Family-to-Family
Health Care Information and
Name of Grantee
The
Exceptional Children's
Title of Grant
Type of Grant
Family-to-Family
Health Care Information and
Amount of Grant
$150,000
Year Original Funding
Received
2004
Connie K. Hawkins, Executive Director
704-892-1321
chawkins@ecacmail.org
Grace Sisco, MPH,
Project Coordinator
907 Barra Row,
704-892-1321 ext. 11
gsisco@ecacmail.org
None.
Children with special health
care needs (CSHCN) and their families.
The process of prioritizing information and
educational needs and gaps will be accomplished using a variety of methods
including surveys and focus groups with organizations and parents in different
parts of the State representing urban/rural and diverse families.
After the information and education priorities and
gaps are identified, grant staff and their grant partners will develop a basic
information packet, and an information and referral
guide will be produced that will include newly created materials from partner
organizations and publications from existing national resources. Topics will be
based on the needs assessment but could include subjects such as working with
providers to create and maintain a "medical home" environment for
delivery of health care services; using available health insurance resources to
cover health care needs of children with chronic illness, disabling conditions,
or other special health care needs; and accessing Medicaid wavers and the
Children's Health Insurance Program (CHIP). Materials will be produced in
multiple formats and translated into Spanish to reach as many people as possible
and address the language and literacy barriers that exist within the State.
In addition, grant staff will conduct
train-the-trainer sessions for members of the Special Needs Federation and
Family Advisory Council and additional training sessions for statewide
organizations targeting families from underserved areas or populations. At
least one workshop will be conducted in Spanish for organizations and agencies
serving native Spanish-speaking families.
The grant project will not replace existing information
networks, but will provide information, training, and technical assistance to
enhance the capacity of existing information networks and improve the quality
of information and referral being provided.