Family-to-Family Health Care Information and Education Centers
Name of Grantee
Stone Soup Group
Title of Grant
Alaska's Family-to-Family Health Information Center Project
Type of Grant
Family-to-Family Health Care Information and Education Centers
Amount of Grant
$149,991
Year Original Funding Received
2003
Supplemental Award
$50,000
Expected Completion Date
September 2007
Jayson Smart
Executive/Project Director
907-561-3701
jaysons@stonesoupgroup.org
Katy Parish
Project Manager
3350 Commercial Drive, Suite 100
Anchorage, AK 99501
907-561-3701
katyp@stonesoupgroup.org
The Center for Human Development, University of
Alaska Anchorage
Governor's Council on Disabilities and Special Education
Children with special health care needs (CSHCN) and their families.
Within the last 10 years, Stone Soup Group, an Anchorage-based, nonprofit organization, has been a catalyst for much of the development that has occurred in Alaska's services for CSHCN. Despite the efforts of Stone Soup Group, Alaska still has a long way to go to ensure that families of CSHCN have access to information and training on the resources and supports available to them. Alaska's Family-to-Family Health Care and Information Resource Center will fill this critical gap in Alaska's service system for families of CSHCN.
The project will focus on three primary goals. First, it will identify and compile existing information resources that are relevant to the needs of families of CSHCN. Throughout this identification and compilation process, the staff will identify outdated resources and update or produce new educational resources in order to provide the most comprehensive and up-to-date information warehouse for families of CSHCN in Alaska.
The project will also implement a peer-to-peer interactive network for families of CSHCN. This interactive network will provide an opportunity for families across the State to share their stories and find support among a group of their peers. The network will also provide a forum whereby professionals and other experts may respond to questions and provide information or feedback to families of CSHCN. Efforts to locate additional funding to support the Family-to-Family Information and Resource Center will also be initiated.