Family Caregivers

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Working with Black Communities to Improve At-Home Care Coordination for People with Dementia

The Maximizing Independence (MIND) at Home program at Johns Hopkins University provides home and community-based care coordination for individuals and families living with dementia. Through focus groups with Black caregivers, researchers at Johns Hopkins aimed to better understand the unique needs of Black patients and families living with dementia, identify opportunities to improve care delivery, and understand caregivers’ perception of the MIND at Home program. This blog post from The Playbook explains the MIND at Home program and how dementia care coordination programs can better support Black patients and their families.

Short URL: http://www.advancingstates.org/node/74229

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ACL Accepting Comments on the National Strategy to Support Family Caregivers

The 2022 National Strategy to Support Family Caregivers is now available for public comment for 60 days. Comments will be used to inform the ongoing work of two Congressionally mandated caregiving advisory councils, and inform future updates to the strategy. The strategy is intended to serve as a national roadmap for better recognizing and supporting family and kinship caregivers of all ages, backgrounds, and caregiving situations. It includes nearly 350 actions the federal government will take to support family caregivers in the coming years and more than 150 actions that can be adopted at other levels of government and across the private sector to build a system to support family caregivers.

Short URL: http://www.advancingstates.org/node/74146

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Making the Invisible Visible: State Strategies for Identifying and Reaching Family Caregivers

Several states are seeking ways to effectively address the health, economic, and social challenges experienced by family caregivers, especially those from marginalized communities. This brief outlines practical strategies to identify and reach family caregivers used by cross-sector state teams participating in Helping States Support Families Caring for an Aging America, a CHCS initiative made possible by The John A. Hartford Foundation and the Michigan Health Endowment Fund.

Short URL: http://www.advancingstates.org/node/73949

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Reducing Costs for Families and States by Increasing Access to Home and Community-Based Services

The majority of individuals who need long-term services and supports (LTSS) in the United States rely on unpaid assistance from family and friends. The economic value of the unpaid care they provide is estimated to be over $470 billion annually. Unmet needs and waiting lists for Medicaid Home and Community Based Services (HCBS) place significant strain on individuals with disabilities and their families. This report explores how increasing access to HCBS services can reduce out-of-pocket costs for families and strengthen employment and financial wellbeing of family caregivers.

Short URL: http://www.advancingstates.org/node/73790

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Building a National Strategy to Support Family Caregivers

This report summarizes findings from research involving stakeholder organizations working with family caregivers in the private and public sectors. The report includes insights into best practice models and action steps that can be included in the national strategy to meet the RAISE goals. Additional stakeholder groups such as the direct care workforce, county health care providers, employers, aging and disability organizations, faith-based groups, respite care providers, and others participated in a series of individual interviews and group listening sessions.

Short URL: http://www.advancingstates.org/node/73752

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Supporting Family Caregivers: A Collection of Evidence, Tools, and Case Studies

The Better Care Playbook for People with Complex Needs has come out with a new collection about supporting family caregivers. Family caregivers provide care for individuals with complex health needs, including older adults, people living with dementia, and people with disabilities, and are often responsible for taking on medical tasks such as medication management, wound care, and assisting with mobility. This playbook explain what a supportive family caregiving model looks like and how organizations can implement these approaches in their work.

Short URL: http://www.advancingstates.org/node/73335

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Caregiving in the U.S 2020

This report is an update to NAC's research series, Caregiving in the U.S., conducted roughly every five years. The 2020 update shows that the number of family caregivers in the United States has increased by 9.5 million from 2015 to 2020. The report has also found that the general health of family caregivers has declined in the last five years. Read the full report to learn more. Dowload is available in Spanish.

Short URL: http://www.advancingstates.org/node/72627

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Retirement Security: Other Countries' Experiences with Caregiver Policies

GAO recently published a report to examine how other countries provide support to family caregivers, challenges present in these approaches, and the development of HHS’ national family caregiving strategy. GAO researched caregiver policies from Australia, Germany, and the United Kingdom, which focused on employment flexibility, income support, and pension credits for family caregivers.

Short URL: http://www.advancingstates.org/node/72212

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Strengthening Family Caregiving Programs and Policies through Collaboration: Lessons from Six States

The Center for Health Care Strategies published a brief highlighting six states – Alabama, Idaho, Iowa, New Hampshire, South Carolina, and Virginia – who have participated in innovative work to boost the support network for family caregivers. The brief includes lesson learned from each of the states’ programs and policies that support family caregivers. Additionally, the brief describes four elements that are essential to making effective changes to family caregiver support programs.

Short URL: http://www.advancingstates.org/node/72159

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Supporting the Critical Role of Family Caregivers: State Opportunities

This fact sheet was developed as part of the Center’s Helping States Support Families Caring for an Aging America initiative. Six states – Alabama, Idaho, Iowa, New Hampshire, South Carolina, and Virginia- are involved with the initiative. This fact sheet provides an overview of unpaid family caregiving and lists options state leaders can consider implementing in order to support family caregivers in their state.

Short URL: http://www.advancingstates.org/node/71677

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