serving children age 0 to 18, adults age 19 to 64, and elderly persons age 65 and above, with services coordination provided to eligible persons by a different provider for each of the categories described above. For children and youth through age 18, services coordination is provided internally by the Nebraska Department of Health and Human Services, which has local offices around the State. For adults through age 64, services coordination is contractually provided by two regional Centers for Independent Living. Grant activities are focused on the transition between services for these two age groups.

Partners that will work with NHHSS on the project include Nebraska's Medicaid staff working with EPSDT, administrators and staff of the Aged and Disabled waiver, Centers for Independent Living, the University of Nebraska Medical Center Munroe-Meyer Institute, Creighton University, Easter Seals of Nebraska, the Nebraska Department of Education Vocational Rehabilitation Program and Special Education Program, the Social Security Administration, and the North Platte Public Schools.

An infrastructure of training, clinics, and assessment will be developed through this grant that will be sustained as a result of the investment of these partners, creating measurable improvements in the lives of the young adults who will receive their services. Consumers and their families, pediatric specialists and general practitioners, and other relevant youth-serving programs will all be impacted by sustainable changes that will ultimately result in better, more cost-effective care and a higher quality service system for adults with disabilities.

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Comprehensive Systems Reform

VERMONT

Grant Information


Name of Grantee
State of Vermont
Title of Grant
Vermont Real Choice Systems Change Comprehensive Systems Reform
Type of Grant
Comprehensive Systems Reform
Amount of Grant
$2,089,863
Year Original Funding Received
2004

Contact Information


Ms. Joan Haslett, Project Director
Department of Disabilities, Aging and Independent Living
103 South Main Street
Waterbury, VT 05671-1601
802-241-4529
joan.haslett@dail.state.vt.us

Subcontractor(s)

To be determined.

Target Population(s)


Frail, vulnerable, and chronically ill elderly and physically disabled adults.

Goals


Activities


Abstract


Under the umbrella of Vermont's Agency of Human Services, the Office of Vermont Health Access and the Department of Disabilities, Aging and Independent Living will collaborate to redesign a system in Vermont to coordinate both primary/acute and long-term care services for elderly and physically disabled adults. A commitment to integrated care is the starting place for the reform. Separation between health care and long-term support systems and the discontinuity across service delivery settings and providers will guide the development of the reform. The State will build upon the lessons learned from the Vermont Independence Project's Care Partners program (e.g., physical co-location of case management in a primary care setting) and the planning for the Program for All-Inclusive Care for Elderly (e.g., coordinated care delivery at an adult day/health care clinic by an interdisciplinary team).

To address identified problems, the project will undertake strategies to integrate funding streams for Medicaid, commercial health insurance, and Medicare; develop a community advisory committee, including consumers and other stakeholders, to develop policies and procedures; and use an interdisciplinary team to manage the long-term care and health care needs of adults with physical disabilities, chronic illnesses, and challenging life issues.

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Comprehensive Systems Reform

WISCONSIN

Grant Information


Name of Grantee
Wisconsin Department of Health and Family Services
Title of Grant
Comprehensive Systems Reform Effort
Type of Grant
Comprehensive Systems Reform
Amount of Grant
$5,500,000
Year Original Funding Received
2004

Contact Information


Kathleen Luedtke, Project Director
Wisconsin Department of Health and Family Services
1 West Wilson, Room 850
PO Box 7851
Madison, WI 53707-7851
608-267-4896
luedtka@dhfs.state.wi.us

Subcontractor(s)

Amie Goldman
APS Healthcare, Inc.
608-258-3350
agoldman@apshealthcare.com

Mark A. Sager, M.D.
Wisconsin Alzheimer's Institute
608-829-3300
masager@wisc.edu

Mary Britnall-Peterson, Ph.D.
University of Wisconsin-Cooperative Extension
608-262-8083
mary.britnall-peterson@uwex.edu

Target Population(s)


Older adults and persons with disabilities who are Medicaid eligible.

Goals


Activities


Abstract


The Comprehensive Systems Reform Effort project will plan for, design, and begin to implement reform activities during the 3-year grant period. The Department of Health and Family Services and its partners will develop a strategic implementation plan to utilize the learning and key principles from Family Care and Partnership managed care programs statewide and address key barriers to statewide reform. In the reformed system, (1) LTC funding will be available without a bias in favor of institutional care, (2) community resources and LTC options will be developed to respond to consumer choices and managed for cost-effectiveness, and (3) system management tools that have been developed in Family Care and Partnership pilots will be put into use in regionally and locally developed implementation plans.

Major products and outcomes include

Note: This Compendium form was not reviewed by the Grantee prior to publication.

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Family-to-Family Health Care Information and Education Centers

ARIZONA

Grant Information


Name of Grantee
Raising Special Kids
Title of Grant
Family-to-Family Health Care Information and Education Center
Type of Grant
Family-to-Family Health Care Information and Education Centers
Amount of Grant
$150,000
Year Original Funding Received
2004

Contact Information


Joyce Millard-Hoie, Executive Director
2400 N. Central Avenue, #200
Phoenix, AZ 85004
602-242-4366
joycem@raisingspecialkids.org

Wendy Benz, Project Coordinator
480-329-0404
wendydb@raisingspecialkids.org

Subcontractor(s)

None.

Target Population(s)


Children and youth with special health care needs and their families.

Goals


Activities


Abstract


The primary goals of this project are (1) to create a coordinated Family-to-Family information system that will support children and youth with special health care needs and their families and (2) to bring about enduring improvements in understanding and access to community resources and systems of care.

The project will focus on activities to meet families' need for information and education about a wide range of issues related to their children's health needs. It will also provide skills training to (1) enable families to become effective participants in advocacy and community development activities and (2) improve communication among parents, youth with disabilities, and health professionals.

Other grant initiatives will focus on (1) expanding relationships between state agencies, parent organizations, and local community groups to provide information, education, and support to families in rural and other underserved areas and (2) educating health care professionals about Family-to Family supports and referral systems.

Grant funds will be used to assess the effectiveness of education and training methods. The Grantee will partner with Arizona's Office of Children with Special Health Care Needs (OCSHCN) in the Department of Health Services in several initiatives, including an evaluation of grant activities.

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Family-to-Family Health Care Information and Education Centers

KENTUCKY

Grant Information


Name of Grantee
The Arc of Kentucky, Inc.
Title of Grant
Kentucky's Family-to-Family Health Information and Education Initiative
Type of Grant
Family-to-Family Health Care Information and Education Centers
Amount of Grant
$150,000
Year Original Funding Received
2004
Supplemental Award
$50,000

Contact Information


Patty Dempsey, Executive Director
502-875-5225
ArcofKY@aol.com

Linda Wainscott, Administrative Assistant
833 East Main Street
Frankfort, KY 40601
502-875-5225
ArcofKY@aol.com

Subcontractor(s)

None.

Target Population(s)


Children and adults with disabilities or long-term care illnesses and their families.

Goals


Activities


Abstract


The Arc of Kentucky, Inc. will establish a statewide Family-to-Family Health Care Information and Education Center that will (1) provide education and training opportunities for families with CSHCN, (2) develop and disseminate information about health care and home and community services to families and providers, (3) collaborate with existing Family-to-Family Health Care Information and Education Centers, and (4) promote the philosophy of individual- and family-directed services.

The Arc will collaborate with existing programs to prevent duplication of efforts.

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Family-to-Family Health Care Information and Education Centers

LOUISIANA

Grant Information


Name of Grantee
Family Voices of Louisiana
Title of Grant
Louisiana Family-to-Family Health Care Information and Education Center
Type of Grant
Family-to-Family Health Care Information and Education Centers
Amount of Grant
$150,000
Year Original Funding Received
2004

Contact Information


Phyllis Landry, Project Director
504-299-9175
familyla@bellsouth.net

Wanda Rose, Information Specialist Coordinator
1539 Jackson Avenue, Suite 200
New Orleans, LA 70130
504-299-9175
familyla@bellsouth.net

Subcontractor(s)

None.

Target Population(s)


Children with special heath care needs (CSHCN).

Goals


Activities


Abstract


The grant will be used to create the Louisiana Family-to-Family Health Care Information and Education Center under the umbrella organization of Family Voices of Louisiana, Inc., a nonprofit organization and chapter of Family Voices National. The new Center will be a statewide, family-run, home and community-based, culturally competent, health care, education, and information center.

The Center is designed to strengthen collaboration among families, health care providers, and other stakeholders to enhance the care of CSHCN, especially underserved and minority children. The project's primary activities are to (1) provide CSHCN and their families with timely, relevant, and useful information about navigating and participating in Louisiana's complex health and related systems; (2) engage families and key health care stakeholders in discussions to identify ways to improve and coordinate public and private health systems and ensure that these systems are responsive to the needs of the families and children they serve; (3) provide education and training opportunities on an array of issues and topics relevant to families with CSHCN; (4) develop a standard data collection method to identify service gaps; (5) collaborate with Family Voices of Louisiana, Inc. to establish and expand the network of parents and parents' associations that consult with and provide support to families of CSHCN; and (6) collaborate with key health care providers, policy makers, and public and private partners to encourage additional funding for services for families of CSHCN.

Family Voices of Louisiana, Inc., will begin work to ensure the sustainability of the Center by writing grants, raising funds, and developing fiscal partnership contracts.

Note: This Compendium form was not reviewed by the Grantee prior to publication.

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Family-to-Family Health Care Information and Education Centers

MASSACHUSETTS

Grant Information


Name of Grantee
Massachusetts Family Voices @ Federation for Children with Special Needs
Title of Grant
Massachusetts Family-to-Family Health Care Information and Education Center
Type of Grant
Family-to-Family Health Care Information and Education Centers
Amount of Grant
$150,000
Year Original Funding Received
2004

Contact Information


Beth Dworetzky, Project Coordinator
3 Rocky Way 1-800-331-0688 ext. 210
W. Kingston, RI 02892
401-783-4058
1-800-331-0688 ext. 210
bdworetzky@cox.net

Dr. Richard Robison, Project Manager
Federation for Children with Special Needs
1135 Tremont Street, Suite 420
Boston, MA 02120
617-236-7210
rrobison@fcsn.org

Subcontractor(s)

None.

Target Population(s)


Families of children and youth with special health care needs.

Goals


Activities


Abstract


The goals of this grant are to increase the number of families with CSHCN who (1) receive information about services and supports that will enable their children to be active participants in community living; (2) receive services for which they are eligible (particularly traditionally underserved families); and (3) have access to training, leadership, and peer support opportunities.

Massachusetts Family Voices, housed at the Federation for Children with Special Needs, will create and operate a statewide, parent-run Family-to-Family Health Care Information and Education Center. The Center will offer health care information and support to families of CSHCN, and others, as they negotiate various systems to enable their children to live in the community and be active participants in the decision-making process.

The Center will unite parent and agency initiatives in Massachusetts so families and others will have a one-stop shopping source for information and support related to health care services, Medicaid home and community services, and other services and supports available to families with CSHCN. The Center will also provide referrals for needed services.

The Center will collaborate with state agencies and programs to develop family-friendly training materials so families will have information on state and federal public benefits programs.

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Family-to-Family Health Care Information and Education Centers

NEW MEXICO

Grant Information


Name of Grantee
Parents Reaching Out
Title of Grant
Family Health Information Center
Type of Grant
Family-to-Family Health Care Information and Education Centers
Amount of Grant
$150,000
Year Original Funding Received
2004

Contact Information


Sallie Van Curen
505-247-0192
svancuren@parentsreachingout.org

David Murchio, Coordinator
1920 B Columbia SE
Albuquerque, NM 87106
505-247-0192
DMurchio@parentsreachingout.org

Subcontractor(s)

None.

Target Population(s)


Families of children and youth with special health care needs.

Goals


Activities


Abstract


Because families are the primary caregivers of CSHCN, effective health care must support them in this role. Because they are also experts on their children's health care and support needs, the major strategy utilized by Parents Reaching Out is the provision of parent-to-parent support.

Over the past 20 years, Parents Reaching Out has developed a successful, statewide parent-to-parent network. This network is community-based, family-centered, and culturally competent. Parents of children and youth with special health care needs who have learned to navigate and access the health care system share their knowledge and experience with other families who have not yet learned to do so.

The grant's primary goal is to increase families' ability to understand, choose, and obtain health care services, including home and community services and supports, for their CSHCN. To achieve this goal, the grant will be used to fund educational and training activities and the development of family-to-family networks to provide mentors and resources for families of CSHCN who are entering or having difficulty navigating the health care system and obtaining information and services.

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Family-to-Family Health Care Information and Education Centers

NEW YORK

Grant Information


Name of Grantee
Parent to Parent of NYS, Inc.
Title of Grant
Family-to-Family Health Care Information and Education Center
Type of Grant
Family-to-Family Health Care Information and Education Centers
Amount of Grant
$150,000
Year Original Funding Received
2004

Contact Information


Janice Fitzgerald, Executive Director
PO Box 1296
Tupper Lake, NY 12986
518-539-3006
p2pnys@adelphia.net

Rosemary Randazzo
Parent to Parent of NYS
415-A Oser Avenue
Hauppauge, NY 11788
631-434-6196
rosemarylip2p@aol.com

Subcontractor(s)

None.

Target Population(s)


Children with special health care needs (CSHCN).

Goals


Activities


Abstract


In 1999, parents of CSHCN seeking to establish a parent support network founded Parent-to-Parent of NYS, Inc., a statewide network of parents helping parents to deal with issues related to parenting CSHCN.

The organization includes 11 regional offices and a business office with 21 part-time paid coordinators. The parent-to-parent matching program includes a network of over 1,200 volunteer support parents.

Parent-to-Parent of NYS works closely with the NYS Office of Mental Retardation and Developmental Disabilities, thereby giving parents a voice in the service planning and implementation processes as well as providing a means to share information and resources.

The primary goal of this project is to increase understanding of appropriate health care resources for CSHCN and improve access to these resources.

Activities include educational and training initiatives as well as the development of a network of Health Care Resource Parents, which will use volunteer parents to provide support and information to other parents of CSHCN.

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Family-to-Family Health Care Information and Education Centers

NORTH CAROLINA

Grant Information


Name of Grantee
The Exceptional Children's Assistance Center
Title of Grant
Family-to-Family Health Information Center Planning and Training Grant
Type of Grant
Family-to-Family Health Care Information and Education Centers
Amount of Grant
$150,000
Year Original Funding Received
2004

Contact Information


Connie K. Hawkins, Executive Director
704-892-1321
chawkins@ecacmail.org

Grace Sisco, MPH, Project Coordinator
907 Barra Row, Suite 102-103
Davidson, NC 28036
704-892-1321 ext. 11
gsisco@ecacmail.org

Subcontractor(s)

None.

Target Population(s)


Children with special health care needs (CSHCN) and their families.

Goals


Activities


Abstract


North Carolina has many organizations and agencies providing information and education in an uncoordinated manner. For the first several months of this grant, project staff will conduct surveys with families of children with special health care needs, agencies, and other organizations to determine the level and type of information and education needed. The second step in project implementation will be to analyze the information and educational resources available, prioritize information needs of families, and identify needs and gaps in information.

The process of prioritizing information and educational needs and gaps will be accomplished using a variety of methods including surveys and focus groups with organizations and parents in different parts of the State representing urban/rural and diverse families.

After the information and education priorities and gaps are identified, grant staff and their grant partners will develop a basic information packet, and an information and referral guide will be produced that will include newly created materials from partner organizations and publications from existing national resources. Topics will be based on the needs assessment but could include subjects such as working with providers to create and maintain a "medical home" environment for delivery of health care services; using available health insurance resources to cover health care needs of children with chronic illness, disabling conditions, or other special health care needs; and accessing Medicaid wavers and the Children's Health Insurance Program (CHIP). Materials will be produced in multiple formats and translated into Spanish to reach as many people as possible and address the language and literacy barriers that exist within the State.

In addition, grant staff will conduct train-the-trainer sessions for members of the Special Needs Federation and Family Advisory Council and additional training sessions for statewide organizations targeting families from underserved areas or populations. At least one workshop will be conducted in Spanish for organizations and agencies serving native Spanish-speaking families.

The grant project will not replace existing information networks, but will provide information, training, and technical assistance to enhance the capacity of existing information networks and improve the quality of information and referral being provided.

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Family-to-Family Health Care Information and Education Centers

NORTH DAKOTA

Grant Information


Name of Grantee
Family Voices of North Dakota (FVND)
Title of Grant
FVND Health Information and Education Center
Type of Grant
Family-to-Family Health Care Information and Education Centers
Amount of Grant
$150,000
Year Original Funding Received
2004

Contact Information


Donene Feist, Project Director
PO Box 163
312 2nd Avenue West
Edgeley, ND 58433
701-493-2634
fvnd@drtel.net

Roxanne Romanick, Family Consultant
616 Crescent Lane
Bismarck, ND 58501
701-258-7421
romanick@bismidco.net

Subcontractor(s)

None.

Target Population(s)


Families of children and youth with special health care needs (CYSHCN).

Goals


Activities


Abstract


Families with CYSHCN need timely access to high quality services and supports in the health and long-term care systems within their community system of care. They often have difficulty obtaining services and supports due to the complexity of the systems, multiple programs with different eligibility requirements, and a lack of service coordination. Families who are knowledgeable about the relevant service systems and who have a support network are better equipped to ensure that their children receive needed services and supports.

The goal of this grant is to provide the information and support networks that families and their children need by establishing a Family-to-Family Health Information and Education Center within FVND. The Center will utilize the six core outcomes for CYSHCN in the President's New Freedom Initiative to identify gaps in the current community-based system. The Center will (1) assist consumers to become informed decision makers and obtain services and (2) provide coordination to help identify and address unmet needs.

Grant activities will build on existing efforts and increase coordination among families, communities, and other agencies and organizations that serve CYSHCN.

FVND, a statewide nonprofit organization, is a grassroots advocacy network of families and professionals dedicated to obtaining comprehensive, coordinated, family-centered, culturally competent care for all CYSHCN.

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Family-to-Family Health Care Information and Education Centers

UTAH

Grant Information


Name of Grantee
Utah Family Voices at the Utah Parent Center
Title of Grant
Utah Family Voices Health Information and Education Center
Type of Grant
Family-to-Family Health Care Information and Education Centers
Amount of Grant
$150,000
Year Original Funding Received
2004

Contact Information


Gina Pola Money, Project Director
Utah Family Voices
801-584-8236
utahfamilyvoices@juno.com

Helen Post, Executive Director
Utah Parent Center
2290 East 4500 South, #110
Salt Lake City, UT 84117
801-272-1051
helenp@utahparentcenter.org

Subcontractor(s)

None.

Target Population(s)


Families of children and youth with special health care needs (CYSHCN).

Goals


Activities


Abstract


Families who have the information they need to support their child with a disability or special health care need are in the best position to ensure access to quality health and community supports for their child.

The grant will be used to establish a statewide Family-to-Family Health Care Information and Education Center that builds on the best practices from other Family-to-Family Centers, promotes the philosophy of individual and family-directed supports, encourages and supports the meaningful participation of individual family members, and utilizes available resources to better serve all families of CYSHCN.

The grant will be used to establish a statewide Family-to-Family Health Care Information and Education Center to serve all families of CYSHCN. The Center will increase services by providing information about health care, home and community services, benefit programs, and other relevant community resources and programs.

The grant will also be used to create an infrastructure for collaboration and sustainability by (1) developing new family advocacy and interagency relationships and (2) strengthening existing ties with community-based, local, state, and national organizations.

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Family-to-Family Health Care Information and Education Centers

WEST VIRGINIA

Grant Information


Name of Grantee
People's Advocacy Information and Resource Services (PAIRS)
Title of Grant
Family-to-Family Health Care Information and Education Center
Type of Grant
Family-to-Family Health Care Information and Education Centers
Amount of Grant
$150,000
Year Original Funding Received
2004

Contact Information


Scott Miller
WV PAIRS
502 S. Court Street
Lewisburg, WV 24901
304-645-6356
scottsam@verizon.net

Pat Haberbosch
WVPTI, Inc.
1701 Hamill Avenue
Clarksburg, WV 26301
304-624-1436
wvpti@aol.com

Subcontractor(s)

None.

Target Population(s)


Families of children with special health care needs (CSHCN).

Goals


Activities


Abstract


Dedicated parents and professionals have worked hard to develop the capacity for programs to support families of young children (birth to 3 years). However, a majority of families in need of services encounter barriers in obtaining services because they have a limited knowledge of services and assistance available to them. The PAIRS project plans to empower and educate families and challenge the State to carry out a system of long-term health care that is centered on the individual and their family; provides support in the most integrated setting; treats people with dignity and respect; and provides real, informed choices for quality health care across the State.

PAIRS will collaborate with many organizations to establish an expanded capacity to provide information and education to families of CSHCN. The primary focus of PAIRS will be on promoting the philosophy of individual- and family-directed supports and developing full access to health care services in the community.

PAIRS will match families facing similar situations as a way to provide moral support and to inform individuals and family members of the benefits of person- and family-directed supports. This will implement real change in the delivery of services for people with special health care needs through a grassroots campaign to make individual- and family-directed supports a reality.

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Systems Transformation Grants

ARKANSAS

Grant Information


Name of Grantee
Department of Human Services (DHS)
Title of Grant
Arkansas Systems Transformation Grant
Type of Grant
Real Choice Systems Transformation Grant
Amount of Grant
$2,856,575
Year Original Funding Received
2005

Contact Information


Herb Sanderson, Project Director
Division of Aging and Adult Services (DAAS)
1417 Donaghey Plaza South
7th and Main
PO Box 1437, Slot S-530
Little Rock, AR 72203-1437
501-682-2441
herb.sanderson@arkansas.gov

Subcontractor(s)

State University of New Jersey, Rutgers Center for State Health Policy
Strategic Management Systems, Inc. (SMS)

Target Population(s)


Elders and people with disabilities of all ages.

Goals


Activities


Abstract


The focus of the grant is establishing a one-stop service system that ensures access to community-based services by providing accurate, consumer-specific information to individuals about available services, whether public or private, and connecting them with those services. The grant will also build a comprehensive, automated quality management system that enables the State to measure and report on system performance and to ensure that discovery, remediation, and systems improvement become part of how the State normally does business day-to-day. Additionally, the grant will transform information technology to support systems change from the current paper-based application, assessment, plan of care, and case record processes into an online, Web-based process supported by the Medicaid Management Information System or its interfacing systems. Finally, the State will create a system that effectively manages funding for long-term supports for community living by developing a statewide primary care case management program for people who are dually eligible and others with chronic illnesses.

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Systems Transformation Grants

IOWA

Grant Information


Name of Grantee
Department of Human Services, Iowa Medicaid Enterprise
Title of Grant
IowaCare: Rebalancing for Increased Community Capacity, Access, and Choice
Type of Grant
Real Choice Systems Transformation Grant
Amount of Grant
$2,286,469
Year Original Funding Received
2005

Contact Information


Debbie Johnson, Program Manager
Iowa Medicaid Enterprise
100 Army Post Road
Des Moines, IA 50315-6257
515-725-1012
djohnso6@dhs.state.ia.us

Subcontractor(s)

The Center for Disabilities and Development (CDD), University of Iowa
Iowa Department of Transportation
Iowa Finance Authority
Myers and Stauffer
Iowa Foundation for Medical Care

Target Population(s)


All individuals with disabilities and the elderly.

Goals


Activities


Abstract


The heart of IME's Systems Transformation efforts is the IowaCare Medicaid reform legislation, passed during the 2005 legislative session, that sets the direction for the redesign of Iowa's system of long-term supports for individuals with disabilities and older Iowans. The Systems Transformation grant will improve information and access, streamline the eligibility and assessment process, develop a case-mix adjusted reimbursement methodology for disability services and a plan for expansion for home and community services, and develop strategies to improve health care quality for people with mental retardation, developmental disabilities, and complex medical conditions.

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Systems Transformation Grants

LOUISIANA

Grant Information


Name of Grantee
Department of Health and Hospitals
Title of Grant
Louisiana Systems Transformation Grant
Type of Grant
Real Choice Systems Transformation Grant
Amount of Grant
$3,022,545
Year Original Funding Received
2005

Contact Information


Robin Wagner, Project Director
Louisiana Systems Transformation Grant
1201 Capitol Access Road
Baton Rouge, LA 70802-4438
225-342-3839
Rwagner@dhh.la.gov

Subcontractor(s)

Roger Auerbach, consultant
Human Services Research Institute (HSRI)
The Muskie School of Public Service, University of Southern Maine
NCB Development Corporation
SocialServe.com
Tulane School of Public Health, evaluator

Target Population(s)


People who are aging or have a disability acquired during adulthood, people with a developmental disability, and people with mental illness who have long-term care (LTC) and/or housing needs.

Goals


Activities


Abstract


A primary focus of the grant is on development of a comprehensive approach to QM and an IT infrastructure that supports both QM and functions of a single-entry-point system. Louisiana will ensure that the QM and IT infrastructure across OCDD and the Office for Aging/Adult Services are as integrated, uniform, and/or compatible as possible. Another focus of the grant is establishing the necessary, ongoing infrastructure to transform the availability of affordable, accessible housing and housing with supports. This will occur, in part, by replicating the CHANs developed under a previous Real Choice Systems Change grant to four additional regions in the State, thereby providing statewide coverage; and development of an accessible housing database and locator. In collaboration with its state housing finance agency, Louisiana is also launching a major Permanent Supportive Housing initiative for people with disabilities.

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Systems Transformation Grants

MAINE

Grant Information


Name of Grantee
Department of Health and Human Services (DHHS)
Title of Grant
Transforming Maine's Systems for Persons with Disabilities
Type of Grant
Real Choice Systems Transformation Grant
Amount of Grant
$2,564,610
Year Original Funding Received
2005

Contact Information


Muriel Littlefield
Director of Systems Transformation Team
Office of the Commissioner, DHHS
40 State House Station
Augusta, ME 0333-0040
207-287-5159
Muriel.Littlefield@maine.gov

Subcontractor(s)

Muskie School of Public Service, University of Maine
Center for Health Policy & Research, University of Massachusetts Medical School

Target Population(s)


All persons of all ages with disabilities.

Goals


Activities


Abstract


Maine will focus on four interrelated goal areas that have been identified as high priorities by the Commissioner and Deputy Commissioners of DHHS, based on the Governor's goal of transforming its two legacy departments into a unified department. Activities within each goal area will integrate previously independent policies and procedures across departments in the newly established DHHS and will provide a system of integrated access that screens people's needs accurately, and links people to appropriate services, regardless of where they enter.

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Systems Transformation Grants

MASSACHUSETTS

Grant Information


Name of Grantee
University of Massachusetts Medical School
Title of Grant
Massachusetts Community First Systems Transformation Grant
Type of Grant
Real Choice Systems Transformation Grant
Amount of Grant
$2,893,946
Year Original Funding Received
2005

Contact Information


Mason Mitchell-Daniels, Project Director
Center for Health Policy and Research
University of Massachusetts Medical School
Boston, MA 02108
617-573-1764
Mason.Mitchell-Daniels@state.ma.us

Subcontractor(s)

To be determined during the strategic planning process.

Target Population(s)


People of all ages living with disabilities.

Goals


Activities


Abstract


The grant will address gaps within the current long-term support infrastructure to provide an array of effectively managed, long-term support choices and the opportunity for individuals within the Commonwealth of Massachusetts to exercise those choices. In particular, the grant will focus on the development of a comprehensive system of quality management that includes quality indicators and strategies for assessing long-term support programs or services; establishment of alternative financing mechanisms as tools to strengthen nursing facility diversion and transition efforts; and creation of accessible and affordable housing options that allow individuals to transition to or remain in their own communities.

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Systems Transformation Grants

MISSOURI

Grant Information


Name of Grantee
Department of Mental Health, Division of Mental Retardation and Developmental Disabilities (DMRDD)
Title of Grant
MRDD Systems Transformation Initiative
Type of Grant
Real Choice Systems Transformation Grant
Amount of Grant
$2,971,944
Year Original Funding Received
2005

Contact Information


Robin Rust, Project Director
Department of Mental Health
Division of MRIDD
1706 East Elm Street
Jefferson City, MO 65102
573-751-8209
Robin.rust@dmh.mo.gov

Subcontractor(s)

Change and Innovation Agency (CIA)
University of Missouri Kansas City, Institute for Human Development (UMKC-IHD)
University of Missouri Columbia, Thompson Center for Autism and Neurodevelopmental Disorders

Target Population(s)


Persons with mental retardation and developmental disabilities.

Goals


Activities


Abstract


The focus of the grant is on creating the infrastructure needed to develop an integrated comprehensive quality management system that includes (1) improved measures of outcomes for both consumers and providers and (2) an advanced information technology system that fully integrates quality management databases and provides ready access to information and resources. In addition, Missouri will rebalance the long-term community support system through facilitating the transitions of individuals in state-operated institutions to community services and supports. Through these initiatives, the State will develop a more coherent system of long-term care supports in Missouri.

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Systems Transformation Grants

NEW HAMPSHIRE

Grant Information


Name of Grantee
NH Department of Health and Human Services (DHHS)
Title of Grant
Transforming New Hampshire's System of Long-term Care: Achieving the Promise of Self-Directed Community Services and Supports
Type of Grant
Real Choice Systems Transformation Grant
Amount of Grant
$2,066,699
Year Original Funding Received
2005

Contact Information


Mary Maggioncalda, Project Manager
DHHS
129 Pleasant Street
Concord, NH 03301
603-271-4410
Mmaggioncalda@dhhs.state.nh.us

Susan Fox, Director
Real Choice Grants
56 Old Suncook Road, Suite 2
Concord, NH 03301
603-228-2084
sfox@dhhs.state.nh.us

Subcontractor(s)

Randy Benthien, strategic planning consultant
Technical assistance consultants
Evaluation consultant

Target Population(s)


Elders and people living with disabilities and chronic conditions.

Goals


Activities


Abstract


The grant will support New Hampshire's Medicaid reform efforts, which are aimed at substantially expanding access to community-based, consumer-directed services and supports; increasing the percentage of people referred to and enrolled in home and community-based as opposed to institutionally-based services; and developing nationally relevant and innovative community practices that can be replicated by other states.

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Systems Transformation Grants

NEW MEXICO

Grant Information


Name of Grantee
Aging & Long-Term Services Department (ALTSD)
Title of Grant
New Mexico Systems Transformation Grant
Type of Grant
Real Choice Systems Transformation Grant
Amount of Grant
$2,736,384
Year Original Funding Received
2005

Contact Information


Bill Belzner, Director
505-476-4708
bill.belzner@state.nm.us

Emily Kaltenbach, Deputy Director
Consumer and Elder Rights Division
Toney Anaya Building
2550 Cerrillos Road
Santa Fe, NM 87505
505-476-4732
emily.kaltenbach@state.nm.us

Subcontractor(s)

Mr. Michael Coop, evaluation consultant

Target Population(s)


Elderly and adults with disabilities.

Goals


Activities


Abstract


The focus of the grant is on increasing the State's capacity to meet the additional demands of new home and community-based populations, to develop new models of service delivery such as self-directed care, to create a quality management program for all HCBS, and to design and implement new IT platforms and systems to link all sources of information needed by consumers and providers to ensure the quality of individual plans of care. The grant will lead to successful implementation of a statewide, long-term care system that will significantly increase access to HCBS concurrently with the implementation of self-directed care for some of these services.

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Systems Transformation Grants

OREGON

Grant Information


Name of Grantee
Department of Human Services, Seniors and People with Disabilities (DHS/SPD)
Title of Grant
ReBAR Project: Restructuring Budgets, Assessments and Rates
Type of Grant
Real Choice Systems Transformation Grant
Amount of Grant
$2,444,193
Year Original Funding Received
2005

Contact Information


Robert Clabby, Project Director
503-385-7144
Bob.clabby@state.or.us

Jan Morgan, Project Manager
500 Summer Street, E02
Salem, OR 97301-1073
503-945-6409
Janet.m.morgan@state.or.us

Subcontractor(s)

Human Services Research Institute

Target Population(s)


Persons with developmental disabilities/mental retardation (DD/MR) in the Developmental Disabilities Comprehensive Services System.

Goals


Activities


Oregon views the accomplishment of all three goals as part of a single coherent project intended to create systems transformation in the Developmental Disabilities Comprehensive Services System. Individual resource allocation will help support choice, rate restructuring will help target resources, and quality management will focus on ensuring that these specific changes accomplish the desired objectives. As such, there are a number of activities that will be common to all the goals:

Abstract


Oregon will improve community-integrated services by responding to critical issues identified by Oregon consumers, advocates, providers, and agencies. The Developmental Disabilities Comprehensive Services System will move from slot-based funding methods to an individual resource allocation system based on an assessment of the person's needs and available supports. Rate-setting methodologies will be restructured to support the exercise of choices determined through person-centered planning, and be based on valid, consistent analysis of allowable service costs within available funding. In addition, quality management activities will be developed to support the system transformation activities related to individual resource allocation and implementation of new cost and rate-setting methodologies.

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Systems Transformation Grants

SOUTH CAROLINA

Grant Information


Name of Grantee
Lieutenant Governor's Office on Aging (LGOA)
Title of Grant
Links for Community Options
Type of Grant
Real Choice Systems Transformation Grant
Amount of Grant
$2,971,779
Year Original Funding Received
2005

Contact Information


Barbara Kelley, Deputy Director
Lt. Governor's Office on Aging
1301 Gervais Street, Suite 200
Columbia, SC 29201
803-734-9899
kelleyb@aging.sc.gov

Subcontractor(s)

South Carolina Department of Health and Human Services
Lower Savannah Council of Governments
Appalachia Council of Governments
Santee Lynches Council of Governments
Susan Reinhard, Ph.D., R.N., Rutgers Center for State Health Policy
University of South Carolina Center for Health Services and Policy Research (USC CHSPR)
University of South Carolina Institute for Public Policy Survey Research Laboratory (SRL)

Target Population(s)


Older adults and adults with physical and/or developmental disabilities.

Goals


Activities


Abstract


The grant will empower and support older adults and adults with disabilities living in the community through streamlined access to services and increased consumer choice. South Carolina will expand activities of the current ADRC to develop additional linkages to simplify the application processes and reduce duplicative intake; expand the ADRC target group to encompass adults with developmental disabilities and to include four additional counties; design a short-term interim assistance component for the current ADRC; integrate a transportation one-stop/call Mobility; Information, Assistance, and Management Center into the Lower Savannah ADRC; and apply lessons learned from the implementation of the current ADRC to establish new ADRCs in two other regions. The grant will also develop the technology to support consumer-oriented transportation access, install mobile data terminals (MDT) and global positioning satellite units (GPS) in area vehicles participating in the project to allow for real-time vehicle scheduling and dispatching, and expand the SC Access Information Web site to incorporate information on transportation resources. Finally, South Carolina will develop a methodology for prioritizing the list of individuals who are interested in receiving the Medicaid Home and Community-Based Services (HCBS) waiver to promote more efficient utilization of funding.

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Systems Transformation Grants

CALIFORNIA

Grant Information


Name of Grantee
California Health and Human Services Agency
Title of Grant
California Community Choices
Type of Grant
Real Choice Systems Transformation Grant
Amount of Grant
$3,000,000
Year Original Funding Received
2006

Contact Information


Karol Swartzlander, Project Director
1600 Ninth Street, Room 460
Sacramento, CA 95814
916-654-3454
Kswartzl@chhs.ca.gov

Subcontractor(s)

California Institute on Human Services at Sonoma State University (SSU/CIHS)
Community-based organizations to operate two new one-stops
Information technology contractor
External evaluator

Target Population(s)


People with disabilities, chronic illnesses, or long-term health care needs, including older adults.

Goals


Activities


Abstract


The California Community Choices grant is critical to addressing existing barriers and making progress in systems transformation, in part because California does not currently have a coordinated mechanism for developing a statewide infrastructure for LTC. The California Health and Human Services Agency (CHHSA), the grantee agency, seeks to develop solutions that address barriers by (1) building, enhancing, and connecting infrastructures among multiple agencies and departments through information technology; (2) building on the one-stop system to connect consumers to services; and (3) developing and implementing more flexible payment methodologies for HCBS.

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Systems Transformation Grants

KANSAS

Grant Information


Name of Grantee
Kansas Department of Social and Rehabilitation Services
Title of Grant
Transforming the Kansas Long-Term Care System
Type of Grant
Real Choice Systems Transformation Grant
Amount of Grant
$2,198,629
Year Original Funding Received
2006

Contact Information


Michelle Ponce, Project Director
Docking State Office Building
915 SW Harrison
Topeka, KS 66612-1570
785-296-3271
Mponce@srskansas.org

Subcontractor(s)

The Self-Help Network of Kansas, Wichita State University, evaluator
Melissa Ness, Connections Unlimited, facilitator

Target Population(s)


Individuals of all ages with long-term support needs.

Goals


Activities


Abstract


This project seeks to promote community living for Kansans of all ages with LTC support needs by continuing and building upon the achievements of previous New Freedom grants awarded to Kansas. The project's primary goal is to encourage community living options by enhancing consumer control and direction through a coordinated service delivery system.

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Systems Transformation Grants

MICHIGAN

Grant Information


Name of Grantee
Michigan Department of Community Health
Title of Grant
Michigan's System Transformation Grant
Type of Grant
Real Choice Systems Transformation Grant
Amount of Grant
$2,389,770
Year Original Funding Received
2006

Contact Information


Michael J. Head, Project Director
Office of LTC Supports and Services
201 Townsend Street, 7th Floor
Lansing, MI 48913
517-335-0276
head@michigan.gov

Subcontractor(s)

Michigan Disability Rights Coalition
Michigan Public Health Institute
Rutgers Community Living Exchange
DYNS, Inc.

Target Population(s)


Individuals in need of long-term care (LTC), including the elderly and adults with disabilities.

Goals


Activities


Abstract


Michigan's Systems Transformation Grant (STG) will contribute to building an integrated and highly responsive LTC system, characterized by easy access, consumer choice and control, high-quality services and outcomes, and flexible funding. The grant will build on the broad administrative, legislative, and stakeholder support for transformation of Michigan's LTC services. This support has been developed through the work of the Governor's Medicaid LTC Task Force, which issued a set of recommendations in 2005 that align fully with the STG goals. In response to the Task Force's recommendations, the Governor established the Office of LTC Supports and Services (the grantee agency) and the LTC Supports and Services Advisory Commission, and directed the development of single point of entry demonstration sites.

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Systems Transformation Grants

NEW JERSEY

Grant Information


Name of Grantee
New Jersey Department of Health and Senior Services (DHSS)
Title of Grant
New Jersey Partnership for Systems Transformation
Type of Grant
Real Choice Systems Transformation Grant
Amount of Grant
$2,281,514
Year Original Funding Received
2006

Contact Information


Nancy E. Day, Project Director
Aging and Community Services
240 W. State Street
Trenton, NJ 08608
609-943-3429
Nancy.day@doh.state.nj.us

Subcontractor(s)

Rutgers Center for State Health Policy (technical assistance subcontractor)
Neighbours, Inc. (consumer support subcontractor)
IT Engagement Manager consultant
Financial consultant

Target Population(s)


Older adults and persons with disabilities across all incomes.

Goals


Activities


Abstract


New Jersey's Department of Health and Senior Services (DHSS) (the grantee agency) proposes to use the Systems Transformation Grant as a catalyst for continued infrastructure improvements for older adults and persons with disabilities across all incomes. The success of the project will depend on the State Management Team, comprising leadership from DHSS, the Division of Aging with DHS, the Division of Developmental Disabilities, Disability Services, and Medical Assistance and Health Services. To ensure that the voices of individuals who access services are a part of the planning, development, and implementation process, the state partners will establish Advocate Advisory Panels comprising consumers, self-advocates, and provider agencies from three networks (aging, developmental disabilities, and physical disabilities). Work teams for each of the three goals will guide planning efforts throughout the grant period. The outcome of this project will be a consumer-driven human services delivery system with a "no wrong door" pathway to services, a "money follows the person" funding structure, and IT systems that facilitate service delivery to consumers.

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Systems Transformation Grants

NEW YORK

Grant Information


Name of Grantee
New York State Office of Mental Retardation and Developmental Disabilities (OMRDD)
Title of Grant
Real Choice Through Options for People Through Services (OPTS)
Type of Grant
Real Choice Systems Transformation Grant
Amount of Grant
$2,864,487
Year Original Funding Received
2006

Contact Information


Maryann Riviello, Project Director
Bureau of Training & Medicaid Standards
NYS OMRDD
44 Holland Avenue, 5th Floor
Albany, NY 12229
518-486-1152
Maryann.Riviello@omr.state.ny.us

Subcontractor(s)

The Public Consulting Group (PCG), Boston, MA
The Evaluation Consortium, Rockefeller College, State University of New York at Albany

Target Population(s)


Individuals with developmental disabilities and their families.

Goals


Activities


Abstract


New York State's OPTS is an organized health care advocacy group that was created in 2004 to promote increased choice, inclusion, and individualization, as well as to serve as a vehicle for expanding service opportunities through a unique and flexible funding methodology. To ensure that OPTS continues to reflect the input of all constituents and to assist OMRDD in its Systems Transformation Grant implementation, a Steering Committee supported by three subcommittees (Choice, Funding, and Housing) was appointed to guide the initiative's creation, development, implementation, and monitoring activities. Funding will be used to conduct OPTS outreach, public information, and education series; increase the availability of person-centered services; make available comprehensive support brokerage throughout NYS; target high-cost individuals, services, or geographic areas with high unmet needs; and establish one-stop shopping through regional resource centers to improve access to housing.

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Systems Transformation Grants

NORTH CAROLINA

Grant Information


Name of Grantee
North Carolina Department of Health and Human Services (DHHS)
Title of Grant
Systems Transformation Grant
Type of Grant
Real Choice Systems Transformation Grant
Amount of Grant
$2,343,141
Year Original Funding Received
2006

Contact Information


Ann Eller, Project Director
Office of Long-Term Services and Supports
2001 Mail Services Center, Adams Building
101 Blair Drive
Raleigh, NC 27699
919-855-4423
Ann.Eller@ncmail.net

Jackie Sheppard, Signature Authority
Assistant Secretary for Long Term Care and Family Services
919-733-4534
Jackie.Sheppard@ncmail.net

Subcontractor(s)

Susan Reinhard, evaluation and technical assistance consultant
UNC Center for Aging Research & Education Services, evaluation

Additional subcontractors forthcoming

Target Population(s)


Individuals in need of long-term services and supports, including older adults, individuals with physical or sensory disabilities, and individuals with mental illness, developmental disabilities, or substance abuse diagnoses.

Goals


Activities


Abstract


With broad-based input, North Carolina developed two primary "blueprint" documents to guide reform of long-term services and supports. The State has taken significant steps to implement recommendations from these documents, with progress reviewed annually by the North Carolina Department of Health and Human Services (DHHS) (the grantee agency), stakeholders, and policy makers. DHHS continues to pursue numerous recommendations within these two blueprints, with the goal of achieving an easily accessible, more efficient long-term services and supports system that is conducive to consumers having more independence and flexibility. Next steps include achieving streamlined, integrated, and easy access for all persons needing information and long-term services and supports; integrating key health and social services and supports to address multiple needs; expanding self-direction and self-management; and enhancing technological systems to enable information sharing.

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Systems Transformation Grants

RHODE ISLAND

Grant Information


Name of Grantee
Rhode Island Executive Office of Health and Human Services
Title of Grant
Rhode Island Real Choice Systems Transformation Project
Type of Grant
Real Choice Systems Transformation Grant
Amount of Grant
$2,177,665
Year Original Funding Received
2006

Contact Information


John Young, Project Director
74 West Road
Hazard Building
Cranston, RI 02920
401-462-3575
jyoung@dhs.ri.gov

Subcontractor(s)

Project manager
Beth Pinkham, project assistant
New England States Consortium Systems Organization (NESCSO)
Susan Allen, PhD, Brown University
Jane Griffin, MCH Evaluation, Inc.
Chuck Milligan, Center for Health Program Development and Management, University of Maryland Baltimore County (UMBC)

Target Population(s)


Adults with disabilities, elders on Medicaid, and individuals who receive non-Medicaid long-term supports.

Goals


Activities


Abstract


The overarching vision of Rhode Island's Systems Transformation Grant is to create an infrastructure that focuses on prevention of avoidable institutionalization by integrating health care and support services to promote independence in the community for elders and people with disabilities and long-term illness. The Systems Transformation grant will further assist the Rhode Island's Executive Office of Health and Human Services in the infrastructure development and system integration to improve access, financing, and quality information across Rhode Island's public and community-based services and programs that serve individuals of all ages and disabilities. Activities under this grant will be conducted in partnership with consumers, state agencies under the Executive Office of Health and Human Services, providers, and advocates, and will build upon the progress made to date.

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Systems Transformation Grants

VIRGINIA

Grant Information


Name of Grantee
Virginia Department of Medical Assistance Services
Title of Grant
Virginia's Long-Term Support System Transformation Grant
Type of Grant
Real Choice Systems Transformation Grant
Amount of Grant
$2,245,000
Year Original Funding Received
2006

Contact Information


Karen Lawson, Project Director
Virginia Department of Medical Assistance Services
600 East Broad Street, Suite 1300
Richmond, VA 23219
804-225-2364 (b)
804-786-1680 (f)
Karen.Lawson@dmas.virginia.gov

Subcontractor(s)

Jean Tuller of Tuller Consulting, Inc., strategic planning facilitator
The Medstat Group, Inc., evaluation contractor
The Partnership for People with Disabilities of Virginia Commonwealth University
Senior Navigator

Target Population(s)


Individuals who are elderly or have disabilities, and their families.

Goals


Activities


Abstract


Virginia's Systems Transformation (ST) Project is an important opportunity for stakeholders to continue to advance the agenda of reform and move closer to the Commonwealth's vision of "One Community" for all citizens. At the conclusion of the ST Project, Virginia will have (among other things) expanded Aging and Disability Resource Centers by increasing the number of sites and broadening the target population, created individual budgeting and explored other consumer-directed options, ensured a statewide fusion of the person-centered planning and self-direction practices, established a Web-based case management IT application in MR Home and Community-Based waivers, and produced a critical incident and management reporting system as a part of the Commonwealth's Quality Management System.

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Family-to-Family Health Care Information and Education Centers

CONNECTICUT

Grant Information


Name of Grantee
FAVOR, Inc.
Title of Grant
Connecticut Family-to-Family Health Information Network
Type of Grant
Family-to-Family Health Care Information and Education Centers
Amount of Grant
$165,000
Year Original Funding Received
2005

Contact Information


Hal Gibber, Executive Director
FAVOR, Inc.
2138 Silas Deane Highway, Suite 103
Rocky Hill, CT 06067
860-563-3232 ext. 201
halgibber@favor-ct.org

Subcontractor(s)

None.

Target Population(s)


Children with special health care needs (CSHCN), including those with mental health needs and their families, as well as providers, state agencies, and policy makers.

Goals


Activities


Abstract


FAVOR, a statewide family-directed advocacy organization for children's mental health, will administer the Connecticut Family-to-Family Health Information Network. The project will be operated in collaboration with the Connecticut Family Support Council, Easter Seals, Yale Center for Children With Special Health Care Needs, the Connecticut Department of Public Health, and Bridgeport Child FIRST Program.

The project will provide support, information, and advocacy to families in Connecticut who have CSHCN, including children with mental health needs. The primary outcome of this project will be to assist families and providers in navigating the public and private health care financing service delivery systems and to develop appropriate strategies and policies to improve these systems. The project will establish a statewide network of specialists who will be directly supporting families. These specialists will provide technical assistance, information, and direct advocacy to 360 families and will develop training materials and a toolkit that can be broadly disseminated to parents in the State. All information will be utilized to formulate recommendations for policy change, and families will be mobilized to promote those policy change recommendations.

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Family-to-Family Health Care Information and Education Centers

IDAHO

Grant Information


Name of Grantee
Idaho Parents Unlimited, Inc. (IPUL)
Title of Grant
Idaho Family-to-Family Health Care Information and Education Center
Type of Grant
Family-to-Family Health Care Information and Education Centers
Amount of Grant
$165,000
Year Original Funding Received
2005

Contact Information


Evelyn Mason, Executive Director
Idaho Parents Unlimited, Inc.
600 North Curtis Road, Suite 145
Boise, ID 83706
208-342-5884
evelyn@ipulidaho.org

Subcontractor(s)

Idaho Hispanic Resource Center
Consultant for graphics design and editorial/content writing for newsletter
Evaluation consultant
Database consultant/contractor

Target Population(s)


Children and youth who have special health care needs (CYSHCN) and their families, especially underinsured families throughout the State.

Goals


Activities


Abstract


Idaho Parents Unlimited (IPUL) plans to expand the agency's existing services under the Family-to-Family grant to include new staff training on the health care system. This will enable IPUL to deliver current information on best practices in Medical Home models and on how to navigate and utilize home and community-based health care services. The new efforts will revise both IPUL's data collection methods and its internal data system so that it can provide a greater level of information and referral on health care-related services in Idaho. These new efforts will build on the services currently provided by the established IPUL statewide network of over 8,500 parents, parent groups, and disability-related professionals.

The Family-to-Family Project will provide services statewide. The statewide activities will develop training and information materials; present workshops; publish The Idaho Parent Network, a quarterly newsletter; create and maintain Internet and Web-based instruction; and offer other technologies (i.e., video conferencing). IPUL staff will conduct conferences and statewide meetings and will provide professional development for the parent education coordinators on health care issues.

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Family-to-Family Health Care Information and Education Centers

MICHIGAN

Grant Information


Name of Grantee
Michigan Parent Participation Program (PPP)
Title of Grant
PPP Family-to-Family Health Care Information and Education Center
Type of Grant
Family-to-Family Health Care Information and Education Centers
Amount of Grant
$165,000
Year Original Funding Received
2005

Contact Information


Mary Marin, Executive Director
Southeast Michigan Health Association
Parent Participation Program
3056 W. Grand Boulevard, Suite 3-350
Cadillac Place
Detroit, MI 48202-6056
313-456-4381
MarinM@michigan.gov

Subcontractor(s)

Association for Children's Mental Health Issues
Citizens to Uphold Special Education (CAUSE)
New Center Community Mental Health
Henry Ford Hospital
Devoss Hospital

Target Population(s)


Children with special health care needs (CSHCN) and their families, especially underserved families (including the uninsured and underinsured).

Goals


Activities


Abstract


The purpose of the Michigan Parent Participation Program (PPP) Family-to-Family Health Information and Education Center is to expand and improve the information, education, parent-to-parent support, and decision-making opportunities available to all families of CSHCN in Michigan. To reach these objectives, PPP will work with a host of family, community, state, and national partners to enhance its existing network resources and expand its collaborative efforts for outreach, training, and parent-to-parent support. Partners will assist PPP in designing effective health, health care coverage, Medical Home and transition information, and education and training materials to supplement existing curricula. These materials will be designed to help families (a) obtain information so they can access the services necessary to keep their children at home in their communities, (b) know what health care coverage options are available to pay for medically-necessary services for their children, (c) identify a Medical Home, (d) develop effective partnerships with service providers and health care providers, (e) receive emotional parent-to-parent support, and/or (f) help prepare their youth for adulthood. PPP's Lending Library will be enhanced with relevant information and dissemination strategies, and new materials will be developed and integrated with existing resources.

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Family-to-Family Health Care Information and Education Centers

NEW HAMPSHIRE

Grant Information


Name of Grantee
New Hampshire Coalition for Citizens with Disabilities
Title of Grant
New Hampshire Family-to-Family Health Care Information and Education Center
Type of Grant
Family-to-Family Health Care Information and Education Centers
Amount of Grant
$165,000
Year Original Funding Received
2005

Contact Information


Terry Ohlson-Martin, Co-Director

Martha-Jean Madison, Co-Director
New Hampshire Family Voices, New Hampshire Coalition for Citizens with Disabilities
29 Hazen Drive
Concord, NH 03301
603-271-4525
nhfv@yahoo.com

Subcontractor(s)

Curriculum development, outreach, and translation consultants from Minority Health Coalition, National Family Voices Staff

Target Population(s)


Children and youth with special health care needs (CYSHCN) and their families and service providers.

Goals


Activities


Abstract


New Hampshire Family Voices (NHFV) will create a Family-to-Family Center to implement and evaluate state and regional training, TA, and support infrastructures to ensure that all families of CYSHCN in New Hampshire have timely access to services and information in their communities. The Family-to-Family Center will focus on:

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Family-to-Family Health Care Information and Education Centers

OREGON

Grant Information


Name of Grantee
Family Action Coalition Team
Title of Grant
Oregon Family-to-Family Health Care Information and Education Center
Type of Grant
Family-to-Family Health Care Information and Education Centers
Amount of Grant
$165,000
Year Original Funding Received
2005

Contact Information


Becky Adelmann
Project Manager/Coordinator
Family Voices of Oregon
Family Action Coalition Team
7830 SE Foster Road
Portland, OR 97206-5140
503-494-7657
adelmann@ohsu.edu

Subcontractor(s)

Family Voices of Oregon
Disability Navigators, Inc.

Target Population(s)


Children or youth with disabilities and/or chronic health needs (including mental and emotional health needs) and their families.

Goals


Activities


Abstract


Oregon's Family-to-Family Health Information and Education Center will be spearheaded and coordinated by Family Voices in Oregon (FVO), which exists under the umbrella of the Family Action Coalition Team (FACT). Rather than creating a new physical location, Oregon's Family-to-Family Center will use the facilities of FACT member organizations. FACT comprises an extensive network of families and family organizations, which together bring collective capacity and meaningful collaboration to launch a successful family-driven center. The overarching goal of the project is to develop a coordinated statewide education and dissemination system for families who have children or youths with disabilities and/or chronic health needs, including mental and emotional health. Unlike many traditional information and referral centers, this effort will be managed through family-to-family contacts. Veteran families will share experiences and effective strategies with families seeking information and supports. Specific attention will be focused on People First language and multiple formats to honor culture, learning styles, and literacy levels of families in Oregon.

Secondary goals for developing a center include (1) developing an infrastructure to carry out activities; (2) expanding the network of families and youths who are knowledgeable and willing to share their expertise; (3) identifying resources, materials, and strategies, and adapting them for diverse families and youths; (4) developing a dissemination/training/mentoring plan that will include multiple approaches to information-sharing; (5) tracking data that identifies useful information, successful strategies, and gaps and challenges in service; and (6) sharing information and lessons learned with policy/decision-makers to promote systems change and quality improvement.

Note: This Compendium form was not reviewed by the Grantee prior to publication.

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Family-to-Family Health Care Information and Education Centers

RHODE ISLAND

Grant Information


Name of Grantee
Rhode Island Parent Information Network (RIPIN)
Title of Grant
Rhode Island Family-to-Family Health Care Information and Education Center
Type of Grant
Family-to-Family Health Care Information and Education Centers
Amount of Grant
$165,000
Year Original Funding Received
2005

Contact Information


Dawn Wardyga, Program Director
Rhode Island Parent Information Network
175 Main Street
Pawtucket, RI 02860
401-727-4144 ext. 158
familyvoices@ripin.org

Subcontractor(s)

Evaluation consultant

Target Population(s)


Children and youth with special health care needs (CYSHCN) and their families, as well as the professionals, policymakers, community agencies, and organizations that care for them.

Goals


Activities


Abstract


RIPIN is a statewide, nonprofit organization with a reach that extends to every Rhode Island community, the State's major family-serving systems, health care providers, schools, associations, and agencies. Its mission is to inform, educate, support, and empower all families to be equal partners in advocacy for the education, health, and socioeconomic well-being of their children. In addition, RIPIN works to achieve family-centered systems changes that are culturally competent and community-based by partnering and collaborating with key stakeholders at community, state, and national levels.

Through its Family Voices program, RIPIN will establish itself as Rhode Island's Family-to-Family Health Information and Education Center by focusing on three areas: leadership capacity to promote effective and enduring improvements in community long-term support systems; effective and efficient methods of accessing quality, appropriate services, and supports; and family/professional partnerships in policies and practices related to individual and family-directed supports within integrated community settings.

Note: This Compendium form was not reviewed by the Grantee prior to publication.

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Family-to-Family Health Care Information and Education Centers

SOUTH CAROLINA

Grant Information


Name of Grantee
Family Connection of South Carolina, Inc. (FCSC)
Title of Grant
Family-to-Family Health Care Information and Education Center for South Carolina
Type of Grant
Family-to-Family Health Care Information and Education Centers
Amount of Grant
$165,000
Year Original Funding Received
2005

Contact Information


Andy Pope
Executive Director
Family Connection of South Carolina, Inc.
2712 Middleburg Drive, Suite 103-B
Columbia, SC 29204
803-252-0914
andypope@familyconnectionSC.org

Subcontractor(s)

Web site developer consultant
Evaluation consultant

Target Population(s)


Children with special health care needs (CSHCN) and their families, providers, and other stakeholders.

Goals


Activities


Abstract


Family Connection of South Carolina, Inc. (FCSC), a nonprofit statewide organization consisting of over 15,000 families of CSHCN, will establish a statewide Family-to-Family Health Care Information and Education Center that builds on the best practices from other Family-to-Family Centers. FCSC will promote the philosophy of individual and family-directed supports; provide education, training, and information dissemination to families with CSHCN, parent groups, providers, and other stakeholders; provide training and education on home and community services; help families access their potential eligibility for public programs and benefits; and provide a forum for peer group discussions and interaction. The Family-to-Family Center will draw upon many resources, especially its member families' years of knowledge and experience with the long-term care system. Through parent-to-parent connections and parent/professional collaborations, information for families of CSHCN will be available in a readily accessible manner. Grant-funded staff will collaborate with state agencies and other projects and organizations to develop family friendly materials for dissemination and training. Materials from partner organizations and publications from existing national resources will also be used.

FCSC will maintain a directory of access to new and existing home and community-based resources, which will aid in creating informed and involved consumers in their local communities. FCSC will build on its existing network and develop enhanced relationships with SC ACCESS, a database of comprehensive information and assistance for children and adults of all ages with disabilities, long-term illnesses, or other needs.

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Family-to-Family Health Care Information and Education Centers

TEXAS

Grant Information


Name of Grantee
Texas Parent to Parent (TxP2P)
Title of Grant
Texas Parent to Parent Health Care Information and Education Program
Type of Grant
Family-to-Family Health Care Information and Education Centers
Amount of Grant
$165,000
Year Original Funding Received
2005

Contact Information


Laura J. Warren, Executive Director
Texas Parent-to-Parent
3710 Cedar Street, Box 12
Austin, TX 78705-1449
512-458-8600
Laura@txp2p.org

Subcontractor(s)

None.

Target Population(s)


Children with special health care needs (CSHCN) and their families, as well as the service providers and other professionals who work with them.

Goals


Activities


Abstract


Texas Parent to Parent (TxP2P) will operate a Family-to-Family Health Care Information and Education Center in Texas to assist families of children with disabilities and special health care needs. Through the Center, TxP2P will provide families with the necessary information and resources to make informed choices about the care that their children receive, especially regarding services and service providers. The Family-to-Family Center will also assist in long-term planning, with the goal of ensuring that children can continue to live at home or in an integrated community setting whenever possible. TxP2P will ensure that families are aware of the philosophy of home and community-based supports. Information will also be provided to parent groups, service providers, and other professionals who work with CSHCN.

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Family-to-Family Health Care Information and Education Centers

VIRGINIA

Grant Information


Name of Grantee
Medical Home Plus, Inc.
Title of Grant
The Virginia Integrated Network of Family Support Organizations Center (VA INFO Center)
Type of Grant
Family-to-Family Health Care Information and Education Centers
Amount of Grant
$165,000
Year Original Funding Received
2005

Contact Information


Cynthia Jones, Executive Director
Co-Director, Virginia Family to Family Resource Center
Medical Home Plus, Inc.
8660 Staples Mill Road
Richmond, VA 23228
804-264-8428 (b)
877-264-8366 (toll-free)
cjones@medhomeplus.org

Dana Yarbrough, Co-Director
Virginia Family to Family Resource Center
Executive Director of Parent to Parent of Virginia
804-795-1481
PTPofVA@aol.com

Subcontractor(s)

Graphics design consultant
Evaluation and strategic planning consultants

Target Population(s)


Families with children and youth with special health care needs (CYSHCN), as well as grassroots organizations and other stakeholders.

Goals


Activities


Abstract


Today in Virginia, family members of over 270,000 CYSHCN (approximately 15 percent of Virginia's total child population) struggle to find resources and services. The percentage of Virginia's children with disabilities (ages birth to 17 years) is higher than the national average, as is the percentage of these children living in poverty (National Survey of Children with Special Health Care Needs). Family Voices of Virginia (a program of Medical Home Plus, Inc.) and Parent to Parent of Virginia, in collaboration with VA INFO (the Virginia Integrated Network of Family Support Organizations), are committed to addressing this critical need.

The Virginia Family to Family Resource Center will build capacity in the Commonwealth to assist CYSHCN and their families by gathering and disseminating information, providing training and technical assistance, developing resources, creating partnerships across agencies and family support organizations, promoting individual- and family-directed supports, and collaborating with other Family-to-Family Health Care Information and Education Centers nationally. The work of the Center will be assisted by the family support coalition (VA INFO), whose members are committed to supporting the development and operation of the Center, and working toward a "seamless" system of care for CYSHCN and their families.

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Family-to-Family Health Care Information and Education Centers

WASHINGTON

Grant Information


Name of Grantee
Washington PAVE
Title of Grant
Family Voices Health Information and Education Center
Type of Grant
Family-to-Family Health Care Information and Education Centers
Amount of Grant
$165,000
Year Original Funding Received
2005

Contact Information


Cassandra Johnston, State Coordinator
Washington Family Voices
Washington PAVE
6316 S. 12th Street, Suite B
Tacoma, WA 98465-1900
253-565-2266
weecare@olywa.net

Subcontractor(s)

None.

Target Population(s)


Children with special health care needs (CSHCN) and their families, as well as the advocacy groups, stakeholders, and constituency groups that work with them.

Goals


Activities


Abstract


The Washington Family Voices Health Information and Education Center will operate as a program within Washington PAVE. PAVE, a parent-directed organization, exists to increase independence, empowerment, and future opportunities and choices for consumers with special needs, their families, and communities, through training, information, referral, and support. Families have consistently identified the need for timely, high-quality services, supports, and information in the health care and community service systems. The complexities of the current systems, multiple funding streams, and lack of coordination make it difficult for families to obtain the services their child needs.

To address these needs, the Center will promote the core goals of the CMS Family-to-Family Health Care Information and Education Center and create a clearinghouse of information that will be supported through an existing partnership with WFFN. The Center will build on existing community-based supports and leadership to identify and support families with the information they need in making decisions for their children and youth with special health care needs. The Center will work to promote quality, effective, integrated systems of care to align with the goals and performance measures of the Washington State Children with Special Health Care Needs Program.

The Center will collect data with the Family Voices Solutions Data System to move the goals of the Center forward.

Note: This Compendium form was not reviewed by the Grantee prior to publication.

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Appendix: List of Completes

Appendix: List of Completes

Community-Integrated Personal Assistance Services and Supports Grants (C-PASS)
2001

ALASKA
ARKANSAS
GUAM
MICHIGAN
MINNESOTA
MONTANA
NEVADA
NEW HAMPSHIRE
OKLAHOMA
RHODE ISLAND

Community-Integrated Personal Assistance Services and Supports Grants (C-PASS)
2002

COLORADO
DISTRICT OF COLUMBIA
HAWAII
INDIANA
KANSAS
NORTH CAROLINA
TENNESSEE
WEST VIRGINIA

Nursing Facility Transitions Grants (NFT)
2001

ALABAMA (ILP)
ALASKA
COLORADO
CONNECTICUT
GEORGIA (ILP)
GEORGIA
INDIANA
MARYLAND (ILP)
MARYLAND
MASSACHUSETTS
MICHIGAN
NEW HAMPSHIRE
TEXAS (ILP)
WASHINGTON
WEST VIRGINIA
WISCONSIN (ILP)
WISCONSIN

Nursing Facility Transitions Grants (NFT)
2002

ALABAMA
ARKANSAS
CALIFORNIA (ILP)
DELAWARE (ILP)
DELAWARE
LOUISIANA
MINNESOTA (ILP)
NEBRASKA
NEW JERSEY (ILP)
NEW JERSEY
NORTH CAROLINA
OHIO
RHODE ISLAND
SOUTH CAROLINA
UTAH (ILP)
WYOMING

Real Choice for Systems Change Grants (RC)
2001

ALABAMA
ARKANSAS
DELAWARE
FLORIDA
GUAM
HAWAII
IDAHO
ILLINOIS
IOWA
KENTUCKY
MAINE
MARYLAND
MASSACHUSETTS
MICHIGAN
MINNESOTA
MISSOURI
NEBRASKA
NEW HAMPSHIRE
NEW JERSEY
NORTH CAROLINA
OREGON
SOUTH CAROLINA
TENNESSEE
VERMONT
VIRGINIA

Real Choice for Systems Change Grants (RC)
2002

ALASKA
CALIFORNIA
COLORADO
COMMONWEALTH OF NORTHERN MARIANA ISLANDS
CONNECTICUT
DISTRICT OF COLUMBIA
GEORGIA
INDIANA
KANSAS
LOUISIANA
MISSISSIPPI
MONTANA
NEVADA
NEW MEXICO
NEW YORK
NORTH DAKOTA
OHIO
OKLAHOMA
PENNSYLVANIA
RHODE ISLAND
TEXAS
UTAH
WASHINGTON
WEST VIRGINIA
WISCONSIN

Alphabetical Listing

ALABAMA (NFT-ILP)
ALABAMA (NFT-SP)
ALABAMA (RC)
ALASKA (C-PASS)
ALASKA (NFT-SP)
ALASKA (RC)
ARKANSAS (C-PASS)
ARKANSAS (NFT-SP)
ARKANSAS (RC)
CALIFORNIA (NFT-ILP)
CALIFORNIA (RC)
COLORADO (C-PASS)
COLORADO (NFT-SP)
COLORADO (RC)
CONNECTICUT (NFT-SP)
CONNECTICUT (RC)
DELAWARE (NFT-ILP)
DELAWARE (NFT-SP)
DELAWARE (RC)
DISTRICT OF COLUMBIA (C-PASS)
DISTRICT OF COLUMBIA (RC)
FLORIDA (RC)
GEORGIA (NFT-ILP)
GEORGIA (NFT-SP)
GEORGIA (RC)
GUAM (C-PASS)
GUAM (RC)
HAWAII (C-PASS)
HAWAII (RC)
IDAHO (RC)
ILLINOIS (RC)
INDIANA (C-PASS)
INDIANA (NFT-SP)
INDIANA (RC)
IOWA (RC)
KANSAS (C-PASS)
KANSAS (RC)
KENTUCKY (RC)
LOUISIANA (NFT-SP)
LOUISIANA (RC)
MAINE (RC)
MARYLAND (NFT-ILP)
MARYLAND (NFT-SP)
MARYLAND (RC)
MASSACHUSETTS (NFT-SP)
MASSACHUSETTS (RC)
MICHIGAN (C-PASS)
MICHIGAN (NFT-SP)
MICHIGAN (RC)
MINNESOTA (C-PASS)
MINNESOTA (NFT-ILP)
MINNESOTA (RC)
MISSISSIPPI (RC)
MISSOURI (RC)
MONTANA (C-PASS)
MONTANA (RC)
NEBRASKA (NFT-SP)
NEBRASKA (RC)
NEVADA (C-PASS)
NEVADA (RC)
NEW HAMPSHIRE (C-PASS)
NEW HAMPSHIRE (NFT-SP)
NEW HAMPSHIRE (RC)
NEW JERSEY (NFT-ILP)
NEW JERSEY (NFT-SP)
NEW JERSEY (RC)
NEW MEXICO (RC)
NEW YORK (RC)
NORTH CAROLINA (C-PASS)
NORTH CAROLINA (NFT-SP)
NORTH CAROLINA (RC)
NORTH DAKOTA (RC)
OHIO (NFT-SP)
OHIO (RC)
OKLAHOMA (C-PASS)
OKLAHOMA (RC)
OREGON (RC)
PENNSYLVANIA (RC)
RHODE ISLAND (C-PASS)
RHODE ISLAND (NFT-SP)
RHODE ISLAND (RC)
SOUTH CAROLINA (NFT-SP)
SOUTH CAROLINA (RC)
TENNESSEE (C-PASS)
TENNESSEE (RC)
TEXAS (NFT-ILP)
TEXAS (RC)
UTAH (NFT-ILP)
UTAH (RC)
VERMONT (RC)
VIRGINIA (RC)
WASHINGTON (NFT-SP)
WASHINGTON (RC)
WEST VIRGINIA (C-PASS)
WEST VIRGINIA (NFT-SP)
WEST VIRGINIA (RC)
WISCONSIN (NFT-ILP)
WISCONSIN (NFT-SP)
WISCONSIN (RC)
WYOMING (NFT-SP)

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