Caregiving

File Downloads / Links

Valuing the Invaluable: 2019 Update Charting a Path Forward

The latest report in the AARP Public Policy Institute’s Valuing the Invaluable series estimates the economic value of unpaid family caregiving at $470 billion in 2017. The report also explores family caregiving trends, highlights federal and state policy changes since the release of the previous Valuing the Invaluable report in 2015, and offers further policy recommendations to enhance the well-being of caregiving families.

Short URL: http://www.advancingstates.org/node/71830

File Downloads / Links

Family Caregivers: Examining Caregiver Characteristics, Caregiving Support, and Other Caregiving Dynamics that Differ Between Short-term and Long-term Caregivers

This data profile uses data from the Caregiver Outcome Evaluation Study of the National Family Caregiver Support Program (NFCSP). It highlights the differences in demographics and the dynamics between short and long term caregivers.

Short URL: http://www.advancingstates.org/node/71606

File Downloads / Links

From Caregiver to Caregiver: The Wisdom and Insights of Former NFCSP Caregivers

ACL undertook a two-part evaluation of the Older Americans Act Title III-E National Family Caregiver Support Program (NFCSP) between 2013 and 2018. ACL conducted a small, retrospective study of caregivers in the Outcome Evaluation whose care recipient passed away during the course of the outcome evaluation. This supplementary study gathered information on the service components and needs of bereaved caregivers and highlights “advice from caregivers to caregivers.”

Short URL: http://www.advancingstates.org/node/71067

File Downloads / Links

From Research to Standard Practice: Advancing Proven Programs to Support Family Caregivers of Persons Living with Dementia

This report discusses what is known about effective programs to support family caregivers and emphasizes evidence-based programs for family caregivers of persons living with dementia. Evidence-based programs to help caregiving families are not widely available in communities. This report looks at barriers to scaling up effective programs and draws attention to programs that have been shown to improve one or more aspects of the quality of life of family caregivers.

Short URL: http://www.advancingstates.org/node/69726

File Downloads / Links

File Downloads / Links

On Pins and Needles: Caregivers of Adults with Mental Illness

The National Alliance for Caregiving, in collaboration with Mental Health America and the National Alliance on Mental Illness, released a report surrounding the topic of caregivers of adults with mental illness. "At least 8.4 million Americans are providing care to an adult with an emotional or mental health issue, and nearly three quarters report that caregiving causes high emotional stress." This report examines the inadequacies the families of individuals with mental illness face in the U.S.

Short URL: http://www.advancingstates.org/node/67425

File Downloads / Links

Advocacy Starts at Home: Strengthening Supports for Low-Income Older Adults and Family Caregivers

Justice in Aging, with the support of the Albert and Elaine Borchard Center on Law and Aging, released a new paper, Advocacy Starts at Home: Strengthening Low-Income Older Adults and Caregivers. The paper's structure introduces Margaret and her story of being a family caregiver, discusses the problems as a result of the strain of poverty on low-income family caregivers and then offers solutions to help support older adults and their caregivers.

Short URL: http://www.advancingstates.org/node/67402

File Downloads / Links

Valuing the Invaluable 2015 Update: Undeniable Progress, but Big Gaps Remain

The report updates national and state estimates of the economic value of family caregiving using the most current data available. It also explains the challenges that family caregivers face today, highlights key policy developments for family caregivers since the 2011 edition of the report, and provides recommendations to better support caregiving families.

Short URL: http://www.advancingstates.org/node/66682

File Downloads / Links

Principles for Improving Financing and Delivery of Long Term Services and Supports and Vision of a Better Future for People Needing Long Term Services and Supports

Convergence Center for Policy Resolution and the Long Term Care Financing Collaborative released two papers regarding the affordability and vision for delivery of long term care in the United States. The papers reflect the idea that the role of families and communities must be recognized when delivering long term services and supports. Additionally, giving elders the ability to finance their own care increases independence and autonomy and allows for support of family members and communities.

Short URL: http://www.advancingstates.org/node/66659

File Downloads / Links

Long Term Care in America: Americans' Outlook and Planning for Future Care

The Associated Press-NORC Center for Public Affairs Research conducted a study to examine the policy issue of long term care and its financing. This research investigated the awareness, attitudes, and understanding of long term care by Americans over the age of 40 through three different studies. The studies have explored diverse issues surrounding long term care like the caregiving experience, person-centered care experiences, and opinions on long term care policy.

Short URL: http://www.advancingstates.org/node/66657

Subscribe to RSS - Caregiving