Caregiving

The National Alliance for Caregiving has published a 2021 national report, "Caregiving in a Diverse America: Beginning to Understand the Systemic Challenges Facing Family Caregivers," which was based on results of the Caregiving in the U.S. 2020 study. The report analyzes the experience of over 800 caregiver respondents of different socioeconomic background, sexual orientation, and gender. The report also includes additional literature on diverse caregiving and research recommendations.

The RAISE Family Cargiving Advisory Council has released its RAISE Act Report to Congress on September 22, 2021. The report includes 26 key recommendations to help develop a national strategy to support family caregivers, including ways that public and private sectors can support the community's changing needs as the nation adapts to COVID-19.

Funded by ACL, this resource library collects digital materials from the Older Adults' Equity Collaborative member organizations to provide tools and guidance to the aging services network, providers, older adults and family caregivers. The resources included cover topics of social isolation and mental health, Alzheimer's and Dementia, disabilities, caregiving, retirement income and security, and emergency planning.

This report captures State Grantee accomplishments, highlighting the knowledge, commitment, ingenuity, and skillful stewardship and administration of resources. Through their work, state Lifespan Respite grantees provide evidence of the merit of the Lifespan Respite Care Program, and inform our path forward.

This report analyzes the challenges grandparents and older relatives face as primary caregivers. The report outlines the numbers of grandparent and older relative caregivers, and the reasons for this care. It also examines how HHS supports state efforts to use federal programs and initiatives to assist these caregivers. GAO concludes the report by making recommendations for how HHS could improve the sharing of information and best practices about older caregivers with states.

The National Alliance for Caregiving and AARP released an update version of the Caregiving in the US report for 2020. The report contains updated data from research conducted since the report’s last release in 2015. Included in the report are data about caregiver prevalence and demographics, care recipient demographics, types of care caregivers provide, caregiver training and information needs, and other results from the research.

This report highlights innovative approaches in supporting family caregivers. The report features programs in Hawaii, Maine, Minnesota, Tennessee, and Washington.

This data profile uses data from the Caregiver Outcome Evaluation Study of the National Family Caregiver Support Program (NFCSP). It highlights the differences in demographics and the dynamics between short and long term caregivers.

ACL undertook a two-part evaluation of the Older Americans Act Title III-E National Family Caregiver Support Program (NFCSP) between 2013 and 2018. ACL conducted a small, retrospective study of caregivers in the Outcome Evaluation whose care recipient passed away during the course of the outcome evaluation. This supplementary study gathered information on the service components and needs of bereaved caregivers and highlights “advice from caregivers to caregivers.”

The National Alliance for Caregiving, in collaboration with Mental Health America and the National Alliance on Mental Illness, released a report surrounding the topic of caregivers of adults with mental illness. "At least 8.4 million Americans are providing care to an adult with an emotional or mental health issue, and nearly three quarters report that caregiving causes high emotional stress." This report examines the inadequacies the families of individuals with mental illness face in the U.S.