Family-to-Family Health Care Information and Education Centers

ALASKA

Grant Information


Name of Grantee

Stone Soup Group

Title of Grant

Alaska's Family-to-Family Health Information Center Project

Type of Grant

Family-to-Family Health Care Information and Education Centers

Amount of Grant

$149,991

Year Original Funding Received

2003

Supplemental Award

$50,000

Expected Completion Date

September 2007

Contact Information


Jayson Smart
Executive/Project Director
907-561-3701
jaysons@stonesoupgroup.org

Katy Parish
Project Manager
3350 Commercial Drive, Suite 100
Anchorage, AK 99501
907-561-3701
katyp@stonesoupgroup.org

Subcontractor(s)

The Center for Human Development, University of Alaska Anchorage
Governor's Council on Disabilities and Special Education

Target Population(s)


Children with special health care needs (CSHCN) and their families.

Goals


Activities


Abstract


Within the last 10 years, Stone Soup Group, an Anchorage-based, nonprofit organization, has been a catalyst for much of the development that has occurred in Alaska's services for CSHCN. Despite the efforts of Stone Soup Group, Alaska still has a long way to go to ensure that families of CSHCN have access to information and training on the resources and supports available to them. Alaska's Family-to-Family Health Care and Information Resource Center will fill this critical gap in Alaska's service system for families of CSHCN.

The project will focus on three primary goals. First, it will identify and compile existing information resources that are relevant to the needs of families of CSHCN. Throughout this identification and compilation process, the staff will identify outdated resources and update or produce new educational resources in order to provide the most comprehensive and up-to-date information warehouse for families of CSHCN in Alaska.

The project will also implement a peer-to-peer interactive network for families of CSHCN. This interactive network will provide an opportunity for families across the State to share their stories and find support among a group of their peers. The network will also provide a forum whereby professionals and other experts may respond to questions and provide information or feedback to families of CSHCN. Efforts to locate additional funding to support the Family-to-Family Information and Resource Center will also be initiated.