All States/Territories

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Family Voices of North Dakota Website and E-newsletter

Family Voices of North Dakota is a state chapter of the National Family Voices organization and provides health information and education. As part of the Family to Family grant, this chapter has begun to produce <i>Pass It on…Health Care Policy</i>, an e-newsletter that shares resources, information, and activities regarding care for children with special health care needs. Also visit their website for publications, a link directory, and other interactive resources.

Short URL: http://www.advancingstates.org/node/50726

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Personal Assistance Direct Support Workforce Survey

The West Virginia C-PASS Grantees developed and designed this survey to determine the status of direct support workers providing home and community-based personal assistance services. The survey was distributed to agencies where workers provide services such as homemaker and personal care. The information gathered will be used by state policy makers to guide strategic planning and improve service delivery. The data will also help to implement and evaluate workforce development.

Short URL: http://www.advancingstates.org/node/50725

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New Jersey Family Care - Website and Presentations

New Jersey Family Care is a federal and state-funded health insurance program which helps uninsured children receive affordable health coverage. The SPAN of NJ program has developed a number of presentations that explain their program, provide an overview of all medical insurance options, individual health plans and the other vital information. Presentation titles include: New Jersey Family Care, Medically Necessary Services, Individual Health Plan, EPSDT, and Medical Insurance.

Short URL: http://www.advancingstates.org/node/50724

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The Medical Home Concept Presentations

Medical Home is an initiative funded by the MCH Bureau and HRSA and administered by SPAN of New Jersey as an approach to providing high quality, cost effective health services. The concept is for coordinated & respectful health care partnership among a child, his/her parents and the child’s Primary Care Provider. The presentations provide an overview of partnering. Titles includes: The Medical Home, Why do Parents Get Involved, Parent Professional Collaboration, and Partnering with Providers.

Short URL: http://www.advancingstates.org/node/50723

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New Jersey Care 2000+ Program - Brochures and Presentation

This listing is a series of family-friendly brochure from the Statewide Parent Advocacy Network of New Jersey. They are designed to help family with important decisions and to introduce families to the New Jersey Care 2000+. Brochure topics include: Medicaid Managed Care, Choosing a Provider, Provider Relations and Advocacy, Dispute Resolution, Welfare, Supplemental Security Income, and Medicaid, Important Terms, Resource List.

Short URL: http://www.advancingstates.org/node/50722

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Public Policy Advocacy for Social Change and Family Involvement Presentations

The presentation from the Statewide Parent Advocacy Network of New Jersey discusses advocacy and the elements necessary to effect social change: strategic planning, information and research, involvement of others, support for parent participation, diversity and outreach, leadership building, understanding public policy and the legislative cycle, and effective advocacy strategies. Available in English and Spanish, these presentations address how families can be involved in the advocacy process.

Short URL: http://www.advancingstates.org/node/50721

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Consumer Direction and Family Caregiving: Results from a National Survey

Although consumer direction is a growing trend in publicly supported HCBS programs across the states, we know relatively little about how this approach is implemented in the states. This national study aims to describe the role of consumer direction in publicly funded family caregiver support services and HCBS programs with a family caregiving component. This report addresses three questions with the intent of informing policy discussions.

Short URL: http://www.advancingstates.org/node/50720

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Strengthening Families: The Key to Safe & Healthy Children

<i>Standards for Family-Serving Programs: Building Success through Family Support.</i> The Statewide Parent Advocacy Network (SPAN) of New Jersey provided this presentation defines family support and details the components of successful family support programs: beliefs in principles, effective practice standards, and effective administration standards. The presentation was developed by The NJ Task Force on Child Abuse & Neglect & Family Support America.

Short URL: http://www.advancingstates.org/node/50719

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South Carolina’s Care Call

A key component of consumer-direction includes methods to ensure that essential supports are provided. This State Policy in Practice technical assistance document offers a practical example from the State of South Carolina. Care Call is a system developed to help South Carolina monitor service delivery provided though South Carolina Choice, an Independence Plus waiver that enables self-direction, and its other traditional home and community-based services (HCBS) waiver programs.

Short URL: http://www.advancingstates.org/node/50716

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Individualized Backup Planning and Independence Plus in Louisiana and New Hampshire

Under Independence Plus Medicaid programs, states must assure that necessary safeguards have been taken to protect the health and welfare of persons receiving services. A key component of participant-direction includes individualized backup planning to ensure that essential supports are available in situations that pose a risk of harm to the participants. These examples are instructive to other states that are considering Independence Plus applications.

Short URL: http://www.advancingstates.org/node/50715

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