Family Caregivers

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Making the Invisible Visible: State Strategies for Identifying and Reaching Family Caregivers

Several states are seeking ways to effectively address the health, economic, and social challenges experienced by family caregivers, especially those from marginalized communities. This brief outlines practical strategies to identify and reach family caregivers used by cross-sector state teams participating in Helping States Support Families Caring for an Aging America, a CHCS initiative made possible by The John A. Hartford Foundation and the Michigan Health Endowment Fund.

Short URL: http://www.advancingstates.org/node/73949

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Reducing Costs for Families and States by Increasing Access to Home and Community-Based Services

The majority of individuals who need long-term services and supports (LTSS) in the United States rely on unpaid assistance from family and friends. The economic value of the unpaid care they provide is estimated to be over $470 billion annually. Unmet needs and waiting lists for Medicaid Home and Community Based Services (HCBS) place significant strain on individuals with disabilities and their families. This report explores how increasing access to HCBS services can reduce out-of-pocket costs for families and strengthen employment and financial wellbeing of family caregivers.

Short URL: http://www.advancingstates.org/node/73790

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Building a National Strategy to Support Family Caregivers

This report summarizes findings from research involving stakeholder organizations working with family caregivers in the private and public sectors. The report includes insights into best practice models and action steps that can be included in the national strategy to meet the RAISE goals. Additional stakeholder groups such as the direct care workforce, county health care providers, employers, aging and disability organizations, faith-based groups, respite care providers, and others participated in a series of individual interviews and group listening sessions.

Short URL: http://www.advancingstates.org/node/73752

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Caregiving in a Diverse America

The National Alliance for Caregiving has published a 2021 national report, "Caregiving in a Diverse America: Beginning to Understand the Systemic Challenges Facing Family Caregivers," which was based on results of the Caregiving in the U.S. 2020 study. The report analyzes the experience of over 800 caregiver respondents of different socioeconomic background, sexual orientation, and gender. The report also includes additional literature on diverse caregiving and research recommendations.

Short URL: http://www.advancingstates.org/node/73563

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Supporting Family Caregivers: A Collection of Evidence, Tools, and Case Studies

The Better Care Playbook for People with Complex Needs has come out with a new collection about supporting family caregivers. Family caregivers provide care for individuals with complex health needs, including older adults, people living with dementia, and people with disabilities, and are often responsible for taking on medical tasks such as medication management, wound care, and assisting with mobility. This playbook explain what a supportive family caregiving model looks like and how organizations can implement these approaches in their work.

Short URL: http://www.advancingstates.org/node/73335

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The RAISE Family Caregiving Advisory Council

The RAISE Family Cargiving Advisory Council has released its RAISE Act Report to Congress on September 22, 2021. The report includes 26 key recommendations to help develop a national strategy to support family caregivers, including ways that public and private sectors can support the community's changing needs as the nation adapts to COVID-19.

Short URL: http://www.advancingstates.org/node/73140

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How Employers and States Can Support the Essential Workforce of Family Caregivers

This editorial, by the Center for Health Care Strategies (CHCS) and The John A. Hartford Foundation explores how employers and states can support employees with caregiving responsibilities through flexible workplace policies, tools, and resources. The editorial highlights resources from two states participating in CHCS’ Helping States Support Families Caring for an Aging America initiative.

Short URL: http://www.advancingstates.org/node/72976

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Understanding Today’s Federal Policy Landscape for Supporting Family Caregivers

CHCS published a Medicaid Policy cheat sheet detailing the importance of family caregivers. The resource reviews legislation and efforts led by the Biden Administration to support unpaid family caregivers, and answers the following questions: Who are family caregivers and what do they do? What hardships do family caregivers face as a result of providing care? How can legislation help family caregivers?

Short URL: http://www.advancingstates.org/node/72723

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What Family Caregivers Need: Findings from Listening Sessions

This report, by the University of Massachusetts at Boston and Community Catalyst, shares information collected from family caregiver listening sessions. The sessions were intended to give family caregivers the opportunity to communicate their challenges, needs, and suggest recommendations for services, supports and policies. Findings from the sessions cover topics including emotional and financial stress, caregiving education and training, workplace flexibility, and tax policy change.

Short URL: http://www.advancingstates.org/node/72610

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Retirement Security: Other Countries' Experiences with Caregiver Policies

GAO recently published a report to examine how other countries provide support to family caregivers, challenges present in these approaches, and the development of HHS’ national family caregiving strategy. GAO researched caregiver policies from Australia, Germany, and the United Kingdom, which focused on employment flexibility, income support, and pension credits for family caregivers.

Short URL: http://www.advancingstates.org/node/72212

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