Research / Journal abstracts

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Where Would You Turn for Help? Older Adults’ Awareness of Community Health and Support Services for Dementia Care - Journal Article

Most literature focuses on long-term services and support utilization rather than awareness. This Canadian study used a series of 12 vignettes to describe common situations faced by older adults for which community support services (CSSs) might be appropriate. The findings showed that awareness of CSSs is much lower than previously thought, and that the most important sources of information were information and referral sources, the telephone book, doctors’ offices, and word of mouth.

Short URL: http://www.advancingstates.org/node/52794

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Weighing Public and Private Options for Reforming Long-Term Care Financing: Findings From a National Survey of Specialists - Journal Abstract

Deficiencies in current LTC financing models are substantial. This article examines what characteristics predispose LTC specialists to weigh one approach, public or private, more than the other. Data are derived from a Web-based survey of 1,147 individuals with known or demonstrable experience with LTC, including consumer advocates, provider representatives, policy experts, and public officials.

Short URL: http://www.advancingstates.org/node/52793

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The Loneliness of the Long-Term Care Giver – Journal Abstract

Families have always borne the burden of long-term care, and struggle with feelings of grief, loss, despair, anger and hopelessness. In this powerful first person account, the author points out some of the sad consequences of the American health care system's emphasis on the treatment of acute episodic illness or injury and its relative neglect of chronic illness long-term care. This essay, written for the New England Journal of Medicine’s “Sounding Board” series, is considered a seminal work.

Short URL: http://www.advancingstates.org/node/52782

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Financing Long-Term Care After Health Care Reform - Journal Abstract

Only 10% of Americans have long-term care insurance and many insurance companies have terminated, or significantly raised the cost of their long-term care insurance offerings. Within this context, the author examines the CLASS program and compares its various features to currently available long-term care insurance policies, focusing on benefit eligibility, enrollment procedures, scope of benefits, ease of acquisition, program solvency, premium stability, and other features.

Short URL: http://www.advancingstates.org/node/52777

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Parental Caregivers' Desires for Lifetime Assistance Planning for Their Children with Intellectual and Developmental Disabilities - Journal Abstract

Future life planning is a growing concern among families with children with disabilities. This article presents a needs assessment evaluating feasibility of a new model for future life planning for family caregivers, Lifetime Assistance, which will provide ongoing planning and monitoring for individuals with intellectual and developmental disabilities. Findings show that caregivers overwhelmingly identified the need for the program and many were willing to pay for it themselves.

Short URL: http://www.advancingstates.org/node/52772

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Status and Trends in the Direct Support Workforce in Consumer-Directed Supports – Journal Abstract

Self-directed programs that allow individuals with intellectual and developmental disabilities to exercise greater control over their finances have become increasingly common, however challenges in the recruitment, retention and training of direct support workers have grown more acute. In this article, the authors investigate the status of the Direct Support workforce for people using self-directed supports in one Midwestern state, based on the results of a statewide survey of service users.

Short URL: http://www.advancingstates.org/node/52771

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Caregiving Strain and Estimated Risk for Stroke and Coronary Heart Disease Among Spouse Caregivers – Journal Article

High caregiving stress has been associated with poor physical and psychological health, and with increased mortality among spouse caregivers. This study examined the differential effects of stress on stroke and coronary heart disease (CHD) risk by race and sex. Caregiving strain was significantly associated with higher estimated risk for men, particularly African American men, providing caregiving to their wives.

Short URL: http://www.advancingstates.org/node/52748

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A Web-Based Approach for Helping Communities Become More “Aging Friendly” – Journal Abstract

The “Creating Aging-Friendly Communities” online conference was designed to capture knowledge being accumulated by researchers, advocacy groups, grassroots organizations, and local governments across the U.S., and make it available to others interested in learning what they could do to make their communities more aging friendly. This article describes the conference and supporting Web site.

Short URL: http://www.advancingstates.org/node/52745

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Promoting Sustainability in Frontline Home Care Aides: Understanding Factors Affecting Job Retention in the Home Care Workforce – Journal Abstract

According to the results of this survey, the most significant factors that drive turnover among home care workers are wages, intrinsic rewards, age (older workers are less likely to leave their jobs), and education level (more years of education result in higher retention). The study involved a sample of 116 home care aides employed by three agencies.

Short URL: http://www.advancingstates.org/node/52715

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Hiring Relatives as Caregivers in Two States: Developing an Education and Research Agenda for Policy Makers – Journal Abstract

Hiring relatives as caregivers remains a controversial policy issue. This two-state case study reports findings about views from policy experts regarding a policy option to hire family caregivers in HCBS long-term care programs. Policy makers also discussed information needed by other states considering this option and effective approaches to disseminate findings about this option from the Cash & Counseling Demonstration Evaluation.

Short URL: http://www.advancingstates.org/node/52705

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