Caregiving

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Emory University Researchers Seek LGBTQ Caregivers

Researchers at Emory University Goizueta Alzheimer's Disease Research Center are seeking participants for a study on LGBTQ caregivers. The project is intended to help develop a caregiver training program that addresses the obstacles these caregivers face in caring for people with Dementia. The center is seeking individuals who identify as lesbian, gay, bisexual or transgender, are 18 or older, and consider themselves a primary caregiver to complete a 60 minute questionnaire.

Short URL: http://www.advancingstates.org/node/72964

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In Support of Caregivers: Key Accomplishments of Lifespan Respite Grantees

This report captures State Grantee accomplishments, highlighting the knowledge, commitment, ingenuity, and skillful stewardship and administration of resources. Through their work, state Lifespan Respite grantees provide evidence of the merit of the Lifespan Respite Care Program, and inform our path forward.

Short URL: http://www.advancingstates.org/node/72674

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HHS Could Enhance Support for Grandparents and Other Relative Caregivers

This report analyzes the challenges grandparents and older relatives face as primary caregivers. The report outlines the numbers of grandparent and older relative caregivers, and the reasons for this care. It also examines how HHS supports state efforts to use federal programs and initiatives to assist these caregivers. GAO concludes the report by making recommendations for how HHS could improve the sharing of information and best practices about older caregivers with states.

Short URL: http://www.advancingstates.org/node/72118

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Valuing the Invaluable: 2019 Update Charting a Path Forward

The latest report in the AARP Public Policy Institute’s Valuing the Invaluable series estimates the economic value of unpaid family caregiving at $470 billion in 2017. The report also explores family caregiving trends, highlights federal and state policy changes since the release of the previous Valuing the Invaluable report in 2015, and offers further policy recommendations to enhance the well-being of caregiving families.

Short URL: http://www.advancingstates.org/node/71830

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Family Caregivers: Examining Caregiver Characteristics, Caregiving Support, and Other Caregiving Dynamics that Differ Between Short-term and Long-term Caregivers

This data profile uses data from the Caregiver Outcome Evaluation Study of the National Family Caregiver Support Program (NFCSP). It highlights the differences in demographics and the dynamics between short and long term caregivers.

Short URL: http://www.advancingstates.org/node/71606

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From Caregiver to Caregiver: The Wisdom and Insights of Former NFCSP Caregivers

ACL undertook a two-part evaluation of the Older Americans Act Title III-E National Family Caregiver Support Program (NFCSP) between 2013 and 2018. ACL conducted a small, retrospective study of caregivers in the Outcome Evaluation whose care recipient passed away during the course of the outcome evaluation. This supplementary study gathered information on the service components and needs of bereaved caregivers and highlights “advice from caregivers to caregivers.”

Short URL: http://www.advancingstates.org/node/71067

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From Research to Standard Practice: Advancing Proven Programs to Support Family Caregivers of Persons Living with Dementia

This report discusses what is known about effective programs to support family caregivers and emphasizes evidence-based programs for family caregivers of persons living with dementia. Evidence-based programs to help caregiving families are not widely available in communities. This report looks at barriers to scaling up effective programs and draws attention to programs that have been shown to improve one or more aspects of the quality of life of family caregivers.

Short URL: http://www.advancingstates.org/node/69726

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On Pins and Needles: Caregivers of Adults with Mental Illness

The National Alliance for Caregiving, in collaboration with Mental Health America and the National Alliance on Mental Illness, released a report surrounding the topic of caregivers of adults with mental illness. "At least 8.4 million Americans are providing care to an adult with an emotional or mental health issue, and nearly three quarters report that caregiving causes high emotional stress." This report examines the inadequacies the families of individuals with mental illness face in the U.S.

Short URL: http://www.advancingstates.org/node/67425

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Advocacy Starts at Home: Strengthening Supports for Low-Income Older Adults and Family Caregivers

Justice in Aging, with the support of the Albert and Elaine Borchard Center on Law and Aging, released a new paper, Advocacy Starts at Home: Strengthening Low-Income Older Adults and Caregivers. The paper's structure introduces Margaret and her story of being a family caregiver, discusses the problems as a result of the strain of poverty on low-income family caregivers and then offers solutions to help support older adults and their caregivers.

Short URL: http://www.advancingstates.org/node/67402

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